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Metastatic bladder cancer

Guidance and support for those with metastatic bladder cancer.

We need your prayers again

By luvcntrym · New reply August 13, 2009
22 replies
Hi everyone, I feel like I shouldn't be asking you all for prayers again since I have not been on here in a long time. But I am because I don't know who to turn to or what to do. As some of you know ...

what to do?????

By djtcl · New reply July 19, 2009
12 replies
Ok, Mama had a fever last night and had some confusion all day that got worse as the day went on. Now, we called Hospice and they sent the on call nurse out. She has a history of low sodium. She also ...

Update on Clinical Trial

By luvcntrym · New reply July 18, 2009
21 replies
Hi all....I haven't been on in a while. Too much going on here with this clinical trial, phone calls back and forth. My mind is about to explode! Dennis was suppose to start clinical trial this past Monday ...

still here

By djtcl · New reply July 12, 2009
11 replies
Haven't posted in a while. Took that little vacation I talked about and it was great to get away. I also wnt to the doc today to talk about some things going on with me. Nothing serious at all...just ...

Just Found out Husband has Stage IV BC

By cat22 · New reply July 9, 2009
37 replies
Hi All I have posted a few comments since I found this page. I do want to thank you all from the bottom of my heart for all of the wonderful information, prayers, hope, encouragement....the list is long ...

CHEMO Guidance & Advise PLEASE!

By Full_of_Hope · New reply July 2, 2009
13 replies
Hello -- I'm a frequent reader; occaisional writer. Last week, my dad's BC was found in the lining around his lungs. The fluid was drained (2+ liters) and a medical talc was inserted around his lung to ...

change in mood

By djtcl · New reply July 1, 2009
7 replies
First I want to say, please don't think I am being unkind or insensitive. I'm not. Mom has been very cranky the last few days. Her mood has gone from upbeat to grumpy. Now, I know she has every right ...

Feeding those little things

By djtcl · New reply June 26, 2009
3 replies
Well, for months...probably over a year.....Mama as refused to eat anything with sugar in it and very little meat. It is because there is research that says cancer feeds on sugar. So, this week, all of ...

Same song, second verse

By djtcl · New reply June 20, 2009
3 replies
The nurse came Thursday and is wuite surprised at the change in Mama's right leg. The nodes in her left leg have been large enough to touch for a while. A week ago, she couldn't feel them in her right ...

need your help again

By djtcl · New reply June 18, 2009
8 replies
Good morning. Seems we hve a new set of problems that no one seems to be able to figure out. I figured if anyone knows, it is you guys. Mama's bags are leaking terribly. We used to change it once aweek ...

Chemo not helping, cancer keeps spreading......

By luvcntrym · New reply June 15, 2009
40 replies
Is there anyone here with bladder cancer that keeps spreading? Have you had all the major chemo treatments for metastatic bladder cancer and nothing seems to work? The radical cysectomy was suppose to ...

Need suggestions

By djtcl · New reply June 14, 2009
6 replies
Mama is having some difficulties getting comfortable. She can't sit in her recliner because it doesn't support her back. She spends a lot of time sitting in an office type chair but that also gets tiring ...

The real thing or Placebo???

By luvcntrym · New reply June 14, 2009
22 replies
Can someone here explain to me why they give placebo? My husband is going through a clinical study, phase I. The study is on a drug called pazopanib. For the first 11 days, he won't know if he'll be taking ...

every day is a blessing

By djtcl · New reply June 10, 2009
10 replies
Well, every day is a blessing. Sometimes we tend to forget that. Unfortunately cancer is one of the things that reminds us. Things are moving along about the same. Mama's left leg is about three times ...

latest on mom

By djtcl · New reply June 5, 2009
21 replies
Not musc has changed I guess. The hospice doctor came out and evaluated her on Wednesday. Not impresssed. She ordered a ultrasound to rule out blood clots. No blood clots. That's good. Otherwise, there ...

Hope with Clinical Trial

By luvcntrym · New reply June 3, 2009
8 replies
Hi everyone.....Well we have another appointment with Karmanos Cancer Institute on June 12. It was suppose to be June 5 but Dennis did not qualify for the drug they had in mind because he is on cumadin ...

Cancer Trials

By AnthonyKarl · New reply June 2, 2009
10 replies
My Dad was diagnosed a few years back with stage 4 metastatic bladder cancer. My family was very shocked by this diagnosis. In my 29 years I only remember my father being sick twice...only twice. He just ...

Turning a bad corner

By djtcl · New reply May 25, 2009
16 replies
The hospice nurse came Wednesday. The swelling is not better but in fact worse. She can't even get her shoes on. They put mom on Lasix (sp?) and a nerve medication (don;t know name). The doctor is supposed ...

Clinical Trial Appointment Results

By luvcntrym · New reply May 21, 2009
9 replies
Well, we went to Karmanos Cancer Institute today and met with Dr. Elisabeth Heath. I was impressed with the insitute and the personnel. But the outcome is sort of grim. We were told that Dennis has had ...

What does this mean???....

By luvcntrym · New reply May 20, 2009
8 replies
I am really stumped and I don't know how to take this. As you all know, my husbands oncologist referred him to see another oncologist who deals with experimental drugs(Appt. is tomorrow at Karmanos ...