My 6yr. old grandson has been sick since he was 6 months old with respitory problems. He also developed a food allergy very young. Dr's said that he had Asthma. It kept getting worse over time and he stayed sick all the time with sinus infections, fevers, allergies. He has Chronic Asthma. Sometimes he would have unexplained fevers and they would be very high. A couple of years ago he started having mucous leaking from his rectum and in his bowel movements. It was so bad at times he had to wear the Goodnites. We live in North Carolina and took him to Wake Forest University Baptist Medical Center / Brenner's Children's Hospital. He has a Pulmonary Spec. and Gastr. Spec. Dr's. thought he had CF. He has been tested for CF, Chron's Disease, Celiac Disease, Diabetes, R. Arthritis (he does have joint pain in knees,legs), Lupus. All the test have come back negative, but the GI Spec. found a problem with his pancreas. He has pancreatic enzyme deficiency disorder and is taking enzymes. He recently had a Endoscopy done and the Dr. took samples of the fluid and biopsies. When we went back for the results everything came back fine. He did increase his enzymes. He told us that he is puzzled because nothing else is showing up and the enzymes Creon 10 is what he would give to treat a CF patient. He is gaining weight, height. He is taking a acid blocker. We don't know what to do now. Should he see another type of Spec. and what kind?? Should he have a certain test done and what kind?? If anyone can help and if anyone is in the medical field your answers are welcomed. We just want to find out what is causing this problem and go from there. Thanks.......KathyG


