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Welcome to Inspire!

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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

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Active journals

finally a small glimmer of hope!

dizzybee
  • By dizzybee · New reply yesterday at 2:19 pm
  • 7 replies
  • went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...

SO excited to share what I have found!

pwrsrg77
  • By pwrsrg77 · New reply yesterday at 2:14 pm
  • 42 replies
  • I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...

my NIH experience

dizzybee
  • By dizzybee · New reply November 17, 2009
  • 40 replies
  • THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...

Isn't it strange...

ShannonZ
  • By ShannonZ · New reply November 16, 2009
  • 17 replies
  • that quite a few of us on here have more then one health "issue"? We ALL must be tough cookies ...

subacute thyroiditis!!!

cheri72
  • By cheri72 · New reply November 15, 2009
  • 7 replies
  • when I was finally diagnosed with sarc, the first symptoms, that took me to the doctor was a terrible pain in my neck, which I later found out was subacute thyroiditis, well its back, and very painful ...

Somebody PLEASE HELP!!! ={

pwrsrg77
  • By pwrsrg77 · New reply November 13, 2009
  • 83 replies
  • Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...

My wife was finally approved for IVIG infusions!

TheVirtualPatient
  • By TheVirtualPatient · New reply November 10, 2009
  • 21 replies
  • After years of Injections and her IgG, A and M being too low, my wife (of 38 years) will start IgG infusions next week. Don't know what to expect other than a long time at the hospital, but it may offer ...

Maintaining the Status Quo

toomanyeos
  • By toomanyeos · Posted November 10, 2009
  • 0 replies
  • Nothing new to report, really. Still having problems with the edema... still no hope of relieving it... still waiting for the appt at Duke to get over with so we can move on to something that actually ...

Webcast: The Art of Survivorship with Wendy Harpham

bedep
  • By bedep · Posted November 9, 2009
  • 0 replies
  • Webcast: The Art of Survivorship with Wendy Harpham Wed., 11/11/09, 8:00 pm EST Listen live or later http://bit.ly/4vYgWf Diagnosed with follicular non-Hodgkin lymphoma in 1990, Dr. Wendy Harpham has ...

Out Damn Spot!

dizzybee
  • By dizzybee · New reply November 4, 2009
  • 6 replies
  • have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...

Helping Children When Mom or Dad Has Cancer

bedep
  • By bedep · Posted October 20, 2009
  • 0 replies
  • HELPING CHILDREN WHEN A PARENT HAS CANCER Webcast Wed, 10/21, 8:00 pm EST Listen live or later: http://bit.ly/4vYgWf Children of all ages face unique challenges when a parent has cancer. Our guests know ...

Coping Strategies - Free Webcast 10/14

bedep
  • By bedep · Posted October 13, 2009
  • 0 replies
  • This week on Lymphomation Live: MAPPING THE EMOTIONAL JOURNEY (http://bit.ly/4vYgWf or www.lymphomabook.com/LymphomationLive.ht ml) Wednesday October 14, 8 pm (EST) – listen live or later Guest: Dr ...

New - weekly webcasts

bedep
  • By bedep · Posted October 5, 2009
  • 0 replies
  • I am a 7 year survivor of fNHL and an avid patient advocate. I'm really excited (and a little nervous!) to be hosting a new webcast series. The shows air Wednesday evenings at 8 pm EST, but they're also ...

Tell me.

cjolie
  • By cjolie · New reply October 4, 2009
  • 15 replies
  • tell me, where did it go, the hopes that i had the belief, that all would be well. when did it get replaced by memories, distant, not quite real, of rainbows and sunlight, stardust glittering on the snow ...

oprah???

cheri72
  • By cheri72 · New reply September 27, 2009
  • 15 replies
  • It makes me wonder why oprah, after a long time of being bombarded with requests, refuses to do a show on sarc? could it be possible that she herself is suffering from something that she does not want ...

new to the group

miller123
  • By miller123 · New reply September 6, 2009
  • 4 replies
  • i am 33yrs old with 2 children recently been diagnosed with livedo and lupas anticoagulant syndrome for the past 2yr ive suffered from chronic fatigue syndrome and depression after the death of my grandad ...

Your Dizzy Laugh of The Day

Unsure
  • By Unsure · New reply August 30, 2009
  • 21 replies
  • I'm lightheaded allllll the time! Have been for years. I often say that if the cops ever pulled me over, I could never pass the drunk driving test because I'm so dizzy all the time. I remember the first ...

I Let Em' Have It Today! How Dare They?!

Unsure
  • By Unsure · New reply August 21, 2009
  • 45 replies
  • Anyway, how do you deal with people not really knowing what we deal with and the daily fight that we deal with feeling that they have the right to tell you that you need to fight? I am so sick and tired ...

Guestbooks are now live!

TeamInspire
  • By TeamInspire · New reply August 15, 2009
  • 6 replies
  • Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...

Scheduled maintenance this evening

TeamInspire
  • By TeamInspire · New reply August 12, 2009
  • 13 replies
  • All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...

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