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IMPORTANCE OF REGISTERING WITH MEDICALERT

cajunqueen318
  • By cajunqueen318 · New reply 8:56 am
  • Journal · 1 reply
  • Friends, Just wanted to pass along some information that I feel will be beneficial to all patients with the interstim. I was hit last Wednesday by an l8 wheeler that did considerable damage to my vehicle ...

Worried about getting interstim implant

cppalmer
  • By cppalmer · New reply 8:00 am
  • Journal · 3 replies
  • Hi everyone,new to site. Im 48yrs. Old female,i have been cathing for 18yrs. My bladder does not empty. I am going to have the interstim implant, phase 1, on may 28. Wondering if anybody with the same ...

New column: “'Live Because:' Living a fuller life with chronic illness"

John2
  • By John2 · Posted yesterday at 3:26 pm
  • Journal · 0 replies
  • From: John Novack, Communications Director, Inspire Dear members, I'm writing to share with you a new column on the Stanford University School of Medicine "Scope" blog, titled, “'Live Because:' Living ...

marshmallow root

Skinny
  • By Skinny · New reply May 19, 2013
  • Discussion in Living with a bladder disease · 1 reply
  • Has anyone else tried this? It resembles wood chips. I soak it in water with some crumbled cinnamon stick for 24 hrs and drink it night and morning. It is supposed to help bladder (reduce infections ...

Five million

Brian
  • By Brian · New reply May 18, 2013
  • Journal · 205 replies
  • Dear members, Yesterday, Inspire reached a milestone: five million posts written by members! Each of these posts, and the 700 million words they contain, are a simple measure of how much we all do to ...

Botox Injections

kittyedo
  • By kittyedo · New reply May 18, 2013
  • Discussion in Living with a bladder disease · 14 replies
  • I was wondering if anyone here has had Botox injections? My doctor thinks this might work for me but I wanted to see if anyone has had success doing this ...

Interstitial cystitis

Vicmeister
  • By Vicmeister · New reply May 17, 2013
  • Discussion in Living with a bladder disease · 11 replies
  • I have Interstitial Cystitis (IC) - I take the medication Elmiron and also a medication to help with bladder urgency. I am curious about other individuals who have this condition. I have read that exercise ...

How to avodi bladder cancer

poston8
  • By poston8 · New reply May 16, 2013
  • Journal · 16 replies
  • Read this article. http://www.drugs.com/news/study-claims-m arijuana-tied-lower-bladder-cancer-risk- 44508.html Very interesting but I doubt the people who run this web site will allow the posting. Too ...

Question to fellow people with the interstim

Grvygirl20
  • By Grvygirl20 · New reply May 15, 2013
  • Journal · 6 replies
  • I have the interstim also. I got mine put in December of last year. I have a problem with leakage. I have changed the levels and everything on my interstim, and I am still leaking. My urologist suggest ...

Hi

sheezlala
  • By sheezlala · New reply May 14, 2013
  • Discussion in Symptoms · 2 replies
  • Does interstim make anyone feel shaky and like they are climbing out of their skin ...

New Patient

brenazul
  • By brenazul · New reply May 11, 2013
  • Journal · 3 replies
  • I have an appointment scheduled for the interstem therapy. I am now thinking twice, as I am very thin and already have back problems. I am feeling fearful of having this done. What is the alternative ...

Update: Not an allergy...but the shingles virus instead!

HopeR
  • By HopeR · New reply May 11, 2013
  • Discussion in Treatment · 5 replies
  • Hi Everyone, Back in January, I had to have my Interstim removed and the leads capped off and buried because my body was rejecting the implant. At the time we all thought it was due to an allergy to the ...

Bladder augmentation

msm8358
  • By msm8358 · New reply May 9, 2013
  • Discussion in Living with a bladder disease · 1 reply
  • Have anyone had a successful bladder augmentation? I have a neurogenic bladder as as result of a botched suspension 7 years ago. I cath every hour or so to try to relieve spasms. Dr. Told me augment would ...

Interstim for urinary retention

badbladder
  • By badbladder · New reply May 9, 2013
  • Discussion in Treatment · 4 replies
  • I had Interstim Stage 1 (permanent lead with external stimulator) placed on March 22 for a 2 week trial. No improvement at all for my urinary retention after 10+ days. My PA and Medtronic rep are encouraging ...

I write today with bittersweet feelings....

MomsDaughter_NC
  • By MomsDaughter_NC · New reply May 8, 2013
  • Journal · 15 replies
  • It's been a while since I've written in my journal here. I always promised myself that regardless of the outcome of mom's condition, I would always look back and remember the kind people that helped me ...

Questions

msm8358
  • By msm8358 · New reply May 5, 2013
  • Discussion in Symptoms · 7 replies
  • I haven't posted anything for a long time, but I still read posts regularly. Lately I've been having a lot of pain cathing (I have to cath 10+ times a day). It feels like I'm not getting all the urine ...

Interstim

Bizzy123
  • By Bizzy123 · New reply May 5, 2013
  • Discussion in Treatment · 122 replies
  • Hi all, I just joined. I've had IC since early January. We don't know how long I've had it but my symptoms started end of December. I have no pain, just frequency and horrible urgency. I've already missed ...

acupuncture? interstim?

smay56
  • By smay56 · New reply May 5, 2013
  • Discussion in Living with a bladder disease · 1 reply
  • In Dec of 2012 I had rectal and vaginal prolapse surgery using the mesh. My body immediately started rejecting it with high fever and intense bleeding. The dr did not remove it but instead treated my ...

A new Inspire report in collaboration with Stanford Medical School

Brian
  • By Brian · New reply May 5, 2013
  • Journal · 84 replies
  • As many of you know, Inspire has a professional collaboration with the Stanford University School of Medicine. Inspire members have written personal stories for the Stanford Scope column. I am pleased ...

Bladder retention / neurogenic bladder

TheresaM1
  • By TheresaM1 · New reply April 30, 2013
  • Discussion in Treatment · 38 replies
  • Hi. I am a 44 year old woman with bladder retention since colorectal surgery in late October. I would like to find other women who self catheterize for support and to chat with ...

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