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Welcome to Inspire!

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Active journals

A painful existence

jhewels2
  • By jhewels2 · New reply yesterday at 6:30 pm
  • 8 replies
  • I have chronic pain from several different condition but the main condition is Dercum's Disease type 3 which I have suffered from as a child until now. I am 44 yrs old and it wasn't until I was 42-43 ...

On a positive note

Stuckdh
  • By Stuckdh · New reply November 21, 2009
  • 14 replies
  • Time for bed. Second BCG treatment tomorrow. I am going to sleep visually imagining my immune system eating the bad cells just like the scubbing bubbles commercial. Positive thoughts attract positive ...

Starting a journey

Stuckdh
  • By Stuckdh · New reply November 20, 2009
  • 22 replies
  • It has been 4 weeks since initially diagnosed with bladder cancer. Thursday the results of the biopsy came back and I have high grade CIS cancer of the bladder. That God for kidney stones since that was ...

Bladder Problem

batikbaby
  • By batikbaby · New reply November 17, 2009
  • 16 replies
  • After blood tests, ultra sound, colonoscopy, CAT scan, nothing showed anything unusual. However, I have to pee every 20 minutes and I feel like I have a football in my abdomen. The doctors keep telling ...

Treatments start tomorrow

Stuckdh
  • By Stuckdh · New reply November 17, 2009
  • 22 replies
  • Well tomorrow I start my treatments. I am not sure how I feel overall. There is the feeling of finally moving forward and also that feeling of optimism. I know it will work and be a journey. I also know ...

Tired...

Tagmike
  • By Tagmike · New reply November 14, 2009
  • 5 replies
  • Woke up in a puddle of pee this morning I was admitted to hosp Saturday with a kidney infection. Because I had multiple kidney failures a year ago the Docs wanted to keep me for a few days observation ...

Interstim Day 1 : Treatment for Overactive Bladder Disease

HeatherF
  • By HeatherF · New reply November 10, 2009
  • 5 replies
  • I am not the best blogger, but I was desperate when I found this board and I am hoping that if I document what I am going through, as I go though it, I might help someone else make this huge decision ...

Sharing

Shiz
  • By Shiz · New reply November 7, 2009
  • 23 replies
  • I had a follow up appointment yesterday for my biopsy last month. No sign of cancer, whooo hoooo! BCG resumes December 7. 3 treatments at a lower dose. Another scope /biopsy in 3 months. I asked about ...

Metastatic Urothelial Carcinoma Stage IV

Brendan2109
  • By Brendan2109 · New reply November 6, 2009
  • 1 reply
  • Hi.....I am 31 and have urothelial cancer. I'm just trying to find other people with this form of cancer. I had my first round of gemcitabine and cisplatin chemo yesterday. Today I am having terrible ...

Temporary Interstim

nonniegirl
  • By nonniegirl · Posted November 3, 2009
  • 0 replies
  • I am 42 years old and have been treated for IC for 12 years. My pain is chronic and takes part of my life away from me. It has caused me depression really bad. Today I had my temporary interstim inserted ...

Cyclic Neutropenia

tamlyn
  • By tamlyn · New reply October 19, 2009
  • 13 replies
  • I was recently told I have cyclic neutropenia which they say is the reason I have Crohns disease, Intersistial Cystitis and reocurring polyps after having sinus surgery. I don't know alot about this disorder ...

All clear

Shiz
  • By Shiz · New reply October 14, 2009
  • 11 replies
  • Just got an all clear over the phone. Thank you all for prayers. Only inflammation. Cystitis ...

Another happy weekend

JaneR
  • By JaneR · New reply October 12, 2009
  • 5 replies
  • I was so sick on Friday, Saturday, but the sun shone so brightly (that it was above average for this time of year), the birds were singing and there was a gentle breeze. It felt so good and reminded me ...

This has been a stressful week

fowlair
  • By fowlair · New reply October 10, 2009
  • 14 replies
  • Streesful, but all with ultimately good news. Had my TURBT on Monday, results were TaGI, which is great. Then my unborn granddaughter's sonogram, also on Monday, showed possible problems of edema around ...

Contemplating interstim removal

tam1964
  • By tam1964 · Posted October 9, 2009
  • 0 replies
  • Hi. Am new to this and am unsure what I'm doing. I've had stomach and bowel issues since having the interstim relocated and am wondering if anyone else has had the same results ...

Biopsy Next Week... Nervous

Shiz
  • By Shiz · New reply October 1, 2009
  • 52 replies
  • I was ok until my pre op visit yesterday. I'm going under for the biopsy next week because they "have go a little deeper than last time" So now I'm afraid they are going to puncture a hole in my bladder ...

My happy day journal

JaneR
  • By JaneR · New reply September 9, 2009
  • 20 replies
  • Today the sun was shining and it was nice and warm. No matter the pain and the problems I still made time to help others and ove my family . God is always so good to me and gives me the strength to go ...

Guestbooks are now live!

TeamInspire
  • By TeamInspire · New reply August 15, 2009
  • 6 replies
  • Hello everyone, Last week we mentioned that we'd be adding guestbooks to Inspire in the near future, and they are now live! We're very excited about this feature and hope you enjoy it. To check out your ...

Scheduled maintenance this evening

TeamInspire
  • By TeamInspire · New reply August 12, 2009
  • 13 replies
  • All, Inspire will be performing database updates this evening starting at 8:00 Eastern. We expect the updates to take no more than 2 hours and the site will be unavailable at this time. We thank you for ...

Interstim Day 2

HeatherF
  • By HeatherF · New reply August 10, 2009
  • 10 replies
  • Day two, setting 3 on waking. I voided at bed time - (12:03 am) and again at 5:30 am. So, I only woke to void one time last night. It's certainly not pain free. If I get up and move around much, once ...

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