Inspire connects patients, families, friends and caregivers for support and inspiration... More about this group

All new and active discussions & journals

FACTOR 5 V LEIDON BLOOD.

lulupanache
  • By lulupanache · Posted yesterday at 5:49 pm
  • Discussion in Newly diagnosed with a blood disorder · 0 replies
  • l found out l had this disorder when l was dx with BC cancer, it has caused a few problems like l have to take warfarin and not to eat anythink with vitimin K in no granberries, sprouts and some other ...

Somebody PLEASE HELP!!! ={

pwrsrg77
  • By pwrsrg77 · New reply yesterday at 10:54 am
  • Journal · 81 replies
  • Well, I'm now 2 years into a disease that is sucking the life out of me. If I had a nickel for every time I've balled my eyes out & said my famous quote "I can't take this anymore" I'd be a very rich ...

SO excited to share what I have found!

pwrsrg77
  • By pwrsrg77 · New reply November 6, 2009
  • Journal · 15 replies
  • I have received TONS of wonderful support from this amazing community of people just like myself. All that struggle with debilitating symptoms, wrong diagnosis, less than quality doctors etc... I wish ...

Out Damn Spot!

dizzybee
  • By dizzybee · New reply November 4, 2009
  • Journal · 6 replies
  • have been having trigeminal neuralgia (fancy word for pain from Hades) since around Sept. 23 -- been to ER twice one shot of dilaudel and next time a shot of morphine. Finally got an MRI -- i basically ...

my NIH experience

dizzybee
  • By dizzybee · New reply October 29, 2009
  • Journal · 32 replies
  • THIS IS MY EXPERIENCE -- I HAVE TRIED TO LEAVE THE DOCTORS' INVOLVED NAMES OUT SO AS NOT TO CAUSE ISSUES -- AGAIN, THIS IS WHAT HAPPENED TO ME. Well, where to start--nurse took my vitals and some allergy ...

Eosinophilia?

toomanyeos
  • By toomanyeos · Posted October 26, 2009
  • Discussion in Living with a blood disorder · 0 replies
  • I was wondering if anyone here has been diagnosed with Eosinophilia or any of the related syndromes/diseases? I've had this abnormal finding in my lab work for years and have yet to find a doctor who ...

Helping Children When Mom or Dad Has Cancer

bedep
  • By bedep · Posted October 20, 2009
  • Journal · 0 replies
  • HELPING CHILDREN WHEN A PARENT HAS CANCER Webcast Wed, 10/21, 8:00 pm EST Listen live or later: http://bit.ly/4vYgWf Children of all ages face unique challenges when a parent has cancer. Our guests know ...

Coping Strategies - Free Webcast 10/14

bedep
  • By bedep · Posted October 13, 2009
  • Journal · 0 replies
  • This week on Lymphomation Live: MAPPING THE EMOTIONAL JOURNEY (http://bit.ly/4vYgWf or www.lymphomabook.com/LymphomationLive.ht ml) Wednesday October 14, 8 pm (EST) – listen live or later Guest: Dr ...

New - weekly webcasts

bedep
  • By bedep · Posted October 5, 2009
  • Journal · 0 replies
  • I am a 7 year survivor of fNHL and an avid patient advocate. I'm really excited (and a little nervous!) to be hosting a new webcast series. The shows air Wednesday evenings at 8 pm EST, but they're also ...

Tell me.

cjolie
  • By cjolie · New reply October 4, 2009
  • Journal · 15 replies
  • tell me, where did it go, the hopes that i had the belief, that all would be well. when did it get replaced by memories, distant, not quite real, of rainbows and sunlight, stardust glittering on the snow ...

oprah???

cheri72
  • By cheri72 · New reply September 27, 2009
  • Journal · 15 replies
  • It makes me wonder why oprah, after a long time of being bombarded with requests, refuses to do a show on sarc? could it be possible that she herself is suffering from something that she does not want ...

EXHAUSTED FOR MY 10 YR OLD LITTLE GIRL!!!

JCSMOMA15
  • By JCSMOMA15 · Posted September 23, 2009
  • Discussion in Symptoms · 0 replies
  • SOMEONE PLEASE TELL ME IM NOT CRAZY!! HER LEG SWELLED 3 TIMES ITS SIZE AND FROM HIP TO TOE JUST LOOKED BRUISED! SHE HAD HER GALLBLADDER OUT IN MAY! SHE IS IN CONSTANT PAIN IN HER HIPS AND SHOULDERS SHE ...

new to the group

miller123
  • By miller123 · New reply September 6, 2009
  • Journal · 4 replies
  • i am 33yrs old with 2 children recently been diagnosed with livedo and lupas anticoagulant syndrome for the past 2yr ive suffered from chronic fatigue syndrome and depression after the death of my grandad ...

Your Dizzy Laugh of The Day

Unsure
  • By Unsure · New reply August 30, 2009
  • Journal · 21 replies
  • I'm lightheaded allllll the time! Have been for years. I often say that if the cops ever pulled me over, I could never pass the drunk driving test because I'm so dizzy all the time. I remember the first ...

I Let Em' Have It Today! How Dare They?!

Unsure
  • By Unsure · New reply August 21, 2009
  • Journal · 45 replies
  • Anyway, how do you deal with people not really knowing what we deal with and the daily fight that we deal with feeling that they have the right to tell you that you need to fight? I am so sick and tired ...

Guestbooks are now live!

TeamInspire
  • By TeamInspire · New reply August 15, 2009
  • Journal · 6 replies
  • Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...

Scheduled maintenance this evening

TeamInspire
  • By TeamInspire · New reply August 12, 2009
  • Journal · 13 replies
  • All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...

HEAL ME

SANDARD
  • By SANDARD · New reply August 5, 2009
  • Journal · 6 replies
  • Heal me by Sandra Desapin 8-4-09 Dedicated to Jennifer and her family all those suffering: Heal me How can I explain my feeling’s Put yourself into my shoes Standing in a dark place With a mask upon my ...

Too much iron in blood

tennakee
  • By tennakee · Posted July 29, 2009
  • Discussion in Newly diagnosed with a blood disorder · 0 replies
  • I have liver problems before. They tested me and found no hepatitis virus but liver count went from 35 to 881. I was very week and sick for a long time. Dr thinks it was paint poisoning. Now I have too ...

ARE U FREAKIN KIDDING ME

SANDARD
  • By SANDARD · New reply July 29, 2009
  • Journal · 19 replies
  • YOU WILL LOVE THIS 1. CALLED ABOUT BLOOD TEST- THEY MESSED IT UP AND ARE RE DOING 2. TALKED TO DOC SEEMS AREA HE PICKED FOR BIOPSY WASN'T A GOOD ONE- I TOLD HIM THAT WHEN HE WAS CUTTING A CHUNK OUT OF ...

Sign in to see more

Don't have an Inspire account? Join now!

Forgot password?

Inspire others

Group leaders

Discussion topics

You

About this group

Inspire connects patients, families, friends and caregivers for support and inspiration. Read more about our work.