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A painful existence
- By jhewels2 · New reply 5:52 pm
- Journal · 3 replies
- I have chronic pain from several different condition but the main condition is Dercum's Disease type 3 which I have suffered from as a child until now. I am 44 yrs old and it wasn't until I was 42-43 ...
Interstitial Cystitis/Painful Bladder Syndrome
- By Maggiecat · New reply 3:48 pm
- Discussion in Living with a bladder disease · 7 replies
- I read on Wikipedia that living with IC pain is like living in cancer pain and that my quality of life is the same as someone in end stage renal failure. What a ray of sunshine! But I actually thought ...
new to group
- By diaperjamie · New reply 3:21 pm
- Discussion in Living with a bladder disease · 4 replies
- hi everyone i am new to this group,my diaper Jamie and i have been in diapers for almost 20yrs. know,and been to several doctors and they don't have clue what's wrong with me.yes i do take so meds. for ...
On a positive note
- By Stuckdh · New reply yesterday at 1:09 pm
- Journal · 14 replies
- Time for bed. Second BCG treatment tomorrow. I am going to sleep visually imagining my immune system eating the bad cells just like the scubbing bubbles commercial. Positive thoughts attract positive ...
Starting a journey
- By Stuckdh · New reply November 20, 2009
- Journal · 22 replies
- It has been 4 weeks since initially diagnosed with bladder cancer. Thursday the results of the biopsy came back and I have high grade CIS cancer of the bladder. That God for kidney stones since that was ...
Interstim lead revision surgery?
- By evanandaverysmom · New reply November 20, 2009
- Discussion in Treatment · 1 reply
- My leads have moved,I fell down the stairs 2wks after surgery and it was not working any longer. Is recovery time/pain level the same the 2nd time around? I took pain pills the first 3 days the first ...
Bladder Problem
- By batikbaby · New reply November 17, 2009
- Journal · 16 replies
- After blood tests, ultra sound, colonoscopy, CAT scan, nothing showed anything unusual. However, I have to pee every 20 minutes and I feel like I have a football in my abdomen. The doctors keep telling ...
Treatments start tomorrow
- By Stuckdh · New reply November 17, 2009
- Journal · 22 replies
- Well tomorrow I start my treatments. I am not sure how I feel overall. There is the feeling of finally moving forward and also that feeling of optimism. I know it will work and be a journey. I also know ...
Interstim Implant - should I get it?
- By wallysparks39 · New reply November 16, 2009
- Discussion in Treatment · 42 replies
- I posted this earlier as a reply tro Anne5762 posted on Dec29 08. I guess if I want an answer, I should start a new discussion, so here it is again. I’m in the test stage now; the leads were inserted ...
Tired...
- By Tagmike · New reply November 14, 2009
- Journal · 5 replies
- Woke up in a puddle of pee this morning I was admitted to hosp Saturday with a kidney infection. Because I had multiple kidney failures a year ago the Docs wanted to keep me for a few days observation ...
Urinary issues related to dry vagina
Any other men out there on Interstim?
Interstim Day 1 : Treatment for Overactive Bladder Disease
- By HeatherF · New reply November 10, 2009
- Journal · 5 replies
- I am not the best blogger, but I was desperate when I found this board and I am hoping that if I document what I am going through, as I go though it, I might help someone else make this huge decision ...
Sharing
- By Shiz · New reply November 7, 2009
- Journal · 23 replies
- I had a follow up appointment yesterday for my biopsy last month. No sign of cancer, whooo hoooo! BCG resumes December 7. 3 treatments at a lower dose. Another scope /biopsy in 3 months. I asked about ...
Metastatic Urothelial Carcinoma Stage IV
- By Brendan2109 · New reply November 6, 2009
- Journal · 1 reply
- Hi.....I am 31 and have urothelial cancer. I'm just trying to find other people with this form of cancer. I had my first round of gemcitabine and cisplatin chemo yesterday. Today I am having terrible ...
INTERSTIM IMPLANT
Temporary Interstim
- By nonniegirl · Posted November 3, 2009
- Journal · 0 replies
- I am 42 years old and have been treated for IC for 12 years. My pain is chronic and takes part of my life away from me. It has caused me depression really bad. Today I had my temporary interstim inserted ...
urothelial cancer
Cyclic Neutropenia
- By tamlyn · New reply October 19, 2009
- Journal · 13 replies
- I was recently told I have cyclic neutropenia which they say is the reason I have Crohns disease, Intersistial Cystitis and reocurring polyps after having sinus surgery. I don't know alot about this disorder ...
Interstim Implant
- By fadedeagle · Posted October 19, 2009
- Discussion in Symptoms · 0 replies
- I wish I could have found this site, before I had the Interstim implant. I had the surgery September 29th, 2009, I can't lay on my back, I can't bend over or sleep on my back. I am in constant pain, my ...
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