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Site maintenance - Wednesday December 3rd

Walter
  • By Walter · Posted yesterday at 10:03 pm
  • Journal · 8 replies
  • Hello everyone. We'll be upgrading some bits of Inspire during the evening of Wednesday, December 3rd. As a result Inspire will be offline from roughly 7 pm to midnight Eastern time. Thanks so much for ...

skin lesions

cheri72
  • By cheri72 · Posted November 30, 2008
  • Journal · 6 replies
  • I get these nasty skin lesions on my chest, neck, and upper arms. They look like big red c shaped circle that usually does not make a complete circle, all of the skin is slightly raised but in the middle ...

LIGNEOUS CONJUNCTIVITIS

Dante
  • By Dante · Posted November 29, 2008
  • Journal · 0 replies
  • LIGNEOUS CONJUNCTIVITIS R. MEHTA* and A. D. SHAPIRO *Department of Clinical Medicine, Section of Hematology/Oncology, Indiana University School of Medicine, Indianapolis, IN; and Indiana Hemophilia and ...

PLASMINOGEN DEFICIENCY

Dante
  • By Dante · Posted November 29, 2008
  • Journal · 0 replies
  • PLASMINOGEN DEFICIENCY R. MEHTA* and A. D. SHAPIRO *Department of Clinical Medicine, Section of Hematology/Oncology, Indiana University School of Medicine, Indianapolis, IN; and Indiana Hemophilia and ...

Relieved and Scared at the same time

cheri72
  • By cheri72 · Posted November 12, 2008
  • Journal · 7 replies
  • I am so relieved that my Dr. is finally going to do an MRI on my brain, something I think I have needed for some time. Now im also really scared of what they are going to find, I dont know why but I've ...

Afraid and confused.

Unsure
  • By Unsure · Posted November 11, 2008
  • Journal · 4 replies
  • I am still so unsure about sarcoidosis. I read everything I can get my hands on, but I'm just not quite understanding my own, individual case. I'm seeing several specialists and am getting multiple stories ...

Lord i feel so ,,,,,

sarcoidbuddies
  • By sarcoidbuddies · Posted November 5, 2008
  • Journal · 3 replies
  • what a difference a day makes, I have been pretty well until early this morning i went to bed but during the night i kept waking up feeling really jittery so by 7:00 i went back to bed, it felt like i ...

A Quiet Night

sarcoidbuddies
  • By sarcoidbuddies · Posted October 29, 2008
  • Journal · 4 replies
  • well i got onto the computer tonight looking around and checking on all of my dear friends, oh if there was such a thing as hugging them all letting them know there's is 100% love in a human beings that ...

feeling a bit like Job...

vernonmusic
  • By vernonmusic · Posted October 1, 2008
  • Journal · 7 replies
  • So after 4 months of recovering from the thoracotomy, traveling back and forth to Duke University Hospital (3+ hours) every other week to assess sarcoid organ involvment, my husband has decided that he ...

Irregular Heart Beats

JWNugent
  • By JWNugent · Posted September 22, 2008
  • Journal · 8 replies
  • They never have determined what was going on with me. I started passing out. They checked and were supposed to put me on a heart monitor for a week but didn't have the equipment available. I started timing ...

HOW ARE YOU?

JanetGrant
  • By JanetGrant · Posted September 2, 2008
  • Journal · 99 replies
  • I haven't written a journal in quite a while and I think of and pray for all of you. If you are on my friend's list, I know a little more about how you're feeling than the rest. I read the posts on a ...

Working towards a better life

JWNugent
  • By JWNugent · Posted August 21, 2008
  • Journal · 1 reply

ORGANIC FOOD: COST and BENEFITS

JanetGrant
  • By JanetGrant · Posted August 3, 2008
  • Journal · 24 replies
  • Hello to all and I hope you are having a good, happy day. After reading and believing in Delirium's excellent post titled: "Diet For Sarcoidosis", I just wanted to put in my two cents about our food here ...

AGENT ORANGE

JWNugent
  • By JWNugent · Posted July 31, 2008
  • Journal · 10 replies
  • AGENT ORANGE It flowed like a cloud Ground bound crop dusting An odd orange yellow mist Silently from the trees Sweeping into our clearing Expecting this as riot gas We all held our breath Couldn’t under ...

FEVERS

JWNugent
  • By JWNugent · Posted July 31, 2008
  • Journal · 4 replies
  • FEVERS You can feel it coming on The heaviness of false exhaustion Arriving with a warning Foretold by respiratory distress Fits of sneezing difficulty breathing Feel your self slowly breaking down The ...

Isn't it strange...

ShannonZ
  • By ShannonZ · Posted July 22, 2008
  • Journal · 13 replies
  • that quite a few of us on here have more then one health "issue"? We ALL must be tough cookies ...

Improvements to the message system are complete

Walter
  • By Walter · Posted June 10, 2008
  • Journal · 14 replies
  • Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...

Upcoming improvements to the messaging system

Walter
  • By Walter · Posted June 1, 2008
  • Journal · 23 replies
  • Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...

Gammaglobulin Infusion

ShannonZ
  • By ShannonZ · Posted May 30, 2008
  • Journal · 12 replies
  • Yesterday I had my IV infusion. It takes so long because they have to put it in at a slow rate so I dont have a reaction. I got there at 7 am and left at about 4 pm and now I have to go every 2 weeks ...

ace levels?

hayley
  • By hayley · Posted May 26, 2008
  • Journal · 2 replies
  • i have read a few articles about ace levels and what peoples are but i have never heard this term mentioned before by any of my consultants is it a specific blood test as i have had routine bloods done ...

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