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Starting a journey

Stuckdh
  • By Stuckdh · New reply 5:50 pm
  • Journal · 6 replies
  • It has been 4 weeks since initially diagnosed with bladder cancer. Thursday the results of the biopsy came back and I have high grade CIS cancer of the bladder. That God for kidney stones since that was ...

Urinary issues related to dry vagina

Uma
  • By Uma · New reply 4:46 am
  • Discussion in Treatment · 1 reply
  • Hi, In response to my inquiry, Inspire suggested that I post to this group. I hope this is the appropriate forum; if not, my apologies. I am a female, age 61. Awhile ago I started having symptoms which ...

Sharing

Shiz
  • By Shiz · New reply yesterday at 12:21 am
  • Journal · 23 replies
  • I had a follow up appointment yesterday for my biopsy last month. No sign of cancer, whooo hoooo! BCG resumes December 7. 3 treatments at a lower dose. Another scope /biopsy in 3 months. I asked about ...

Interstim lead revision surgery?

evanandaverysmom
  • By evanandaverysmom · Posted November 6, 2009
  • Discussion in Treatment · 0 replies
  • My leads have moved,I fell down the stairs 2wks after surgery and it was not working any longer. Is recovery time/pain level the same the 2nd time around? I took pain pills the first 3 days the first ...

Metastatic Urothelial Carcinoma Stage IV

Brendan2109
  • By Brendan2109 · New reply November 6, 2009
  • Journal · 1 reply
  • Hi.....I am 31 and have urothelial cancer. I'm just trying to find other people with this form of cancer. I had my first round of gemcitabine and cisplatin chemo yesterday. Today I am having terrible ...

Interstitial Cystitis/Painful Bladder Syndrome

Maggiecat
  • By Maggiecat · New reply November 6, 2009
  • Discussion in Living with a bladder disease · 5 replies
  • I read on Wikipedia that living with IC pain is like living in cancer pain and that my quality of life is the same as someone in end stage renal failure. What a ray of sunshine! But I actually thought ...

INTERSTIM IMPLANT

Dawn54
  • By Dawn54 · New reply November 6, 2009
  • Discussion in Treatment · 29 replies
  • I am getting the Interstim implant on January 8th and I would like to find out if anyone has it and how long was it before you could feel it was working? How long was recovery? Frances ...

Temporary Interstim

nonniegirl
  • By nonniegirl · Posted November 3, 2009
  • Journal · 0 replies
  • I am 42 years old and have been treated for IC for 12 years. My pain is chronic and takes part of my life away from me. It has caused me depression really bad. Today I had my temporary interstim inserted ...

Interstim Day 1 : Treatment for Overactive Bladder Disease

HeatherF
  • By HeatherF · New reply October 31, 2009
  • Journal · 4 replies
  • I am not the best blogger, but I was desperate when I found this board and I am hoping that if I document what I am going through, as I go though it, I might help someone else make this huge decision ...

Bladder Problem

batikbaby
  • By batikbaby · New reply October 27, 2009
  • Journal · 14 replies
  • After blood tests, ultra sound, colonoscopy, CAT scan, nothing showed anything unusual. However, I have to pee every 20 minutes and I feel like I have a football in my abdomen. The doctors keep telling ...

urothelial cancer

RodA
  • By RodA · Posted October 25, 2009
  • Discussion in Treatment · 0 replies
  • I have urothelial cancer -- a rare form of bladder cancer. I would like to start a dialog with survivors of urothelial cancer. What was or is your treatment plan? How did you beat this disease ...

Cyclic Neutropenia

tamlyn
  • By tamlyn · New reply October 19, 2009
  • Journal · 13 replies
  • I was recently told I have cyclic neutropenia which they say is the reason I have Crohns disease, Intersistial Cystitis and reocurring polyps after having sinus surgery. I don't know alot about this disorder ...

Interstim Implant

fadedeagle
  • By fadedeagle · Posted October 19, 2009
  • Discussion in Symptoms · 0 replies
  • I wish I could have found this site, before I had the Interstim implant. I had the surgery September 29th, 2009, I can't lay on my back, I can't bend over or sleep on my back. I am in constant pain, my ...

All clear

Shiz
  • By Shiz · New reply October 14, 2009
  • Journal · 11 replies
  • Just got an all clear over the phone. Thank you all for prayers. Only inflammation. Cystitis ...

Another happy weekend

JaneR
  • By JaneR · New reply October 12, 2009
  • Journal · 5 replies
  • I was so sick on Friday, Saturday, but the sun shone so brightly (that it was above average for this time of year), the birds were singing and there was a gentle breeze. It felt so good and reminded me ...

This has been a stressful week

fowlair
  • By fowlair · New reply October 10, 2009
  • Journal · 14 replies
  • Streesful, but all with ultimately good news. Had my TURBT on Monday, results were TaGI, which is great. Then my unborn granddaughter's sonogram, also on Monday, showed possible problems of edema around ...

Contemplating interstim removal

tam1964
  • By tam1964 · Posted October 9, 2009
  • Journal · 0 replies
  • Hi. Am new to this and am unsure what I'm doing. I've had stomach and bowel issues since having the interstim relocated and am wondering if anyone else has had the same results ...

Interstim Implant - should I get it?

wallysparks39
  • By wallysparks39 · New reply October 2, 2009
  • Discussion in Treatment · 41 replies
  • I posted this earlier as a reply tro Anne5762 posted on Dec29 08. I guess if I want an answer, I should start a new discussion, so here it is again. I’m in the test stage now; the leads were inserted ...

Biopsy Next Week... Nervous

Shiz
  • By Shiz · New reply October 1, 2009
  • Journal · 52 replies
  • I was ok until my pre op visit yesterday. I'm going under for the biopsy next week because they "have go a little deeper than last time" So now I'm afraid they are going to puncture a hole in my bladder ...

Medtronic Neurostimulator for bladder problems

JaneR
  • By JaneR · New reply September 29, 2009
  • Discussion in Treatment · 17 replies
  • Hi everyone, I am new to this site so don't really understand how to use it yet. I have a Medtronic implanted device since 2001 and have been having serious problems for about three years. When things ...

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