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Living with non-invasive bladder cancer

Guidance and support for those with non-invasive bladder cancer.

When Doctors call late in the day

Jimbo1968
  • By Jimbo1968 · New reply 8:31 pm
  • 25 replies
  • Well the doctor called late yesterday. He called to to tell me biopsy result came back clear - no cancer!!!!! Thanks to all those that sent positive waves and prayers. No doctor appts for like 5 weeks ...

Our new Christmas photo

JeanneS
  • By JeanneS · New reply 6:51 pm
  • 10 replies

At what month did you have your first BCG Maintenance?

SilverGrizzly
  • By SilverGrizzly · New reply 4:32 pm
  • 1 reply
  • When they say maintenance BCG happens every 3 months the first year, what is that three months from? The beginning of your induction round, or the end of your induction round, or something else? Thanks ...

Question about pathology report for JJ803

Girly1
  • By Girly1 · Posted 3:57 pm
  • 0 replies
  • I sent out a question regarding my path report last week and got a wonderful response from JJ803. I had left something off of my discussion that was also on the report. It also says The tumor shows a ...

Starting BCG

Burb
  • By Burb · New reply 10:20 am
  • 8 replies
  • I'm starting BCG on Monday. In August I had Mitomycin C and I found that pretty "stingy" to put it mildly. Could some folks who have gone through BCG tell me their experiances? How did you feel the day ...

Thanks

Girly1
  • By Girly1 · New reply 10:06 am
  • 5 replies
  • Thank you to everyone who has replied.As far as the shingles I already thought of that but I am the queen of the shingles I have had them 4 times. Twice in my thirties, and 2 times in my early forties ...

Not even close to on topic , but interesting

JeanneS
  • By JeanneS · New reply yesterday at 9:23 am
  • 10 replies
  • I will be having a verrrrrrrrry busy week, so I thought I would pass on this tidbit I found . I didn't know this How Pumpkin Pies are made ...

Acupuncture: reporting in after BCG #5

SilverGrizzly
  • By SilverGrizzly · New reply November 19, 2009
  • 16 replies
  • So far I have been very pleased with how the acupuncture has helped my BCG side effects, which were considerable from day one of installation one. Each week I get an acupuncture session the day after ...

NMP22 & Scope improves detection of recurrence up to 99%

SilverGrizzly
  • By SilverGrizzly · New reply November 19, 2009
  • 3 replies
  • A study on using NNP22 as well as cystoscopy to check for recurrence showed that the two together improved detection rates up to 99%. The NMP22 test detected 8 of 9 cancers not found by cystoscopy alone ...

BCG Maintenance or no? Your experience?

SilverGrizzly
  • By SilverGrizzly · New reply November 18, 2009
  • 35 replies
  • I would be really interested in learning about who has or has not had BCG Maintenance recommended by their doctor. I'm confused about whether this is always recommended for CIS, but not always for other ...

BCG #2 done, and I'm miserable.

SilverGrizzly
  • By SilverGrizzly · New reply November 18, 2009
  • 15 replies
  • Just need to vent a little... I just finished BCG #2 (first round!) on Tuesday, and have been miserable ever since. Symptoms are twice as intense as after the first dose, and lasting twice as long. I ...

weird pain has anyone else had it.

Girly1
  • By Girly1 · New reply November 15, 2009
  • 4 replies
  • Has anyone experienced pain in the bladder area. I have been having sharp shooting pain right in the genital area and also pain right above and below my belly button, it feels like pulling twisting or ...

Can anyone explain what this term means

Girly1
  • By Girly1 · New reply November 13, 2009
  • 16 replies
  • Yesterday I asked for a copy of my Pathology report from docs office. It says diagnosis is High grade in-situ papillary Urothelial Carcinoma (4 CM in aggregate).I know I had this 1 big tumor and 12 what ...

Anus Problem - Side Effect?

LSW
  • By LSW · New reply November 10, 2009
  • 6 replies
  • This is my first time on this website. Hopefully, someone can give me assistance. I have a condition and was wondering if anyone else has experienced similar symptoms or has any information that can help ...

Staying out of the fray :)

JeanneS
  • By JeanneS · New reply November 9, 2009
  • 16 replies
  • I have no choice about staying out of the fray. I don't know what the fray is One more day of freedom , then hubby starts his treatments. eeeek! Should go well , long as the weather holds up. We're all ...

Staying healthy with bladder cancer

JQ
  • By JQ · New reply November 8, 2009
  • 9 replies
  • Two weeks after my TURBT and MMC treatment, I have come down with the flu. The doctor is treating it as swine flu. I postponed getting a seasonal flu shot because I wasn't sure how it would affect my ...

BCG and Bladder Cancer

PharmMD
  • By PharmMD · New reply November 7, 2009
  • 9 replies
  • First, you should know that there are two basic types of BCA - the most common is papillary which can be resected and is lower grade. The other is carcinoma in site (CIS) which is on the surface of the ...

Acupuncture & BCG: reporting in

SilverGrizzly
  • By SilverGrizzly · New reply November 7, 2009
  • 14 replies
  • I'm giving a tentative report on acupuncture to help with BCG side effects. I wish there were two of me, so one of me could be the experimental body and the other the control, and then I'd know for sure ...

seeing blood in urine

Girly1
  • By Girly1 · New reply November 6, 2009
  • 13 replies
  • I just had my 5th BCG/interferon treatment today and after last weeks I started to see blood the more I urinated and pieces of blood in the toilet (sorry to get graphic).I had it at 11:00 today and already ...

A bit of an update...

JimV
  • By JimV · New reply November 6, 2009
  • 12 replies
  • I was added to the October calendar (thank you very much) for a cysto and ureteroscopy. By way of history, I joined here in 2008 and have had CIS since 2003. Went through the various treatments and the ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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