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Metastatic bladder cancer

Guidance and support for those with metastatic bladder cancer.

Mets - any advice gratefully received

BetsyMae
  • By BetsyMae · New reply November 5, 2009
  • 14 replies
  • I was given the diagnosis earlier today that I have long dreaded - I have mets in my left hip bone. They are unsure whether they are from my urachal tumour (removed August 2007) or my breast tumour (removed ...

Just so everyone knows.....

luvcntrym
  • By luvcntrym · New reply October 20, 2009
  • 13 replies
  • I deleted my discussion on 'Am I wrong" because it was opening a can of worms that I did not want to let out. Hope I did not offend anyone by doing that, I just thought it was best to end it. I received ...

It has been a LONG time

djtcl
  • By djtcl · New reply October 17, 2009
  • 15 replies
  • It has been so long that many of you may not know me but a few will remember. My sweet mama passed away on August 10th. The last month was a nightmare. Now she is out of pain and free of this awful disease ...

Daveyo Where are you??

luvcntrym
  • By luvcntrym · New reply October 5, 2009
  • 17 replies
  • Anyone heard from Daveyo or did I just miss reading a post? I was just wondering how he is doing, a little concerned. I haven't been on much because I feel like i'm reliving the whole BC thing since Dennis ...

My Dear Love Mark Has Gone Home To God....

momofive
  • By momofive · New reply October 1, 2009
  • 83 replies
  • I am sitting up alone it is 12:30 am and I need to pour this out. Mark fought a valiant fight but his body could not fight any longer. He came home under hospice care this evening at almost 4 pm and passed ...

dad is having trouble with pain meds

kay1330
  • By kay1330 · New reply September 30, 2009
  • 10 replies
  • Hello all, it has been a while since i have been on here as life is handing us alot these days. after chemo & radiation dad is having alot of pain that the docs can't figure out, he is now on morphine ...

bladder removed

luvwilma
  • By luvwilma · New reply September 17, 2009
  • 36 replies
  • Our mother just had her bladder removed and the surgeon said she was full of cancer and gave her 2 yrs. I have posted a discussion before but never get any feedback. I don't know if I am doing it in the ...

Thank You Everyone

luvcntrym
  • By luvcntrym · New reply September 16, 2009
  • 28 replies
  • I want to thank everyone from the bottom of my heart for all the prayers and support you all have given to me and Dennis. As most of you know, after battling with B/C for over 3 1/2 years, Dennis passed ...

Ed's diagnosis is grave

georgiaE
  • By georgiaE · New reply September 14, 2009
  • 89 replies
  • Ed had his first 3 month cat scan tuesday, three month after his RC. We met with his oncologist today and the news was bleak. The bladder cancer has invaded his liver and the outside lining of his stomach ...

glucose starvation of cancer cells

ivanb
  • By ivanb · New reply September 11, 2009
  • 14 replies
  • spread to the backbone and liver ...

small cell bladder cancer

birdnerd
  • By birdnerd · New reply September 7, 2009
  • 10 replies
  • Does anyone have any experience with small cell bladder cancer? If so , how did your physicians approach this issue in terms of treatment? Apparently it is very rare and is normally associated with brain ...

I Need help

spartyman71
  • By spartyman71 · New reply September 2, 2009
  • 22 replies
  • Do any of you have anythign in writing for an aftercare protocol for high grade bladder cancer after a rqadical cystectomy? I can't find anything online. Thanks, Tom ...

Radiation Burns

karbur
  • By karbur · New reply September 1, 2009
  • 5 replies
  • I need some help. I've had bladder removal, metastasized to bone (radiation treatments w/ little problem), and now moved to vaginal (plus) area. The treatment was brachytherapy (radiation via tubes and ...

This is not the news I wanted to deliver.....

momofive
  • By momofive · New reply August 31, 2009
  • 48 replies
  • I am going to make this short as I'm numb, exhausted and sad for my children. Straight to the point: Mark's urine at the hospital in pre-op was the color of Red Wine to start off and turns out has been ...

Mark, Kelley and Family

spartyman71
  • By spartyman71 · Posted August 31, 2009
  • 0 replies
  • Just wanted you to know Sherry and I have been thinking about you all weekend and have been quietly and privately praying for your familt. We are all still here for you and will continue to be so. I wish ...

Just a quick note......

luvcntrym
  • By luvcntrym · New reply August 25, 2009
  • 5 replies
  • Hi everyone....I am writing this at work. I had to go back to work(bills are stacking up). It's only part time for now because I need to be home with Dennis as much as I can. One of his sisters has decided ...

A little ray of HOPE!

luvcntrym
  • By luvcntrym · New reply August 23, 2009
  • 25 replies
  • I came home from the hospital to rest up a bit and then back to the hospital again. I am so very thankful for all of the prayers sent our way and all the well wishes. When I got to the hospital this morning ...

Small cell bladder cancer that has metastasized to the liver...

thedanusc
  • By thedanusc · New reply August 19, 2009
  • 9 replies
  • My dad who is 53 years old was diagnosed in February 2009 with bladder cancer. The doctors (at Duke) recommended he do chemo first then he would have his bladder removed. They said "oh everything is great ...

We need your prayers again

luvcntrym
  • By luvcntrym · New reply August 13, 2009
  • 22 replies
  • Hi everyone, I feel like I shouldn't be asking you all for prayers again since I have not been on here in a long time. But I am because I don't know who to turn to or what to do. As some of you know ...

what to do?????

djtcl
  • By djtcl · New reply July 19, 2009
  • 12 replies
  • Ok, Mama had a fever last night and had some confusion all day that got worse as the day went on. Now, we called Hospice and they sent the on call nurse out. She has a history of low sodium. She also ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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