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Living with invasive bladder cancer

Guidance and support for those with muscle-invasive bladder cancer.

Ben sailed through insertion of Nephrostomy Tube!!

cat22
  • By cat22 · New reply July 22, 2009
  • 9 replies
  • Just to let you all know, Ben did GREAT today. Went in around 8am for pre-op, for CT scan at 10am, then directly to surgery. He was out by 11:15, and eating a light lunch at noon. Dr. came by to see him ...

daily life with stoma

govindarajan
  • By govindarajan · New reply July 20, 2009
  • 7 replies
  • Biography I am a retired Air Vice Marshal (72 yrs age). I have Master's degree in Electronics and Telecommunication. I have worked for air defence network integrating radars, various telecom networks ...

Chemo complications and their potential impact on upcoming surgery.

unsuredaughter
  • By unsuredaughter · New reply July 16, 2009
  • 5 replies
  • Hello everyone! I have several questions and any advice is appreciated. My mom (68) was diagnosed with probable stage 2 bladder cancer in the beginning os Feb. '09. She is being treated at the James Cancer ...

WHY OH WHY

suzywong
  • By suzywong · New reply July 9, 2009
  • 29 replies
  • why is it each month leading up to my cyto i am no more prepared than the time before every 12 weeks i go in and i am put to sleep for my cyto and kidney checked honestly i am living with this cancer ...

Insulin Potentiation Therapy (IPT)

cat22
  • By cat22 · New reply July 5, 2009
  • 3 replies
  • Anyone know about this? I've read about it and understand the concept, and a Google Alert came thru today with a similar concept from IGF Technology in Washington who is hoping to start clinical trials ...

Results

ellenrn
  • By ellenrn · New reply July 3, 2009
  • 17 replies
  • Hi Everyone, I'm so sorry it took so long to get on this week. Three twelves in a row and sleep in between. Todays the day to catch up on posts!! ALL CLEAR!! The doc gave us a piece of schedule of what ...

bladder cancer beyond the muscle wall

eclipse
  • By eclipse · New reply July 1, 2009
  • 16 replies
  • My son is 41 with high grade invasive cancer that is beyond the muscle wall. The ongologist says chemo then Radiation. Are different cancer treatment centers going to have different answers? The surgeon ...

Cysto Tomorrow

ellenrn
  • By ellenrn · New reply June 27, 2009
  • 19 replies
  • Eight am tomorrow. Steve's first "office" cysto. He plans on going to work afterward...will he be up for it? I hope so. I'm also thinking that we will hear what he see's immediately since there's no biopsy ...

Listen to Others

birdman
  • By birdman · New reply June 25, 2009
  • 3 replies
  • A week ago I was voiding every hour during the night.Others had said they stop consuming fluids by 6 to 7pm. I stopped drinking between 7:30 and 8:00pm and have since made it to every 4 hours without ...

Burning on urination

gdlaver
  • By gdlaver · New reply June 24, 2009
  • 9 replies
  • My husband was diagnosed with bladder cancer last November. After 5 biopisies with results conflicting on the type of cancer (adneo or transitional with CIS), we had the samples sent to John Hopkins where ...

Other options to taking out whole bladder if it's gone into the muscle

Beari
  • By Beari · New reply June 22, 2009
  • 19 replies
  • My surgeon wants to take out my whole bladder because it's in the muscle wall evidently and because of a 6cm tumor at the top part. he already took out a blood clot the size of a fist during the cystocopy ...

Overactive bladder

birdman
  • By birdman · New reply June 16, 2009
  • 5 replies
  • I am having problems with voiding too much at night. I try to stop drinking fluids around 9pm and dont go to bed until midnight or after. Set alarm for every two hours but too late, set my alarm every ...

start a prayer chain for DashingD and bill

mred009
  • By mred009 · New reply June 15, 2009
  • 15 replies
  • my prayers and thought are with you through this god bless both of you in this fight ed ...

May I see a show of hands please?

bcjerseygirl
  • By bcjerseygirl · New reply June 14, 2009
  • 6 replies
  • Hi everyone, I have been trying to keep up with all your posts but I have been wrapped up with Monday vists to get IV iron therapy, B 12 shots, April I needed blood. My oncologist told me that my 38 radiation ...

yup....here's the deal

daveyo
  • By daveyo · New reply June 13, 2009
  • 46 replies
  • going in the 16th...for the "talk".....22nd pop;;;;;;;...29th real chop.... i'll take any love i can!!!!!! thanks my friends!!!.............damn, cancer is wrecking my summer.......... lotta fish ...off ...

Anyone else like Me.

birdman
  • By birdman · New reply June 11, 2009
  • 4 replies
  • I am on medication for uti and normally wear a external catheter with resevoir at night due to not waking up to void, anyway I am experencing another minor problem and cant use the catheter ,so used depends ...

Has anyone been diagnosed with anaplasia carcinoma/sarcoma?

cardioguy
  • By cardioguy · New reply June 7, 2009
  • 11 replies
  • I was diagnosed with a T4 anaplacia carcinoma/sarcoma WHO grade 3 in 12/2007. The recurrence for this type is high from what I have been reading. I have had a neobladder since 3/2008, and I have been ...

post chemo??

daveyo
  • By daveyo · New reply June 3, 2009
  • 20 replies
  • quick question.....my hair is not growing back..."anywhere'....easy cheyenne!!..... and 3 weeks later my eyebrows are falling out which seems wierd... normal???...or am i just a freak of nature? ps...that ...

off topic

daveyo
  • By daveyo · New reply May 26, 2009
  • 20 replies
  • for my fellow rhode islanders....and peter griffin, you understand what i'm about to say... just got off my boat from a night bay criuse off newport.......had freshly caught striper steaks on the grille ...

doc can't figure it out!!!

guatay8
  • By guatay8 · New reply May 11, 2009
  • 4 replies
  • Hi again everyone! I want to thank everyone for the responses on the problem with my infections after having the neo-bladder put in.The infections now have seemed to go away BUT now I am leaking non stop ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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