Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Newly diagnosed

Guidance and support for those who have recently learned they have bladder cancer.

Neobladder surgery clip

Annasvenska
  • By Annasvenska · New reply November 19, 2009
  • 4 replies
  • All you whom are facing radical cystectomy might want to watch this. http://kstc45.com/article/stories/S12570 32.shtml?cat=10905 There is life after neobladder ...

Bladder Cancer Treatment Guide for Patients

mmc
  • By mmc · New reply November 19, 2009
  • 17 replies
  • I'm a process oriented guy with a history of bladder cancer and I decided to put together a process flow chart of the bladder cancer journey. My hope is that this will be helpful for patients to use with ...

Beth Israel Deconess Boston Hospital

markl1966
  • By markl1966 · New reply November 18, 2009
  • 4 replies
  • Hello, Anyone here who is receiving care now or in the past at Beth Israel Deconess Medcal Center in Boston? Just looking for feedback on how you like the care and doctors there. Thanks ...

I'm still here Surgery rescheduled 9 Dec 2009

LMFoster
  • By LMFoster · New reply November 17, 2009
  • 19 replies
  • (I POSTED WRONG SURGERY DATE IS ACTUALLY 9 December)******************************* ****************** I haven't been active for a while but I'm back. I'll give a little background for new people + update ...

Detroit MI Area Survivors: 2010 U of M Support Group Meetings

RickB
  • By RickB · New reply November 16, 2009
  • 2 replies
  • Dates for 2010 meetings of the University of Michigan Bladder Cancer Support Group are listed below. The sessions are free and no reservation is necessary. Meetings are on Sundays. Jan 17 Mar 14 May 16 ...

starting BCG treatments tomorrow

markl1966
  • By markl1966 · New reply November 14, 2009
  • 11 replies
  • Hello, I start BCG treatments tommorow, an advice on how to maximize my treatments? supplemenmts, eating/ etc.? Also, I am getting this done in my uro's office. I think he said I would not stay there ...

Looking For Best Doctor in SF Bay Area

Stoogemom
  • By Stoogemom · New reply November 12, 2009
  • 17 replies
  • My sister in law was just diagnosed with bladder cancer. Her urologist is recommending she have her whole bladder removed. We are looking for the best doctors in the San Francisco bay area. Thanks for ...

BCG treatments

bob1468
  • By bob1468 · New reply November 11, 2009
  • 11 replies
  • Hello everyone, I am 63 years old and was recently diagnosed with Superficial CIS. The CIS is very small and the recommended treatment was BCG. I underwent 6 BCG treatments then at the 3 month check up ...

Detroit MI Survivors: Neobladder Voiding Dysfunction 11/15 U-Michigan

RickB
  • By RickB · New reply November 11, 2009
  • 2 replies
  • Voiding dysfunction with a neobladder is the topic at the November 15 meeting of the University of Michigan Bladder Cancer Support Group. The sessions are free and no reservation is necessary. Logistical ...

Are there any other kiwis on here?

mitchy1
  • By mitchy1 · New reply November 11, 2009
  • 8 replies
  • Hi Just wondering if there are any other New Zealanders on this site who have bladder cancer? Thanks Michelle ...

Can't Start 2nd BCG series- microscopic blood in urine

KristinLee
  • By KristinLee · New reply November 11, 2009
  • 11 replies
  • Greetings, everyone, This is my first post and I hope it is ok that I join and ask a question for my mother (age 76). She was diagnosed a few months ago with Bladder Cancer, in situ. After her first series ...

treating depression

nsk
  • By nsk · New reply November 9, 2009
  • 14 replies
  • I know there is no magic bullett for treating depression but I would like some feedback ...

Side effects from TURBT-6wks later?

jude0211
  • By jude0211 · New reply November 9, 2009
  • 9 replies
  • Hi, I posted yesterday about my husband johns situation and havent gotten any comments as of yet. Long story short... he had his TURBT 9/25,, no complications afterwards, no cancer found in bladder. Ok ...

Major cancer center for turbt vs local hospital

pattigeorge
  • By pattigeorge · New reply November 9, 2009
  • 25 replies
  • My dad was just dx with bladder ca. He had been having bleeding on and off for about 10 months. He was too scared to get a cystoscopy and let it go. Any way the local Dr. wants to do surgery this week ...

46 year old male Newly diagnosed

markl1966
  • By markl1966 · New reply November 7, 2009
  • 18 replies
  • Hi Everyone, I have just been diagnosed with bladder cancer, starting my BCG treatment next week. This looks like a great forum to share. I am very happy I found it. Still in a little shock, trying to ...

Caught Early

vgau
  • By vgau · New reply November 7, 2009
  • 7 replies
  • I think I am one of the lucky ones because my cancer was caught very early. I have non invasive papillary and will have my first check up in Dec. The doctor cauterized the site while doing the biopsy ...

Please Help me

Eudy
  • By Eudy · New reply November 6, 2009
  • 27 replies
  • Hello Everyone I was diagonsed in July of this year with early stage bladder cancer. My Dr. has not told me of any numbers like you all use. I go back for my second look this month. I am a 49 year old ...

Decision Time – Advice Needed

Stony
  • By Stony · New reply November 4, 2009
  • 18 replies
  • Decision Time – Advice Needed It is that time. The diagnosis has been confirmed and my husband needs to move forward to bladder removal surgery in the next 2 weeks. While they did not give us specific ...

Very good site

Burb
  • By Burb · New reply November 4, 2009
  • 11 replies
  • Well, I'm sort of newly diagnosed. Last fall I was diagnosed with a low grade papillary tumor. I had a TURBT and was clear until July when a new lesion of the same thing showed up. After having another ...

Blessed

Mike-PW
  • By Mike-PW · New reply October 29, 2009
  • 3 replies
  • Blessed are the flexible, For they will not be bent out of shape! :-) Mike ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

Group leaders

You