Welcome to Inspire!
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Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
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Navigating the available treatment options.
- By honcho2 · New reply 1:59 pm
- 9 replies
- I was relesed yesterday after my RC and heading home today. Hard week but all went well. Visually all looked good ,still waiting for the pathalogy ...
- By lilbit37 · New reply November 4, 2009
- 28 replies
- Hello, I had bladder cancer at age 2 and underwent a procedure in 1980 where my ureters were re-routed into my colon. It is now known that this causes cancer. I had some pre-cancerous polyps and it was ...
- By SilverGrizzly · New reply November 4, 2009
- 6 replies
- This new drug is in phase three clinical trials. Does anyone know anything more about it? Here is some information but it doesn't say a lot about how it works, etc. A search on BCAN didn't produce much ...
- By R2D2 · Posted November 1, 2009
- 0 replies
- Many thanks to Claire for responding to my previous post on Suntent (Sunitinib) and giving some good websites. Suntent also has their own website with a lot of interesting information members might want ...
- By R2D2 · New reply October 30, 2009
- 8 replies
- There is a drug being used for Kidney cancer that apparently is also being somewhat effective on bladder cancer called SUTENT or SUNITITIB. There is a lot of information online about this drug and I was ...
- By Jemuna · New reply October 29, 2009
- 15 replies
- Okay, so now what? I have only posted a couple of times here but do read and gain strength just about every day from all of you on this site. Dennis had bcg, chemo and then r.c. in March with 21 lymph ...
- By softvelvet · New reply October 29, 2009
- 7 replies
- I had a abd hysterectomy in 2008 of march and aquired mrsa in incesion. I was very sick I went back to my doctor after 10 days from being released from the hospital. I had a very swollen red sore incision ...
- By newyorknewcomer · New reply October 28, 2009
- 7 replies
- I was just diagnosed with what they call superficial bladder cancer. I was wondering what other people have chosen as a follow up treatment after surgery ...
- By Ardy · New reply October 27, 2009
- 14 replies
- I have a neobladder and I am having to cath at least 4 or 5 times a day. My problem is getting them washed. I have been washing in antibacterial soap, rinising and hanging to dry. I am having a hard time ...
- By Tobe · New reply October 27, 2009
- 3 replies
- Here's an article re new study done at University of Virginia we found interesting and wanted to share for those who haven't seen it. Va. researchers develop breakthrough that could eliminate trial-and-error ...
- By Markdb0 · New reply October 25, 2009
- 9 replies
- Anyone else have bad reaction to Mitomycin? Male, age 43, Mitomycin give 09-10-09 direct into bladder. Extreme burning Pain urination, Blood in the urine, Blood Clots, Sluthing, Pain from the bladder ...
- By RickB · New reply October 20, 2009
- 11 replies
- I have posted this a couple of times in response to specific questions by members, but someone recommended that I post it on its own. Doing so will hopefully make it easier to find and will also trigger ...
- By honcho2 · New reply October 19, 2009
- 18 replies
- I met Dr Alan So yesterday and we discussed my treatment and prognosis. I will have a radical cysectomy and have a neo bladder. He said my prognosis was good and spent a lot of time trying to prepare ...
- By esposa · New reply October 19, 2009
- 27 replies
- Hello whoever is "listening," Background: My husband as superficial bladder cancer : he was diagnosed 2 years ago with multiple tumors and underwent 6 week BCG treatment following TUR. Within 6 months ...
- By elizsar · New reply October 19, 2009
- 7 replies
- I read recently that there have been some studies that suggest regular use of NSAIDS (especially aspirin) and Lactobacillus casei have helped in preventing the recurrence of bladder cancer. Has anyone ...
- By R2D2 · New reply October 16, 2009
- 1 reply
- "Kewlbob1" posted an entry on August 1, 2009 indicating "No Radical Surgery for Me" and was going to get Hyperthermic treatments and IMRT (Radiation) at the Valley Cancer Institute in Culver City, California ...
- By david123 · New reply October 15, 2009
- 5 replies
- Has anyone heard of or got info on Frankincense Oil treatment for bladder cancer---University of Oklahoma Health Sciences research and trial ...
- By nancynursez637 · New reply October 9, 2009
- 13 replies
- Some information on flu treatment.................... What is the difference between Bird Flu and Swine Flu? See below For bird flu you need tweetment and for swine flu you need oinkment. (sorry could ...
- By JoanneWhitney · New reply October 8, 2009
- 6 replies
- I was advised to start a new discussion since my first communication was buried in an old discussion of what type of bladder diversion to choose. I catheterized myself for 2 years before I learned that ...
- By birdnerd · New reply October 6, 2009
- 4 replies
- My father is in the process of receiving his R/C(as I write!) Assuming they find evidence of small cells remaining in his system, either in surrounding tissue or lymph, can anyone who has had a similar ...