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Welcome to Inspire!

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Treatment choices

Navigating the available treatment options.

heading home

honcho2
  • By honcho2 · New reply 1:59 pm
  • 9 replies
  • I was relesed yesterday after my RC and heading home today. Hard week but all went well. Visually all looked good ,still waiting for the pathalogy ...

Indiana Pouch

lilbit37
  • By lilbit37 · New reply November 4, 2009
  • 28 replies
  • Hello, I had bladder cancer at age 2 and underwent a procedure in 1980 where my ureters were re-routed into my colon. It is now known that this causes cancer. I had some pre-cancerous polyps and it was ...

Less toxic than BCG: Urocidin?

SilverGrizzly
  • By SilverGrizzly · New reply November 4, 2009
  • 6 replies
  • This new drug is in phase three clinical trials. Does anyone know anything more about it? Here is some information but it doesn't say a lot about how it works, etc. A search on BCAN didn't produce much ...

Update on Suntent (Sunitinib)

R2D2
  • By R2D2 · Posted November 1, 2009
  • 0 replies
  • Many thanks to Claire for responding to my previous post on Suntent (Sunitinib) and giving some good websites. Suntent also has their own website with a lot of interesting information members might want ...

Sutent (Sunitinib) used for BC

R2D2
  • By R2D2 · New reply October 30, 2009
  • 8 replies
  • There is a drug being used for Kidney cancer that apparently is also being somewhat effective on bladder cancer called SUTENT or SUNITITIB. There is a lot of information online about this drug and I was ...

Lymph node biopsies--positive

Jemuna
  • By Jemuna · New reply October 29, 2009
  • 15 replies
  • Okay, so now what? I have only posted a couple of times here but do read and gain strength just about every day from all of you on this site. Dennis had bcg, chemo and then r.c. in March with 21 lymph ...

mrsa hospital aquired post surgical abd hysterectomy

softvelvet
  • By softvelvet · New reply October 29, 2009
  • 7 replies
  • I had a abd hysterectomy in 2008 of march and aquired mrsa in incesion. I was very sick I went back to my doctor after 10 days from being released from the hospital. I had a very swollen red sore incision ...

need info

newyorknewcomer
  • By newyorknewcomer · New reply October 28, 2009
  • 7 replies
  • I was just diagnosed with what they call superficial bladder cancer. I was wondering what other people have chosen as a follow up treatment after surgery ...

washing catheters

Ardy
  • By Ardy · New reply October 27, 2009
  • 14 replies
  • I have a neobladder and I am having to cath at least 4 or 5 times a day. My problem is getting them washed. I have been washing in antibacterial soap, rinising and hanging to dry. I am having a hard time ...

Link to an article re breakthrough in approach to cancer treatment

Tobe
  • By Tobe · New reply October 27, 2009
  • 3 replies
  • Here's an article re new study done at University of Virginia we found interesting and wanted to share for those who haven't seen it. Va. researchers develop breakthrough that could eliminate trial-and-error ...

Mitomycin Side effects very bad

Markdb0
  • By Markdb0 · New reply October 25, 2009
  • 9 replies
  • Anyone else have bad reaction to Mitomycin? Male, age 43, Mitomycin give 09-10-09 direct into bladder. Extreme burning Pain urination, Blood in the urine, Blood Clots, Sluthing, Pain from the bladder ...

Neobladder versus Ileal Conduit/Indiana Pouch

RickB
  • By RickB · New reply October 20, 2009
  • 11 replies
  • I have posted this a couple of times in response to specific questions by members, but someone recommended that I post it on its own. Doing so will hopefully make it easier to find and will also trigger ...

Met my surgeon yesterday

honcho2
  • By honcho2 · New reply October 19, 2009
  • 18 replies
  • I met Dr Alan So yesterday and we discussed my treatment and prognosis. I will have a radical cysectomy and have a neo bladder. He said my prognosis was good and spent a lot of time trying to prepare ...

sequential BCG + MMC

esposa
  • By esposa · New reply October 19, 2009
  • 27 replies
  • Hello whoever is "listening," Background: My husband as superficial bladder cancer : he was diagnosed 2 years ago with multiple tumors and underwent 6 week BCG treatment following TUR. Within 6 months ...

nsaids and probiotics

elizsar
  • By elizsar · New reply October 19, 2009
  • 7 replies
  • I read recently that there have been some studies that suggest regular use of NSAIDS (especially aspirin) and Lactobacillus casei have helped in preventing the recurrence of bladder cancer. Has anyone ...

Alternative treatment

R2D2
  • By R2D2 · New reply October 16, 2009
  • 1 reply
  • "Kewlbob1" posted an entry on August 1, 2009 indicating "No Radical Surgery for Me" and was going to get Hyperthermic treatments and IMRT (Radiation) at the Valley Cancer Institute in Culver City, California ...

Bladder cancer tretment alternatives

david123
  • By david123 · New reply October 15, 2009
  • 5 replies
  • Has anyone heard of or got info on Frankincense Oil treatment for bladder cancer---University of Oklahoma Health Sciences research and trial ...

Swine and Bird flu

nancynursez637
  • By nancynursez637 · New reply October 9, 2009
  • 13 replies
  • Some information on flu treatment.................... What is the difference between Bird Flu and Swine Flu? See below For bird flu you need tweetment and for swine flu you need oinkment. (sorry could ...

General Information re indwelling catheter

JoanneWhitney
  • By JoanneWhitney · New reply October 8, 2009
  • 6 replies
  • I was advised to start a new discussion since my first communication was buried in an old discussion of what type of bladder diversion to choose. I catheterized myself for 2 years before I learned that ...

Recomm. chemo for post-R/C small cell

birdnerd
  • By birdnerd · New reply October 6, 2009
  • 4 replies
  • My father is in the process of receiving his R/C(as I write!) Assuming they find evidence of small cells remaining in his system, either in surrounding tissue or lymph, can anyone who has had a similar ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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