Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

You are ALL Heroes!!!

chaplainstevens
  • By chaplainstevens · New reply April 20, 2014
  • Journal · 6 replies
  • “We are hard pressed on every side, yet not crushed; we are perplexed, but not in despair; persecuted, but not forsaken; struck down, but not destroyed… Therefore we do not lose heart. Though outwardly ...

"A wake-up call from a young e-patient: 'I need to be heard'”

John2
  • By John2 · Posted April 15, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 4/15/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog: "A wake-up ...

How About That

la4dreams
  • By la4dreams · New reply April 14, 2014
  • Journal · 5 replies
  • Today may have started off as a not so great day but once again it must be turned into a great day. I got up feeling okay just a little achy so I pushed myself to move and jumped in the shower. Accomplished ...

Watched the Ducks!

chaplainstevens
  • By chaplainstevens · New reply April 14, 2014
  • Journal · 5 replies
  • Yesterday I went to a park and just watched ducks swim and it was like a mini-vacation, I left the hospital and took a 30 minute break from tragedy and sorrow....ducks are cool ...

Losing my personality

beachdog
  • By beachdog · New reply April 10, 2014
  • Journal · 56 replies
  • As I get weaker I don't have the energy to find interest in things so my world is shrinking. I'm doing so many things to keep healthy but the fatigue just won't let me go. When I have a bad few days I ...

Saw Gastro/Hep doctor today

scootergirl44301
  • By scootergirl44301 · New reply April 4, 2014
  • Journal · 6 replies
  • Well I saw me gastro/hep doctor at Cleveland Clinic today. When asked about the staging of my liver disease he admitted that I am currently in a state of mild decompensation and have moved my appointments ...

This is me....

rubylane869
  • By rubylane869 · New reply April 3, 2014
  • Journal · 4 replies
  • I'm glad I found this site. Mostly I was just looking for some support for HES...which I MIGHT have. They haven't figured it out yet. I had gone to the ER in December with stomach pain & when they checked ...

The Inspire Q&A: Inspire talks with Don Dizon, MD

John2
  • By John2 · New reply March 19, 2014
  • Journal · 12 replies
  • The Inspire Q&A: Inspire talks with Don Dizon, MD Dear members, We at Inspire are pleased to bring you the latest in a series of Q&A interviews with people who are making contributions to helping patients ...

Our second annual report with Stanford Medical School

Brian
  • By Brian · Posted March 19, 2014
  • Journal · 0 replies
  • We just finished a brand new special report, “Experts by experience 2014: A compilation of patients’ stories”, in partnership with the Stanford University School of Medicine. It is a 31-page collection ...

Hitting a milestone -- 5,000 photos posted already

John2
  • By John2 · Posted March 18, 2014
  • Journal · 0 replies
  • From: John Novack, communications director, Inspire 3/18/14 Dear members, I'm writing to let you know that in a little more than a month, members here have posted more than 5,000 photos. Congratulations ...

Today I will

la4dreams
  • By la4dreams · New reply March 15, 2014
  • Journal · 21 replies
  • Today, I will walk so as to keep my legs moving. Today, I will eat healthy because I am worth the effort. Today, I will hug my son because I love him. Today, I will pet my Dorkie Yorkie because he loves ...

Sources sought for article about co-insurance to pay for specialty drugs

John2
  • By John2 · Posted March 13, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 3/13/14 Dear members A healthcare journalist with the Associated Press (AP) is seeking more people to interview for an article she is researching on ...

follow-up on SOB

scootergirl44301
  • By scootergirl44301 · New reply February 24, 2014
  • Journal · 6 replies
  • Well after a week I had to finally go to the ER for this and boy did they put me through the wringer. Started out with EKG, chest x-ray, ultrasound of both legs to rule out blood clots, blood work and ...

The Inspire Q&A: Inspire talks with Kathy Nieder, MD

John2
  • By John2 · New reply February 23, 2014
  • Journal · 36 replies
  • The Inspire Q&A: Inspire talks with Kathy Nieder, MD By John Novack, Communications Director, Inspire Dear members, We at Inspire are pleased to bring you the latest in a series of interviews with people ...

Introducing Photos for Inspire

Walter
  • By Walter · New reply February 13, 2014
  • Journal · 180 replies
  • Hello everyone, Today at Inspire we’re excited to announce the launch of a new feature, and it’s one that many of you have requested -- the ability to upload photos to Inspire. You can now add photos ...

My Prayer for the Inspire Family...

chaplainstevens
  • By chaplainstevens · New reply February 12, 2014
  • Journal · 21 replies
  • I pray for each and everyone on Inspire, that your faith would not fail and that the Lord's strength would keep you from giving in to dispair. I pray that 2014 would be a year of fulfilled dreams and ...

"A rare cancer survivor’s journey to thriving and advocating"

John2
  • By John2 · Posted February 12, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 2/12/14 Dear members, I am writing to share with you a new guest column in "Scope," the Stanford University School of Medicine's medical blog, "A rare ...

highest dose of iron supplements

jane_doe
  • By jane_doe · Posted January 27, 2014
  • Discussion in Treatment · 0 replies
  • I suffer from severe anemia. What is the highest dose of iron supplements one can take each day without overdosing. I have iron pills that are 325 Mg ferrous sulfate ...

New infographic: Inspire Rare Disease Health Communities at a Glance

John2
  • By John2 · Posted January 9, 2014
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire 1/9//13 Dear members, I am writing to share with you a new infographic that Inspire published yesterday: Inspire Rare Disease Health Communities at ...

BABOON'S BUTT CAME and WENT....again and again... lol

mybutterfly
  • By mybutterfly · New reply January 8, 2014
  • Journal · 15 replies
  • Hello Dear Friends! ....I have truly missed you all so very much. This past year has been extreme, to say the least! Remember the year before???....my DH was very sick due to infected kidney stones and ...

Log in to see more

Don't have an Inspire account? Sign up now!

Forgot password?

Things you can do

Discussion topics

Community leaders

Inspire others

About this community

Inspire connects patients, families, friends and caregivers for support and inspiration.

Read more about our work