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The Day My Life Changed Forever

aNewBob
  • By aNewBob · New reply 4:01 am
  • Journal · 7 replies
  • On Dec 17, 2008 my life changed forever. My boyfriend suffered an anoxic brain injury. He had gotten hooked back on meth. To this day I do not know what happened because he was doing so good. He had even ...

36 year old brother OD now has ABI----HELP

formybro
  • By formybro · New reply 3:40 am
  • Discussion in Brain injuries · 3 replies
  • My only brother has been in the ICU for over 1 month. I don't know how long he was down for. I was told that his oxygen level was 72 when they found him. The ct scan reveals many infarcs to the brain ...

finally a small glimmer of hope!

dizzybee
  • By dizzybee · New reply yesterday at 2:19 pm
  • Journal · 7 replies
  • went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...

Ambien (sleeping pill) used to "awaken" individuals in a PVS

formybro
  • By formybro · New reply November 20, 2009
  • Discussion in Brain injuries · 9 replies
  • I need to read more about it. I just wanted to put this out there. Google-- Ambien and persistant vegetative state. It is amazing. My brother is receiving this 2x a day. I played music for him the other ...

Head Injury and SCA our story

Buldozers
  • By Buldozers · New reply November 20, 2009
  • Journal · 3 replies
  • In 1995 my husband went four wheeling with his buddies out at the desert, they rolled 70 feet end over end, the result was 6 concussions and TBI(traumatic brain injury). At the time we were just friends ...

Why meds and not HBOT

aNewBob
  • By aNewBob · New reply November 19, 2009
  • Journal · 2 replies
  • Today seemed a little better. He is still very tired. He kept wanting to go back to bed. i have read that sleep is good for a brain injury. But if he sleeps all day then he won't sleep at night. Wished ...

It will happen in Gods time

formybro
  • By formybro · New reply November 19, 2009
  • Journal · 1 reply
  • I'm not giving up. I know he will respond. God hears our prayers. He is my only sibling. He stares into my soul. What is he thinking?? I'm scared but strong and above all I believe in the power of God ...

There is hope, there is help.

Aaron-Pennsylvania
  • By Aaron-Pennsylvania · New reply November 18, 2009
  • Journal · 3 replies
  • At times I felt alone and no one understood what I was going through. Well, that was true regarding the people around me. Other than Samantha's family and myself, the people in our circle could not understand ...

my NIH experience

dizzybee
  • By dizzybee · New reply November 17, 2009
  • Journal · 40 replies
  • THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...

Gracie, daddy loves you

aNewBob
  • By aNewBob · New reply November 17, 2009
  • Journal · 2 replies
  • Went and sat with Bob today. Can not even do puzzles or anything cause of the meds. All he wants to do is sleep. I miss him so much. It is so hard to think about what the future holds. I remember when ...

HBOT - Hyperbaric Oxygen Therapy for Anoxic Brain Injury

kuwanyauma
  • By kuwanyauma · New reply November 16, 2009
  • Discussion in Brain injuries · 11 replies
  • Hey! Can anyone please give me your experiences and results using HBOT for your loved one with an Anoxic Brain Injury? I was thinking of using this therapy for my husband, but it will eat up most of our ...

My Stepfather

hayley4
  • By hayley4 · Posted November 14, 2009
  • Discussion in Brain injuries · 0 replies
  • Hi to all the brave people whos storys ive read so far on here! this web site has given me alot of hope! my stepfather suffered chest pains whilst on an emirates aeroplane travelling back from Afganistan ...

So confused

worried4dad
  • By worried4dad · New reply November 13, 2009
  • Journal · 4 replies
  • My father caught the swine flu and it damaged his lungs and his kidneys. He coded twice but I still do not know how long his brain went without oxygen. The doctors in ICU advised us to pull the plug because ...

Meet the medic: a real shocker!

rturri
  • By rturri · New reply November 12, 2009
  • Journal · 4 replies
  • When I woke up this morning, Nov. 11, I remembered two things.Today is my birthday and I still hadn't met the last one of the paramedics who came to my rescue when I had my sca on April 6, 2008. So, I ...

Brain Injury Recovery / MCS / PVS / Anoxic

WMD
  • By WMD · New reply November 6, 2009
  • Discussion in Brain injuries · 26 replies
  • My name is Wendy and I am the mother of a 13yr old boy who sustained a Severe Anoxic Brain Injury when playing in his friend's backyard in May 2008. There is so little information available about anoxic ...

Support for Survivors

Aaron-Pennsylvania
  • By Aaron-Pennsylvania · New reply November 5, 2009
  • Discussion in Living with a brain or nervous system disease · 6 replies
  • This site is such a great resource for survivors of ABI and their family members. In reality, the family members are survivors too. Sometimes the family needs help and insight from others who have been ...

Has anyone ever tried a rehabilation for severe brain injuries?

cheriffic
  • By cheriffic · New reply November 5, 2009
  • Journal · 7 replies
  • If so, can you let me if insurance covers it? And most importantly, did it help ...

Out Damn Spot!

dizzybee
  • By dizzybee · New reply November 4, 2009
  • Journal · 6 replies
  • have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...

How long does Billy have with an ef of 29??

sophianbilly
  • By sophianbilly · New reply November 3, 2009
  • Journal · 10 replies
  • his defib/pacemaker was implanted in June 2009 when he was still at UCH after a chronic heart happened on April 2009......He had anoxia to his brain and heart which is why they waited soooo long....He ...

Billy' s cortico blindness

sophianbilly
  • By sophianbilly · New reply November 2, 2009
  • Discussion in Brain injuries · 2 replies
  • Cortico Blindness /Visual disturbances. The person may have trouble processing visual information. They may find it difficult to focus or they may reach for an object, but not be able to touch it because ...

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Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.