Home - Blood and lymphatic disorders support group - Inspire

Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

All new and active discussions & journals

Why are we here?

By Brian · New reply 6:41 am
Journal · 114 replies
When we started this community, each of us faced important health issues in our lives. Some of us have family members with medical conditions. Many of us have medical conditions of our own. All of us ...

feeling a bit like Job...

By vernonmusic · New reply October 3, 2008
Journal · 7 replies
So after 4 months of recovering from the thoracotomy, traveling back and forth to Duke University Hospital (3+ hours) every other week to assess sarcoid organ involvment, my husband has decided that he ...

HOW ARE YOU?

By JanetGrant · New reply September 30, 2008
Journal · 97 replies
I haven't written a journal in quite a while and I think of and pray for all of you. If you are on my friend's list, I know a little more about how you're feeling than the rest. I read the posts on a ...

Irregular Heart Beats

By JWNugent · New reply September 29, 2008
Journal · 8 replies
They never have determined what was going on with me. I started passing out. They checked and were supposed to put me on a heart monitor for a week but didn't have the equipment available. I started timing ...

AGENT ORANGE

By JWNugent · New reply September 28, 2008
Journal · 9 replies
AGENT ORANGE It flowed like a cloud Ground bound crop dusting An odd orange yellow mist Silently from the trees Sweeping into our clearing Expecting this as riot gas We all held our breath Couldn’t under ...

Gammaglobulin Infusion

By ShannonZ · New reply September 23, 2008
Journal · 12 replies
Yesterday I had my IV infusion. It takes so long because they have to put it in at a slow rate so I dont have a reaction. I got there at 7 am and left at about 4 pm and now I have to go every 2 weeks ...

Isn't it strange...

By ShannonZ · New reply September 12, 2008
Journal · 9 replies
that quite a few of us on here have more then one health "issue"? We ALL must be tough cookies ...

Working towards a better life

By JWNugent · New reply August 23, 2008
Journal · 1 reply

ORGANIC FOOD: COST and BENEFITS

By JanetGrant · New reply August 7, 2008
Journal · 24 replies
Hello to all and I hope you are having a good, happy day. After reading and believing in Delirium's excellent post titled: "Diet For Sarcoidosis", I just wanted to put in my two cents about our food here ...

FEVERS

By JWNugent · New reply August 5, 2008
Journal · 4 replies
FEVERS You can feel it coming on The heaviness of false exhaustion Arriving with a warning Foretold by respiratory distress Fits of sneezing difficulty breathing Feel your self slowly breaking down The ...

Upcoming improvements to the messaging system

By Walter · New reply July 7, 2008
Journal · 23 replies
Hello everyone. I'm writing to let you know about some long overdue improvements that we'll be making to this site's messaging system later this week. The messages section is the most frequently visited ...

Improvements to the message system are complete

By Walter · New reply June 22, 2008
Journal · 14 replies
Hello everyone. Just a quick note to let you know that the improvements to the message system that I wrote about previously are complete. You can check them out now. You'll notice that we've grouped your ...

Updated System maintenance: Tuesday June 10th, 5 am - 7 am Eastern

By Walter · New reply June 5, 2008
Journal · 1 reply
** Updated ** Due to power outages caused by storms in the Washington, DC area, we need to postpone this maintenance until Tuesday June 10th, from 5 am to 7 am. Thanks for your patience. ** Updated ...

is sarcoid hereditary

By hayley · New reply May 28, 2008
Journal · 15 replies
im concerned about the amount of letters ive read on here about peoples relatives having sarcoid i was told on diagnosis by the doctor that it wasnt hereditary but from some of the stories on here it ...

ace levels?

By hayley · New reply May 26, 2008
Journal · 2 replies
i have read a few articles about ace levels and what peoples are but i have never heard this term mentioned before by any of my consultants is it a specific blood test as i have had routine bloods done ...

TREATING PAIN AND DEPRESSION IN SARCOIDOSIS

By JanetGrant · New reply May 18, 2008
Journal · 10 replies
I would like to thank all of you who so kindly and generously took the time to respond to my last journal, " INFLAMMATION AS THE CAUSE OF SARCOIDOSIS." I had intended to delve more deeply into the correlation ...

INFLAMMATION AS THE CAUSE OF SARCOIDOSIS

By JanetGrant · New reply May 12, 2008
Journal · 10 replies
I recently went to see a pain management doctor, because I am in pain. DUH! His recommendation was that I change my antidepressant medication and take a muscle relaxant. I called my psychiatrist and asked ...

SARCOIDOSIS and DEPRESSION

By JanetGrant · New reply May 12, 2008
Journal · 15 replies
I've wanted to write a journal about this topic for so long, but then again, it's just so darn, DEPRESSING! Every time I research or even broach the correlation of Sarcoidosis and Depression, I read the ...

a long wait for help

By hayley · New reply May 6, 2008
Journal · 1 reply
im trying to write something everyday it shows how long it takes to get treatment my parents feel asthough i was born with sarcoid as ive been ill from birth i was lactose intolerent at birth so i had ...

WHEN INSPIRED BY SOMEONE, LET THEM KNOW

By JanetGrant · New reply April 25, 2008
Journal · 6 replies
Every time I write a journal or discussion and someone commends my essay, I feel an incredible sense of pride that maybe I've helped or touched someone. I've read many well written and informative articles ...

New members

Inspire others

Together we're better - Inspire Blood and lymphatic disorders support group

Support your group with badges for your e-mail, website, blog, and more ...

Discussion topics

You

About this group

Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.