Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Living with non-invasive bladder cancer

Guidance and support for those with non-invasive bladder cancer.

Just some funny stuff , but real

JeanneS
  • By JeanneS · New reply October 22, 2009
  • 7 replies
  • Real Doctors Notes..transcriber must have had fun seeing them , heehee 1. Patient has two teenage children, but no other abnormalities. 2. Patient has chest pain if she lies on her left side for over ...

IVP Today This might be too much information....

nancynursez637
  • By nancynursez637 · New reply October 20, 2009
  • 7 replies
  • I discovered recently that I should have been having IVP's (kidney ureter and bladder dye tests) on somewhat of a regular basis since my diagnosis in 1999. So one is scheduled for today. Because I have ...

pepsicolarocks

LadyJane123
  • By LadyJane123 · New reply October 20, 2009
  • 6 replies
  • Any word on how her operation went ...

question re: BCG

jmch
  • By jmch · New reply October 17, 2009
  • 20 replies
  • I've seen a lot about reactions to BCG, tiredness etc. question is how far into BCG treatment did you start feeling what symptoms? and what was your starting point health-wise? i know everyone is different ...

Blood in urine - a case study

Cheyenne
  • By Cheyenne · New reply October 14, 2009
  • 6 replies
  • I just read a case study about a 60 year old woman who presented in macrohematuria. She had two other episodes in the past year. She was diagnosed with gynecological problems. She was other wise healthy ...

Has anyone heard from Shiz ?

Kyle-MO
  • By Kyle-MO · New reply October 14, 2009
  • 3 replies
  • Just wondering if anyone has heard from Shiz, as to how he is doing after his biopsy surgery last Thursday ? I E-mailed him, but haven't heard anything back yet. He may be teeing up in Hawaii already ...

Its Canadian Thanksgiving this weekend

LadyJane123
  • By LadyJane123 · New reply October 12, 2009
  • 59 replies
  • and I want you all to know I am very thankful for your support . I am sooo greatful that Jack Moon directed me here. You all have made a difference in my life. A bounty of kindness and friendship ...

Good news/Path report

jude0211
  • By jude0211 · New reply October 10, 2009
  • 12 replies
  • Hi all, just wanted to update you on Johns follow-up visit with the urologist yesterday. His path report came back CLEAN! No cancer in the bladder or muscle wall! Yeah! He will continue to follow up with ...

Anyone have anxiety or Panic attacks?

JeanneS
  • By JeanneS · New reply October 9, 2009
  • 34 replies
  • I have had General Anxiety for a lot of years. Take xanax for it when needed. Just wondering if there are any here who share this , It would be nice to compare notes, Specially when I feel extra bad anxiety ...

Earthquakes increasing in California

JeanneS
  • By JeanneS · New reply October 5, 2009
  • 38 replies
  • We have had almost 900 large to small quakes since the quakes in the Pacific . Must have pushed our faults out of whack. Just have felt a few small jolts in our area since we are in the mountains. But ...

Keeping on the "smile" theme

LadyJane123
  • By LadyJane123 · New reply October 4, 2009
  • 4 replies
  • This song and video always makes me smile. I hope it does for you too. :-) http://www.youtube.com/watch?v=iu-rLA4PO kI ...

Wow , Still Tired

JeanneS
  • By JeanneS · New reply October 4, 2009
  • 17 replies
  • I think this is the longest I have been tired from the treatments. At least I suppose that is why. A little over two weeks sinc my last one of the 28. Sound reasonable? YAWNNN ...

Results of my 8th cystoscopy

LadyJane123
  • By LadyJane123 · New reply October 2, 2009
  • 22 replies
  • Hi all Had my cysto yesterday with my new and handsome ( gotta love that part) urologist. He did things differently than my old uro. He gave me bladder scans and I had to do the flow meter as well as ...

Crazyhorse??

JeanneS
  • By JeanneS · New reply September 28, 2009
  • 5 replies
  • I got email saying you posted to me, but Poof , it's gone. Just thought I'd let you know, in case something isn't working right for you or on mine ...

Getting a better look at CIS in hospital setting?

SilverGrizzly
  • By SilverGrizzly · New reply September 27, 2009
  • 9 replies
  • Has anyone else had their follow up cystoscopies in a hospital after BCG? I got this very interesting response from MyCat, who lives in Australia, about his experiences and I am repeating it here in the ...

New treatment on horizon

earlyriser
  • By earlyriser · New reply September 26, 2009
  • 5 replies
  • Intravesical chitosan/IL-12 - a new treatment for superficial bladder cancer to go to human trials next year http://dailyheadlines.uark.edu/15625.htm ...

OFF TOPIC....Some may remember these

Kyle-MO
  • By Kyle-MO · New reply September 26, 2009
  • 46 replies
  • Someone asked the other day, 'What was your favorite fast food when you were growing up?' 'We didn't have fast food when I was growing up,' I informed him. 'All the food was slow.' 'C'mon, seriously ...

Kitty is gone :(

JeanneS
  • By JeanneS · New reply September 26, 2009
  • 19 replies
  • Was going to take him to the vet to be put to sleep, but he died before we could. I wanted to be holding him when he passed , but I went to get him and he was already cold . Not a good day, even though ...

My Kitty :(

JeanneS
  • By JeanneS · New reply September 21, 2009
  • 16 replies
  • This is his last day. He isn't moving except breathing rather steady for now. I will miss him, he was such a fighter to stay alive . :(( Not good day, except he will cross the Rainbow Bridge ...

Interferon and maitake mushrooms

Kyle-MO
  • By Kyle-MO · New reply September 21, 2009
  • 17 replies
  • Hey all, A little blah today after my bcg plus interferon yesterday, but wanted you to read this at Urotoday.com I don't know how to post the exact site, but was informed we can no longer copy and paste ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

Group leaders

You