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Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Journals
finally a small glimmer of hope!
- By dizzybee · Posted November 17, 2009
- 7 replies
- went to new neurologist monday -- he specializes in vascular issues. after talking w/me & hubster, and doing all the neuro tests, he went out to review my pictures. he came back with a very puzzled look ...
subacute thyroiditis!!!
- By cheri72 · Posted November 14, 2009
- 7 replies
- when I was finally diagnosed with sarc, the first symptoms, that took me to the doctor was a terrible pain in my neck, which I later found out was subacute thyroiditis, well its back, and very painful ...
Maintaining the Status Quo
- By toomanyeos · Posted November 10, 2009
- 0 replies
- Nothing new to report, really. Still having problems with the edema... still no hope of relieving it... still waiting for the appt at Duke to get over with so we can move on to something that actually ...
Webcast: The Art of Survivorship with Wendy Harpham
- By bedep · Posted November 9, 2009
- 0 replies
- Webcast: The Art of Survivorship with Wendy Harpham Wed., 11/11/09, 8:00 pm EST Listen live or later http://bit.ly/4vYgWf Diagnosed with follicular non-Hodgkin lymphoma in 1990, Dr. Wendy Harpham has ...
SO excited to share what I have found!
- By pwrsrg77 · Posted November 4, 2009
- 42 replies
- I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...
Out Damn Spot!
- By dizzybee · Posted October 31, 2009
- 6 replies
- have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...
Somebody PLEASE HELP!!! ={
- By pwrsrg77 · Posted October 29, 2009
- 83 replies
- Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...
Helping Children When Mom or Dad Has Cancer
- By bedep · Posted October 20, 2009
- 0 replies
- HELPING CHILDREN WHEN A PARENT HAS CANCER Webcast Wed, 10/21, 8:00 pm EST Listen live or later: http://bit.ly/4vYgWf Children of all ages face unique challenges when a parent has cancer. Our guests know ...
Coping Strategies - Free Webcast 10/14
- By bedep · Posted October 13, 2009
- 0 replies
- This week on Lymphomation Live: MAPPING THE EMOTIONAL JOURNEY (http://bit.ly/4vYgWf or www.lymphomabook.com/LymphomationLive.ht ml) Wednesday October 14, 8 pm (EST) – listen live or later Guest: Dr ...
New - weekly webcasts
- By bedep · Posted October 5, 2009
- 0 replies
- I am a 7 year survivor of fNHL and an avid patient advocate. I'm really excited (and a little nervous!) to be hosting a new webcast series. The shows air Wednesday evenings at 8 pm EST, but they're also ...
my NIH experience
- By dizzybee · Posted October 2, 2009
- 40 replies
- THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...
new to the group
- By miller123 · Posted September 5, 2009
- 4 replies
- i am 33yrs old with 2 children recently been diagnosed with livedo and lupas anticoagulant syndrome for the past 2yr ive suffered from chronic fatigue syndrome and depression after the death of my grandad ...
oprah???
- By cheri72 · Posted August 27, 2009
- 15 replies
- It makes me wonder why oprah, after a long time of being bombarded with requests, refuses to do a show on sarc? could it be possible that she herself is suffering from something that she does not want ...
Your Dizzy Laugh of The Day
- By Unsure · Posted August 20, 2009
- 21 replies
- I'm lightheaded allllll the time! Have been for years. I often say that if the cops ever pulled me over, I could never pass the drunk driving test because I'm so dizzy all the time. I remember the first ...
I Let Em' Have It Today! How Dare They?!
- By Unsure · Posted August 18, 2009
- 45 replies
- Anyway, how do you deal with people not really knowing what we deal with and the daily fight that we deal with feeling that they have the right to tell you that you need to fight? I am so sick and tired ...
Scheduled maintenance this evening
- By TeamInspire · Posted August 10, 2009
- 13 replies
- All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...
HEAL ME
- By SANDARD · Posted August 4, 2009
- 6 replies
- Heal me by Sandra Desapin 8-4-09 Dedicated to Jennifer and her family all those suffering: Heal me How can I explain my feeling’s Put yourself into my shoes Standing in a dark place With a mask upon my ...
ARE U FREAKIN KIDDING ME
- By SANDARD · Posted July 28, 2009
- 19 replies
- YOU WILL LOVE THIS 1. CALLED ABOUT BLOOD TEST- THEY MESSED IT UP AND ARE RE DOING 2. TALKED TO DOC SEEMS AREA HE PICKED FOR BIOPSY WASN'T A GOOD ONE- I TOLD HIM THAT WHEN HE WAS CUTTING A CHUNK OUT OF ...
TO ALL OF YOU HERE WITH SARC - HUGS SANDRA
- By SANDARD · Posted July 27, 2009
- 3 replies
- TO EVERYONE: I URGE YOU TO READ THE FOLLOWING MATERIAL I HAVE BEEN RESEARCHING ALSO, THE LEADER OF THE SARC SUPPORT GROUP HERE ION INDY DIED A FEW DAYS LATER AFTER BERNIE MAC....SO IF NOONE DIES FROM ...
VICTIM BY SANDRA DESPAIN
- By SANDARD · Posted July 26, 2009
- 13 replies
- She doesn’t recognize the face she sees in the mirror anymore Since whatever it is,got a hold of her she don’t feel like she did before The bruises on her legs don’t fade It takes everything she’s got ...
