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Living with invasive bladder cancer
Guidance and support for those with muscle-invasive bladder cancer.
I'm kinda lost.......Ben Update
- By cat22 · New reply September 19, 2009
- 20 replies
- Ben got his CT and MRI results today. VERY little shrinkage of tumor after two cycles of triple cocktail. New spot on Pelvic bone, most likely cancer. New spots on lungs (doesn't LOOK like cancer). I'm ...
Ben's Chemo not working......
- By cat22 · New reply September 16, 2009
- 35 replies
- Hi. We got the results of Ben's MRI after Cycle 2, very little change. WE were crushed. I REALLY thought he would get a good response. Now RC is probably out of the question. We expected far more, considering ...
Making a choice: WHICH DEVERSION IS BEST FOR YOU!!
- By roadrunner · New reply September 16, 2009
- 34 replies
- So were sittiing in our surgeon's office..the deversions available to b/c patients has just been laid out for us,choices,,neo bladder, indiana pouch, ileaut conduit. Not that my husband wanted any one ...
Still trying to decide...so have one question that would help.
- By momofive · New reply September 13, 2009
- 37 replies
- Ok so far you all have been SOOOO amazing. Between all of your stories of hope and positive outlooks, and the wealth of information we're feeling empowered! So my husband Mark has one question that he ...
Absolutely Fantastic News
- By spartyman71 · New reply September 13, 2009
- 30 replies
- The results are in! The liver haws cysts and one large hemangioma all BENIGN!!!!!!! We are doing the happy dance. And to frost the cake even more, we think our house sold last night!!!! Now, new urologist ...
Sometimes it just hurts.........
- By spartyman71 · New reply September 10, 2009
- 23 replies
- Sometimes when i read the posts and see all the people tht went to Sloan Kettering, Johns Hopkins, etc. it really depresses me. I was teaching at the time of my R/C, had a daughter in college, (we were ...
basset77
- By basset77 · New reply September 8, 2009
- 11 replies
- My dad, who is 87, has been diagnosed with stage 3 invasive bladder cancer. He is too old for any surgery and is supposed to be starting radiation treatments soon. This is new to me. The cancer has gotten ...
Mouth sores
- By loonym · New reply September 8, 2009
- 9 replies
- Has anyone dealt with mouth sores? That's very recently become an issue ...
Mark Update
- By momofive · New reply September 5, 2009
- 26 replies
- Thank you all so much for your wonderful words of comfort and advice when I gave your our devastating news about Mark. We are moving forward and Mark's ability to be positive and push on are giving me ...
Coming out of the woodwork
- By Sophiedo · New reply September 5, 2009
- 24 replies
- Hi all, I have been reading here for a couple of weeks and thought now was the time to tell my tale and get some input. I received my dx of invasive bladder cancer Aug. 3. after my bladder biopsy. I had ...
First Cysto Tomorrow - A bit scared
- By barhoram · New reply September 3, 2009
- 38 replies
- Hello All, I've been reading this forum quite a bit over the past few days. I have my first cycsto tomorrow. I'm a bit scared...not from the procedure itself, but from the possible outcome. Writing seems ...
CT Results Back
- By spartyman71 · New reply September 2, 2009
- 25 replies
- I just received my CT results and the urologist office claims they haven't received their. It has been faxed to them twice. There is liver involvement. I have called my GP to give me some help in what ...
Mom's R/C
- By Randy799 · New reply September 2, 2009
- 7 replies
- Mom's R/C surgery went great. Haven't been able to talk to her much since she has been so groggy but Dr said everything went smooth! She was in surgery about 6 hours and actually looks much better than ...
Mom's Surgery on Monday
- By Randy799 · New reply September 1, 2009
- 15 replies
- Hi all! It's been a long time since posting but we've been patiently awaiting mom's surgery. Since my last post the whole family attended the bladder cancer suport meeting at UCSF(I highly recommend it ...
Uninsured in Seattle
- By JCsis · New reply September 1, 2009
- 18 replies
- Just got a diagnosis of high-grade (4) bladder cancer after a urologist removed the tumor. No health insurance, age 58. Trying to figure out how to pay for the ER/CAT scan, cystoscopy, and surgery. Anyone ...
Question about transfusions
- By cat22 · New reply August 28, 2009
- 14 replies
- Good news: Ben finished his 2nd cycle today. Not so good news, he has to have a transfusion this weekend which I assume is not uncommon. Not sure what to expect, except that it is an all day affair at ...
Intestinal Obstruction
- By birdman · New reply August 10, 2009
- 20 replies
- I just cant seem to give up good food however after my Custo Friday my family had Chinese for lunch,mistake, I only ate half the plate but by 4pm I was miserable and as of Sunday morning it still hasnt ...
Urachus Cancer Stage to Sheldon IIIA
- By mp51643 · New reply August 8, 2009
- 19 replies
- I am looking for other stakeholders including a Urachal Carcinoma had. My cancer was stage IIIA(Sheldon 1984) and this was an invasive cancer. How are you? Find in Germany have no other with whom I can ...
Ben's second chemo delayed - low blood count questions
- By cat22 · New reply August 6, 2009
- 25 replies
- Hi, Ben started chemo last Thursday (Taxol, Carboplatin, Gemzar). Had neupogen injections 3 days following chemo. Was due to have Gemzar only today, but was postponed due to low counts. Since last week ...
Neobladder and UTI
- By birdman · New reply July 23, 2009
- 10 replies
- It seems I cant get over a UTI for long and another is on the way.I noticed a lot of mucus and my stomach was hurting with a little back pain, I assumed my bladder was stopped up so I catherized and released ...
