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Living with non-invasive bladder cancer

Guidance and support for those with non-invasive bladder cancer.

Staying out of the fray :)

JeanneS
  • By JeanneS · New reply 1:45 pm
  • 14 replies
  • I have no choice about staying out of the fray. I don't know what the fray is One more day of freedom , then hubby starts his treatments. eeeek! Should go well , long as the weather holds up. We're all ...

Staying healthy with bladder cancer

JQ
  • By JQ · New reply 1:14 pm
  • 8 replies
  • Two weeks after my TURBT and MMC treatment, I have come down with the flu. The doctor is treating it as swine flu. I postponed getting a seasonal flu shot because I wasn't sure how it would affect my ...

BCG and Bladder Cancer

PharmMD
  • By PharmMD · New reply yesterday at 9:47 am
  • 9 replies
  • First, you should know that there are two basic types of BCA - the most common is papillary which can be resected and is lower grade. The other is carcinoma in site (CIS) which is on the surface of the ...

Acupuncture & BCG: reporting in

SilverGrizzly
  • By SilverGrizzly · New reply yesterday at 8:44 am
  • 14 replies
  • I'm giving a tentative report on acupuncture to help with BCG side effects. I wish there were two of me, so one of me could be the experimental body and the other the control, and then I'd know for sure ...

seeing blood in urine

Girly1
  • By Girly1 · New reply November 6, 2009
  • 13 replies
  • I just had my 5th BCG/interferon treatment today and after last weeks I started to see blood the more I urinated and pieces of blood in the toilet (sorry to get graphic).I had it at 11:00 today and already ...

A bit of an update...

JimV
  • By JimV · New reply November 6, 2009
  • 12 replies
  • I was added to the October calendar (thank you very much) for a cysto and ureteroscopy. By way of history, I joined here in 2008 and have had CIS since 2003. Went through the various treatments and the ...

Choosing Insurance

antuck
  • By antuck · New reply November 5, 2009
  • 3 replies
  • It's that time of year where I have to choose if I want to stay with the University's health plan or go with a regular insurance carrier. There are plus and minuses on both sides. The big reason I am ...

BCG #3 going better! :-)

SilverGrizzly
  • By SilverGrizzly · New reply November 5, 2009
  • 13 replies
  • I'm happy to report my body is handling the third BCG treatment better than the first two. Thank you all for your words of support and your prayers that things would ease up for me. They worked! :-) Much ...

Caregivers

spaisley39
  • By spaisley39 · New reply November 4, 2009
  • 23 replies
  • Hello all, I hope you all had a nice Halloween with a lot of adorable trick or treaters! I simply wanted to thank all of the "Caregivers" on this site. You have all given me so much insight as to how ...

BCG Maintenance or no? Your experience?

SilverGrizzly
  • By SilverGrizzly · New reply November 3, 2009
  • 33 replies
  • I would be really interested in learning about who has or has not had BCG Maintenance recommended by their doctor. I'm confused about whether this is always recommended for CIS, but not always for other ...

Dr. Lamm & reducing BCG dose during maintenance

SilverGrizzly
  • By SilverGrizzly · New reply November 2, 2009
  • 11 replies
  • Here's an interesting report of how Dr. Lamm reduces even down to 1/60 BCG dosage to absolutely minimize side effects during maintenance. It seems he does not want to see side effects during maintenance ...

Pregnant after bladder cancer

elizsar
  • By elizsar · New reply November 1, 2009
  • 3 replies
  • I am just curious if any of you out there have become pregnant after being diagnosed with bladder cancer. I'm not really looking for advice here just wondering if any of you have any knowledge of this ...

The "Weeds" in my garden. ( BC info )

LadyJane123
  • By LadyJane123 · New reply November 1, 2009
  • 17 replies
  • One interesting thing that has happened to me is that my 2nd opinion uro ( Dr M Jewett in Toronto Canada) and my new urologist in my city, have both given the same analogy for what they sometimes see ...

BCG #2 done, and I'm miserable.

SilverGrizzly
  • By SilverGrizzly · New reply October 30, 2009
  • 10 replies
  • Just need to vent a little... I just finished BCG #2 (first round!) on Tuesday, and have been miserable ever since. Symptoms are twice as intense as after the first dose, and lasting twice as long. I ...

Developing a Pain Management Plan

SilverGrizzly
  • By SilverGrizzly · New reply October 30, 2009
  • 4 replies
  • Shiz reports that he is going to request a pain management plan before his next round of BCG. I think this is a fantastic idea and I'm going go in next Tuesday for dose #3 and insist on this. When I was ...

Uro Today

Kyle-MO
  • By Kyle-MO · New reply October 30, 2009
  • 1 reply
  • Efficacy of Bacillus Calmette-Guerin (BCG) therapy and cauterization of the tumor versus BCG therapy without cauterization for superficial bladder cancer - I thought this was interesting from Uro Today ...

Feelings.... (do not break into song)

jmch
  • By jmch · New reply October 28, 2009
  • 17 replies
  • When my husband first found out he had a tumor and was scheduled for turbt, his uro sent him to his regular doc (see note*, below) for a full check up before surgery (in addition to a battery of tests ...

BCG / Interferon fatigue and side affects

Jimbo1968
  • By Jimbo1968 · New reply October 28, 2009
  • 22 replies
  • So I finished 4/6 bcg and interferon treatments this last week and I have to say I am having alot more side affects than just BCG. Now most of them I can deal with but the fatigue is a real bummer: for ...

URAL after BCG treatments?

SilverGrizzly
  • By SilverGrizzly · New reply October 28, 2009
  • 9 replies
  • MyCat wrote that he received URAL after his BCG treatments to help normalize the urine. Has anyone else been given this? It seems like it might help with any burning side effects. The only information ...

Not so happy tonight

nancynursez637
  • By nancynursez637 · New reply October 27, 2009
  • 34 replies
  • you would think as a nurse, i would pretty much know what needs to be done. I had an IVP this week, and the left ureter does not show. I have not heard from the Urologist yet, my primary called with the ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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