Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Taking charge: How to be a proactive patient

Tips and suggestions for dealing with medical professionals and managing your illness and overall health.

The Incidence of Smoking-related Bladder Cancer May Be Increasing

Ciboney1
  • By Ciboney1 · New reply 12:52 pm
  • 7 replies
  • Article on Smoking and relationship to Bladder Cancer. Smokers may have interest in this article from "Caring for Cancer" Web Site.. http://www.caring4cancer.com/go/cancer/n ews?NewsItemId=44306 Arlene ...

clinical trial matching

jj803
  • By jj803 · New reply November 17, 2009
  • 4 replies
  • Just found an article on a new service matching patients to clinical trials. Here is the link http://blochcancer.org/2009/11/national- institutes-of-health-make-it-easier-find -a-clinical-trial/. Best ...

Hyperthermia and bladder cancer

joybob
  • By joybob · New reply November 16, 2009
  • 6 replies
  • An article by Ralph Moss states heat treatment delivered via the BSD 2000 machine improved patients 5 year survival rate from 67 to 80 per cent. The local tumor control rate went from 63 to 81 per cent ...

Maitake mushrooms

jmch
  • By jmch · New reply November 12, 2009
  • 3 replies
  • I get alerts from uro today and got one the other day that talked about work being done with maitake mushroom extract, which got me doing some more searching, this article was also interesting: http://findarticles.com/p/articles/mi_m0 ...

Support Group in Los Angeles

BCAN_Staff
  • By BCAN_Staff · New reply November 11, 2009
  • 1 reply
  • For information - a bladder cancer support group meets at USC Norris Comprehensive Cancer Center in Los Angeles on the 4th Tuesday of each month from 6pm to 7.30PM . The group meets in the Lobby Conference ...

Soan Kettering Evidence Based Database of Herbs and Supplements

SilverGrizzly
  • By SilverGrizzly · New reply November 9, 2009
  • 5 replies
  • For anyone wanting to check out what scientific research has been done on the efficacy of herbs and supplements, you might be interested in this database from Sloan Kettering: http://www.mskcc.org/mskcc/html/69294.cf ...

Upcoming surgery

lilbit37
  • By lilbit37 · New reply November 8, 2009
  • 6 replies
  • Hello everyone! I am preparing for my upcoming surgery on December 18th. As many of you know, I am 30 years old and had bladder cancer at age 2. My bladder was removed and my ureters were placed in my ...

Life After Cancer Presentation: Highly Recommended!

SilverGrizzly
  • By SilverGrizzly · New reply November 8, 2009
  • 3 replies
  • I just learned probably 25 things I can do to help prevent my cancer from coming back, while watching the hour and a half presentation on the M.D. Anderson website by the man who wrote "Life After Cancer ...

We all agreed that "SCANT" was not medical terminology

DrgnTrappr
  • By DrgnTrappr · New reply November 5, 2009
  • 12 replies
  • I finally have a copy of the pathology report from my TURBT last month, and I wanted you all to see the final diagnosis word for word. " 1) URINARY BLADDER CANCER TUMOR, TRANSURETHRAL RESECTION: NON-INVASIVE ...

BLADDER CANCER Should Be the FIGHT . . .

BJsHere
  • By BJsHere · New reply October 30, 2009
  • 55 replies
  • I have been sitting back, watching and waiting before writing this post. Katz, is my personal friend. This is not about her but you might say "it was the straw that broke the camels back". I ask that ...

"A Place Where Cancer is the Norm"

SilverGrizzly
  • By SilverGrizzly · New reply October 28, 2009
  • 10 replies
  • There is a very interesting article in the New York Times about M.D. Anderson: treating cancer. the effect cancer has on people's lives, etc. You can find it by going to http://www.newyorktimes.com and ...

sloan kettering bladder cancer namogram

joybob
  • By joybob · New reply October 28, 2009
  • 13 replies
  • well when you are up half the night you stumble onto websites I found this one if anyone is interested. It has a questionaire you fill out and it gives you precentages of survival after r/c. It may or ...

Five Articles on Bladder Cancer on Urotoday

nancynursez637
  • By nancynursez637 · New reply October 22, 2009
  • 9 replies
  • This is the first one and it is on diet, the others include photodynamic diagnosis after bcg and mmc, Urinary Florescence, Open vs Robotic assisted RC, and an article on regional lymphadenectomy during ...

Do Not Try This at Home

DrgnTrappr
  • By DrgnTrappr · New reply October 21, 2009
  • 18 replies
  • Now i am sure some of you wil find this to be funny and someday I to hope to be able to laugh about this. After my TURBT onthe 13th I was released to go home with a cathetor, and because of the distance ...

BCG scheduled.

DrgnTrappr
  • By DrgnTrappr · New reply October 21, 2009
  • 12 replies
  • Got a call from my regular Uro's office today wanting to schedule my first full round of BCG treatments starting next week. I had to remind them that I had just had a TURBT on the 13th and I thought this ...

Good News

f068467
  • By f068467 · New reply October 21, 2009
  • 7 replies
  • Diagnosed in Dec 2008 with stage 1 BC. Had 2 TUBRs followed by 6 BCG sessions. Since then, have been checked twice and no sign of BC. I'm keeping my figures crossed. Will consider BCG maintenance in Feb ...

ATTN: BCAN CLAIRE

loonym
  • By loonym · New reply October 20, 2009
  • 5 replies
  • I'm going to be selling a few items on eBay and I have submitted you as a contact to have BCAN invited to register with MissionFish (http://www.missionfish.org/). This will enable BCAN to receive charitable ...

H1N1 influenza status from WHO

nancynursez637
  • By nancynursez637 · New reply October 20, 2009
  • 4 replies
  • The World Health Organization has added some information on the status of this virus. At this time last year in the US there were 8 cases, this year same time frame in US 5000. Last year in this time ...

Rochester NY and Vicinity Bladder Cancer Support Group Meeting Oct 28

RickB
  • By RickB · New reply October 20, 2009
  • 4 replies
  • Stages of Bladder Cancer Talk Oct. 28 at Wilmot Cancer Center People with bladder cancer can learn about the spectrum of the disease during a meeting of a new support group at the James P. Wilmot Cancer ...

Ben starts Dose Dense MVAC on Monday

cat22
  • By cat22 · New reply October 18, 2009
  • 42 replies
  • We saw Ben's Oncologist today, and we were quite relieved, as he has done his homework, and plans to administer the dose dense MVAC, and baby him along the way. I don't think he has ever done this, but ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

Group leaders

You