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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

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Taking charge: How to be a proactive patient

Tips and suggestions for dealing with medical professionals and managing your illness and overall health.

We all agreed that "SCANT" was not medical terminology

DrgnTrappr
  • By DrgnTrappr · New reply yesterday at 7:20 pm
  • 12 replies
  • I finally have a copy of the pathology report from my TURBT last month, and I wanted you all to see the final diagnosis word for word. " 1) URINARY BLADDER CANCER TUMOR, TRANSURETHRAL RESECTION: NON-INVASIVE ...

BLADDER CANCER Should Be the FIGHT . . .

BJsHere
  • By BJsHere · New reply October 30, 2009
  • 55 replies
  • I have been sitting back, watching and waiting before writing this post. Katz, is my personal friend. This is not about her but you might say "it was the straw that broke the camels back". I ask that ...

"A Place Where Cancer is the Norm"

SilverGrizzly
  • By SilverGrizzly · New reply October 28, 2009
  • 10 replies
  • There is a very interesting article in the New York Times about M.D. Anderson: treating cancer. the effect cancer has on people's lives, etc. You can find it by going to http://www.newyorktimes.com and ...

sloan kettering bladder cancer namogram

joybob
  • By joybob · New reply October 28, 2009
  • 13 replies
  • well when you are up half the night you stumble onto websites I found this one if anyone is interested. It has a questionaire you fill out and it gives you precentages of survival after r/c. It may or ...

Five Articles on Bladder Cancer on Urotoday

nancynursez637
  • By nancynursez637 · New reply October 22, 2009
  • 9 replies
  • This is the first one and it is on diet, the others include photodynamic diagnosis after bcg and mmc, Urinary Florescence, Open vs Robotic assisted RC, and an article on regional lymphadenectomy during ...

Do Not Try This at Home

DrgnTrappr
  • By DrgnTrappr · New reply October 21, 2009
  • 18 replies
  • Now i am sure some of you wil find this to be funny and someday I to hope to be able to laugh about this. After my TURBT onthe 13th I was released to go home with a cathetor, and because of the distance ...

BCG scheduled.

DrgnTrappr
  • By DrgnTrappr · New reply October 21, 2009
  • 12 replies
  • Got a call from my regular Uro's office today wanting to schedule my first full round of BCG treatments starting next week. I had to remind them that I had just had a TURBT on the 13th and I thought this ...

Good News

f068467
  • By f068467 · New reply October 21, 2009
  • 7 replies
  • Diagnosed in Dec 2008 with stage 1 BC. Had 2 TUBRs followed by 6 BCG sessions. Since then, have been checked twice and no sign of BC. I'm keeping my figures crossed. Will consider BCG maintenance in Feb ...

ATTN: BCAN CLAIRE

loonym
  • By loonym · New reply October 20, 2009
  • 5 replies
  • I'm going to be selling a few items on eBay and I have submitted you as a contact to have BCAN invited to register with MissionFish (http://www.missionfish.org/). This will enable BCAN to receive charitable ...

H1N1 influenza status from WHO

nancynursez637
  • By nancynursez637 · New reply October 20, 2009
  • 4 replies
  • The World Health Organization has added some information on the status of this virus. At this time last year in the US there were 8 cases, this year same time frame in US 5000. Last year in this time ...

Rochester NY and Vicinity Bladder Cancer Support Group Meeting Oct 28

RickB
  • By RickB · New reply October 20, 2009
  • 4 replies
  • Stages of Bladder Cancer Talk Oct. 28 at Wilmot Cancer Center People with bladder cancer can learn about the spectrum of the disease during a meeting of a new support group at the James P. Wilmot Cancer ...

Ben starts Dose Dense MVAC on Monday

cat22
  • By cat22 · New reply October 18, 2009
  • 42 replies
  • We saw Ben's Oncologist today, and we were quite relieved, as he has done his homework, and plans to administer the dose dense MVAC, and baby him along the way. I don't think he has ever done this, but ...

just got the path report

DrgnTrappr
  • By DrgnTrappr · New reply October 17, 2009
  • 22 replies
  • I just got off the phone with vaderbilt and was surprised by the path report, all tumors were Low grade. Now theese were the Dr.s words when I asked if it was invasive "A SCANT INVASIVE", and he recomends ...

Uro today

nancynursez637
  • By nancynursez637 · New reply October 16, 2009
  • 2 replies
  • below is a note i received from URO today. you can subscribe to their site and get daily or weekly alerts on research, the subscription is free. I had wanted to cut and paste but as we have already heard ...

Bladder cancer support and community outreach

nancynursez637
  • By nancynursez637 · New reply October 16, 2009
  • 2 replies
  • http://www.urotoday.com/index.php?option =com_content&task=view&id=2594&Itemid=37 &mosmsg=Thanks+for+your+vote%21 Good overview on risk, support, symptoms, why women are diagnosed later, and bladder cancer ...

Love Stories: What Breast, Bladder & Colon Cancer Awareness Have in Common

vtom
  • By vtom · New reply October 15, 2009
  • 12 replies
  • Like everyone else - I am so aware of pink this month but I have had a different reaction. You see it makes me feel good because over 15 years ago I had the privilege of meeting the woman behind the "pink ...

jc3125 news

Lostgypsy
  • By Lostgypsy · New reply October 14, 2009
  • 16 replies
  • First of all, thanks for all of your encouragement. I can't tell you how it feels to log on and find such positive comments. OK for the news..are you ready.. drum roll...The pathology report came back ...

Back at the hotel after surgery

DrgnTrappr
  • By DrgnTrappr · New reply October 14, 2009
  • 10 replies
  • I am going to keep this short, still feeling all the drugs from today. Had my TURBT and they looked into my remaining kidney and urator today at Vanderbilt Cancer Center, Dr Cookson said everything went ...

Honey, I'm Home, and NOT OFF SUBJECT

nancynursez637
  • By nancynursez637 · New reply October 13, 2009
  • 22 replies
  • Man do I have news!!! Cysto was good, however the previous plans to manage me mid year with a urine for cytology is waaaaay outdated. In fact mid year urine subjected to NMP 22 assay are more likely to ...

Enjoyed Meeting Everyone at Chicago Symposium

Ciboney1
  • By Ciboney1 · New reply October 13, 2009
  • 12 replies
  • Just wanted to let all know that BJ and her husband Mike's hospitality are second to none; BJ put on a very informative symposium for us. I learned a lot from Doctor Mark Schacht. M.D. who spoke. He is ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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