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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

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Discussions

new to group

diaperjamie
  • By diaperjamie · Posted November 15, 2009
  • In Living with a bladder disease · 4 replies
  • hi everyone i am new to this group,my diaper Jamie and i have been in diapers for almost 20yrs. know,and been to several doctors and they don't have clue what's wrong with me.yes i do take so meds. for ...

Any other men out there on Interstim?

abenaki
  • By abenaki · Posted November 12, 2009
  • In Treatment · 0 replies
  • Hi, I am new to this site but it is just like the site I go on for my back issues. Exactly the same format. Anyway, I have had a lot of issues with bladder function and they are now set to do Interstim ...

Urinary issues related to dry vagina

Uma
  • By Uma · Posted November 7, 2009
  • In Treatment · 7 replies
  • Hi, In response to my inquiry, Inspire suggested that I post to this group. I hope this is the appropriate forum; if not, my apologies. I am a female, age 61. Awhile ago I started having symptoms which ...

Interstim lead revision surgery?

evanandaverysmom
  • By evanandaverysmom · Posted November 6, 2009
  • In Treatment · 1 reply
  • My leads have moved,I fell down the stairs 2wks after surgery and it was not working any longer. Is recovery time/pain level the same the 2nd time around? I took pain pills the first 3 days the first ...

urothelial cancer

RodA
  • By RodA · Posted October 25, 2009
  • In Treatment · 0 replies
  • I have urothelial cancer -- a rare form of bladder cancer. I would like to start a dialog with survivors of urothelial cancer. What was or is your treatment plan? How did you beat this disease ...

Interstim Implant

fadedeagle
  • By fadedeagle · Posted October 19, 2009
  • In Symptoms · 0 replies
  • I wish I could have found this site, before I had the Interstim implant. I had the surgery September 29th, 2009, I can't lay on my back, I can't bend over or sleep on my back. I am in constant pain, my ...

Medtronic Neurostimulator for bladder problems

JaneR
  • By JaneR · Posted August 14, 2009
  • In Treatment · 17 replies
  • Hi everyone, I am new to this site so don't really understand how to use it yet. I have a Medtronic implanted device since 2001 and have been having serious problems for about three years. When things ...

Medtronic neurostimulator for bladder

JaneR
  • By JaneR · Posted August 4, 2009
  • In Symptoms · 4 replies
  • Would like to hear from anyone who has problems with walkings and other leg problems with this device. And or anything else I should know. Thanks all. Jane R ...

Looking for urogynocologist

nn
  • By nn · Posted July 23, 2009
  • In Treatment · 3 replies
  • Hi I got one opinion from a Dr telling me I should try interstem therapy. I would like a 2nd opinion so Im asking if anyone can refer a urogynocologist in the New York area Needless to say Im looking ...

Helpful interstial cystitis web site

ritanl
  • By ritanl · Posted July 19, 2009
  • In Living with a bladder disease · 0 replies
  • Hi all, I was diagnosed with interstitial cystitis after many years and many Drs. over 35 years ago. It is a life disrupting disease and any one who hasn't suffered from it cannot imagine the pain. Thankfully ...

Complete bladder retention.

cleofet
  • By cleofet · Posted July 14, 2009
  • In Living with a bladder disease · 0 replies
  • I am a 57 year old male that has not been able to urinate on my own for 1 1/2 years. I have to catheterize 6 to 7 times a day. The Urologists have said I have a NEUROGENIC bladder and the floor of my ...

Interstitial Cystitis/Painful Bladder Syndrome

Maggiecat
  • By Maggiecat · Posted June 4, 2009
  • In Living with a bladder disease · 7 replies
  • I read on Wikipedia that living with IC pain is like living in cancer pain and that my quality of life is the same as someone in end stage renal failure. What a ray of sunshine! But I actually thought ...

Employment Discrimination

Maggiecat
  • By Maggiecat · Posted May 26, 2009
  • In Living with a bladder disease · 0 replies
  • Hi, I work with the meanest bunch of social workers in a small office in Brooklyn. I seem to be having a problem staying awake at work. You can't eat anything on the IC diet. Anyway, it happened twice ...

Interstim

kjoywilson
  • By kjoywilson · Posted May 19, 2009
  • In Treatment · 10 replies
  • I am getting the first phase of the Interstim implant tomorrow. I just found this website and scanned some of the posts regarding negative experiences with the implant. I am 33 and have urinary frequency ...

creatinine

Roadpilot
  • By Roadpilot · Posted May 10, 2009
  • In Living with a bladder disease · 2 replies
  • I am now 16 months post op for RC I have a neo bladder, My blood test shows my creatinines are 1.6, high normal is 1.2 have any others had this issue, All is great eccept this issue. Don ...

Interstim Implant - should I get it?

wallysparks39
  • By wallysparks39 · Posted April 18, 2009
  • In Treatment · 42 replies
  • I posted this earlier as a reply tro Anne5762 posted on Dec29 08. I guess if I want an answer, I should start a new discussion, so here it is again. I’m in the test stage now; the leads were inserted ...

please help

roni72
  • By roni72 · Posted February 22, 2009
  • In Living with a bladder disease · 3 replies
  • I 've been diagonosed with IC and would like to know what people are eating to help with the flare ups ...

interstitial Cystitis & Calcium supplements

pattibee
  • By pattibee · Posted February 3, 2009
  • In Living with a bladder disease · 0 replies
  • Hi, I have IC (currently in remission, THANK GOD!) and have recently been diagnosed with osteopenia. The doctor said to take 1500 mg of Calcium and 400 mg of Vitamin D daily along with Fosamax which I ...

Interstitial Cystitis

Dawn54
  • By Dawn54 · Posted January 7, 2009
  • In Living with a bladder disease · 14 replies
  • Hello-I have interstitial cystitis and IBS. I'm looking for others that have these. Thank you, Frances ...

Interstitial Cystitis and OAB

Dawn54
  • By Dawn54 · Posted January 4, 2009
  • In Diseases · 3 replies
  • I have interstitial cystitis and i'm looking for others that have IC ...

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