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Taking charge: How to be a proactive patient

Tips and suggestions for dealing with medical professionals and managing your illness and overall health.

Famous Survivor - Cardinal George, Chicago

BJsHere
  • By BJsHere · New reply October 1, 2009
  • 9 replies
  • I have been in contact with Cardinal George by phone regarding the Bladder Cancer Symposium Oct 10th. Unfortunately he will be in Rome. He sent me a letter of regrets to read to the participants. I will ...

Finaly getting second opinion

DrgnTrappr
  • By DrgnTrappr · New reply September 30, 2009
  • 17 replies
  • Hi Everyone Just got home from vanderbilt Cancer Center in Nashville Tn. after having a consultation with one of the Urologist's there. I had started to question the care I have been receiving after reading ...

2 weeks to RC, how should I prepare

jc3126
  • By jc3126 · New reply September 30, 2009
  • 12 replies
  • I have RC scheduled for 10-12-09.... any thoughts on getting ready? I live full time in my motor home, I have been traveling part time, and stay on 2 1/2 acres outside of a small town for the rest of ...

New Bladder Support Group in MIlwaukee

BCAN_Staff
  • By BCAN_Staff · New reply September 30, 2009
  • 6 replies
  • A new monthly support group to educate and support bladder cancer patients and families is starting in Milwaukee, WI. The group which is sponsored by The Froedtert Hospital and The Medical College of ...

awareness efforts

jj803
  • By jj803 · New reply September 29, 2009
  • 6 replies
  • Hi all, just noticed this announcement for a bc awareness event in NYC area (long island I think). Oceanside Walk for Bladder Cancer: Walk for the early detection of bladder cancer, benefits the Memorial ...

Any wisdom for me?

PattyL
  • By PattyL · New reply September 24, 2009
  • 11 replies
  • Sorry I haven't been on much..... I'm thrilled to be back at work, but work, crashing on the couch to rest and a needed 10 hours of sleep are all I can handle these days. Then the chemo every other weekend ...

Magnesium and Potassium Deficencies

Ciboney1
  • By Ciboney1 · New reply September 8, 2009
  • 11 replies
  • Has anyone else suffered from Magnesium and/or potassium deficiencies? Wondering if there is a correlation between these deficiencies and Bladder Cancer or other Cancers??? For several years, I have had ...

good overview of bladder ca-diag,tmt,follow up

jj803
  • By jj803 · New reply September 7, 2009
  • 11 replies
  • just ran across a good overview of bladder cancer treatment, diagnosis, follow up and prognosis. as we have discovered the follow up protocol for those with cystectomies is much more variable than implied ...

I'm confused. How long before surgery........

cat22
  • By cat22 · New reply September 5, 2009
  • 4 replies
  • How much in advance does the "bowel prep" start??? Seems, from what I have read, that it is WELL in advance of the surgery date. Thx Cathy ...

MD Anderson on Curcumin

cat22
  • By cat22 · New reply September 4, 2009
  • 16 replies
  • Today there is an MD Anderson article on UroToday website regarding curcumin: http://www.urotoday.com/index.php?option =com_content&task=view_ua&id=2224212 cathy ...

I am celebrating today

LadyJane123
  • By LadyJane123 · New reply September 4, 2009
  • 33 replies
  • Seven years ago this morning I quit smoking. YAY for me ( gotta pat myself on the back for that accomplishment) :-) I have a meter running on my computer from the first morning I quit, Sept. 2. 2002 ...

Individualized long term follow up plans for cancer patients

nancynursez637
  • By nancynursez637 · New reply September 2, 2009
  • 6 replies
  • http://www.mdanderson.org/patient-and-ca ncer-information/cancer-information/canc er-topics/survivorship/followup-care/ind ex.html This is sort of generic and does not address a specific follow up for ...

Bladder cancer resources

nancynursez637
  • By nancynursez637 · New reply September 2, 2009
  • 5 replies
  • http://www.cancer.gov/cancertopics/pdq/t reatment/bladder/Patient National cancer institute's web site on bladder cancer is pretty good for general understanding of what we are facing ...

What medical records do I need to keep?

mkates1114
  • By mkates1114 · New reply August 31, 2009
  • 17 replies
  • I asked my at my urologists office to get a copy of my records and she looked at me blankly. I explained that it was recommended that I keep a personal copy of my medical records and she said OK. Then ...

Randyb42

Tagmike
  • By Tagmike · New reply August 31, 2009
  • 1 reply
  • Randy thanks for reminding us of your upcoming surgery. Good luck and stay in touch ...

Today is the day for our very own Jack Moon ( moonerj)

LadyJane123
  • By LadyJane123 · New reply August 31, 2009
  • 20 replies
  • Jack will be participating in the Underwear Affair in Toronto. He will be walking 5K and raising awareness of bladder cancer. Here is a link to the event; http://to09.uncoverthecure.org/site/Page Server?pagename=to09_homepage ...

Two Great Books On Using Nutrition to Fight Cancer

vtom
  • By vtom · New reply August 31, 2009
  • 11 replies
  • 14 year survivor suggested I post this information as a new discussion topic - here it goes . . . Last year at CostCo - I picked up a book called "Anticancer - A New Way of Life" written by David Servan-Schreiber ...

FISH Test

spaisley39
  • By spaisley39 · New reply August 28, 2009
  • 18 replies
  • Good Morning, On one hand I hate to post this because I know not everyone here is quite so lucky but I just got a call from the Uro/Oncologist about the FISH test I had done two weeks ago. NO CELLS ...

Best Buds

Tag
  • By Tag · New reply August 25, 2009
  • 19 replies
  • By bestbuds28 Posted today at 1:05 pm Report post I have not been online with Team Inspire for awhile, just getting back on today. I have to say I'm very upset with what I'm reading today. My husband ...

Another excellent new anti-cancer book

SilverGrizzly
  • By SilverGrizzly · New reply August 24, 2009
  • 5 replies
  • I agree that "Anti-Cancer: A New Way of Life" is a fantastic book. I got it after I came down with breast cancer a year ago. Another brand new book that is also great is "Life Over Cancer" by Keith L ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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