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There is hope, there is help.
- By Aaron-Pennsylvania · New reply November 6, 2009
- Journal · 1 reply
- At times I felt alone and no one understood what I was going through. Well, that was true regarding the people around me. Other than Samantha's family and myself, the people in our circle could not understand ...
36 year old brother OD now has ABI----HELP
- By formybro · New reply November 6, 2009
- Discussion in Brain injuries · 2 replies
- My only brother has been in the ICU for over 1 month. I don't know how long he was down for. I was told that his oxygen level was 72 when they found him. The ct scan reveals many infarcs to the brain ...
Brain Injury Recovery / MCS / PVS / Anoxic
- By WMD · New reply November 6, 2009
- Discussion in Brain injuries · 26 replies
- My name is Wendy and I am the mother of a 13yr old boy who sustained a Severe Anoxic Brain Injury when playing in his friend's backyard in May 2008. There is so little information available about anoxic ...
Support for Survivors
- By Aaron-Pennsylvania · New reply November 5, 2009
- Discussion in Living with a brain or nervous system disease · 6 replies
- This site is such a great resource for survivors of ABI and their family members. In reality, the family members are survivors too. Sometimes the family needs help and insight from others who have been ...
Has anyone ever tried a rehabilation for severe brain injuries?
- By cheriffic · New reply November 5, 2009
- Journal · 7 replies
- If so, can you let me if insurance covers it? And most importantly, did it help ...
Out Damn Spot!
- By dizzybee · New reply November 4, 2009
- Journal · 6 replies
- have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...
How long does Billy have with an ef of 29??
- By sophianbilly · New reply November 3, 2009
- Journal · 10 replies
- his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...
Billy' s cortico blindness
- By sophianbilly · New reply November 2, 2009
- Discussion in Brain injuries · 2 replies
- Cortico Blindness /Visual disturbances. The person may have trouble processing visual information. They may find it difficult to focus or they may reach for an object, but not be able to touch it because ...
myson
- By myson · New reply October 31, 2009
- Journal · 3 replies
- My son has Landau-Kleffner syndrome, and it is killing me that I cant make it better. I am mommy and I am suppose to make it all better. If there are any going through this please talk to me ...
my NIH experience
- By dizzybee · New reply October 29, 2009
- Journal · 32 replies
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
HBOT - Hyperbaric Oxygen Therapy for Anoxic Brain Injury
- By kuwanyauma · New reply October 28, 2009
- Discussion in Brain injuries · 5 replies
- Hey! Can anyone please give me your experiences and results using HBOT for your loved one with an Anoxic Brain Injury? I was thinking of using this therapy for my husband, but it will eat up most of our ...
BRAIN FITNESS
- By mysonjosh · New reply October 25, 2009
- Discussion in Brain injuries · 3 replies
- For those with brain injuries, check out Lumosity.com, a wonderful website for stimulating the brain. It has great cognitive exercises and I use it daily for my son Josh, age 22, who suffered from an ...
Knowing when it's time to let go...
- By cheriffic · New reply October 25, 2009
- Journal · 6 replies
- My mom is yelling day & night & she is clearly going backwards mentally. She was doing so well in July. I remember one of the kind nurses told me that I would know when it would be time to let go, and ...
Why are we so hesitant to call ourselves brain injury 'survivors'?
- By QuintBy · New reply October 25, 2009
- Discussion in Brain injuries · 1 reply
- It is impossible to read about someone who has had cancer who is not referred to as a 'cancer survivor'. Yet I rarely see those who have survived anoxic brain damage, or have awoken from a 10-day coma ...
www.powercatcharters.com/Billy
- By sophianbilly · New reply October 23, 2009
- Journal · 4 replies
- I look for information all the time.....My Billy had a chronic heart attack with anoxia to the brain and to the heart on April 10, 2009....I was alone in the morning with him when he complained of chest ...
Anoxic Brain Injury/ABI from Sudden Cardiac Arrest/SCA
- By NWWriter · New reply October 23, 2009
- Discussion in Brain injuries · 96 replies
- I'm tossing this topic in for discussion because I'm finding that the stigma of "brain injury" (or the more sweepingly-frightening term "brain DAMAGE") often stops people from admitting that they have ...
My mother is a fighter...
- By cheriffic · New reply October 17, 2009
- Journal · 6 replies
- On June 28th, 2009, my sweet mom went into SCA one day prior to her defib/pacemaker surgery right after Church. She has an ABI. She was w/o oxygen for 20+ minutes. She went into a coma, came out of after ...
Disinhibition
- By NWWriter · New reply October 15, 2009
- Journal · 5 replies
- After my sca I was constantly blurting out the first thought that came to my mind. I didn't realize it was unusual, nor did I see anything wrong with it. I liked being "open" and "frank"!! We should ALL ...
Cortico Blindness/www.powercatcharters.com/Billy
- By sophianbilly · New reply October 14, 2009
- Discussion in Brain injuries · 1 reply
- I am sorry for all of your losses and I can relate... My life changed on April 10, 2009 when my love one Billy had a cardiac arrest with anoxia to his heart and brain and now 6 months later he is improving ...
SICK WITH SICK CHILDREN
- By pie830s · New reply October 14, 2009
- Journal · 6 replies
- IT ALL STARED WHEN MY DAUGHTER WAS BORN. SHE WAS BORN AT 35 WEEKS OLD, 7LB 2 OZ. SHE WAS BIG TO BE A SO EARLY. SHE WASN'T BREATHING, SHE HAD FUILD IN HER LUNGS. THEY GOT HER BREATHING AND SINCE HER OFF ...
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