I'm Karen. I'm 53. I've osteopenia of the spine, and am having a great deal of bone pain in my lower legs/ankles/feet...arms and hands.
This pain is worse at night.
My doctor had me see a rheumatologist as some blood work concerned them about scleroderma but I do not have scleroderma.
The next trip for me is to the endocrinologist with a specialty in metabolism. I don't even know what that means or that there was such a subset of endrocrinologists. What will they be able to see other docs have not?
I'm a little scared about bone cancer or multiple myeloma (uncle has). The Sclero specialist said that she didn't think it was bone cancer as it is not in just one area or bone, only affects my limbs and that it was a radiant ache, more than big pain.
The pain (again) is more an ache and seems to be worse at night or if I lay a certain way.
I have the osteopenia in the spine which caused me a great deal of pain down my leg (right) and I had a rhizotomy to help with that pain. I had an mri of the spine two years ago that showed no cancer.
I cannot get into the endrocrinologist office until October 3rd. I'm thinking that is a forever away.
I'm going to see my regular physician per the endocrinologists suggestion and see if we can't get some of the tests the endocrinologist may want done, done prior to the appt.
With the myriad blood tests I've had done, I'm telling myself that bone cancer would have shown up. I had a dexa of my spine and hips and it didn't show anything, but then again would it?
bone pain in extremities, worse at night, not worse with exercise.
VitD deficiency (taking 5000 a day)
If anyone has any ideas, or can put my mind at ease a bit I'd appreciate it.