Living with invasive bladder cancer

Guidance and support for those with muscle-invasive bladder cancer.

Discussions

Delayed Side Effects of Chemotherapy

By tom1127 · New reply yesterday at 4:00 pm
3 replies
A year ago I had finished Chemo treatments of Cisplatin and Etoposide for bladder cancer and was wondering if anyone has experienced delayed side effects of chemo. I was diagnosed with Osteonecrosis of ...

RC is my dads only option

By epjb1 · New reply yesterday at 12:57 pm
14 replies
My dad finally agreed (now at age 82) to have the RC. He was very negative and when we and the dr explained it wasnt an easy ride if he did nothing he decided to have the surgery. Unfortunately, he cannot ...

Leg pain

By donnacogs · New reply yesterday at 9:45 am
13 replies
The newest problem I am having I'd lef pain and a numb toe.Not sure what this is all about but driving me crazy. The worst comes when I want to go to sleep at night. Thinking I should call the chiropractor ...

RC surgeons in Florida

By Derodi · New reply May 16, 2013
28 replies
Does anyone have any recommendations, opinions or any information about surgeons in Florida that perform RC either robotic assisted or open? I have finished chemo and I am getting ready for RC. I want ...

Surgery 6/5 RC

By MelanieCav · New reply May 15, 2013
7 replies
Hi everyone. I've kinda just been lurking lately not posting alot. I wanted to just update everyone. I have found an awesome Uro/Onc at UPMC Shadyside Cancer Center in Pittsburgh, Pa which is right across ...

spot on liver after BCG & Interferon

By jinny · New reply May 9, 2013
7 replies
I just finished BCG with interferon and had a CT abdomen & pelvis scan. It showed a lesion on the right lobe of the liver 2.8 x 3.1. I am having a biopsy this week to determine what exactly this is. Has ...

Well, it could be worse

By Lynfrance · New reply May 8, 2013
9 replies
Yesterday the oncologist told us that the cancer is incurable, but that it has only spread to iliac and inguinal lymph nodes, so is not imminently life threatening. They are doing another scan at the ...

cis long healing after bcg/bladder bx

By ronnie1944 · New reply May 7, 2013
39 replies
This is my second bout of cis. It is five years later and I did bcg 3 treatments at 30% and 1 treatment in the middle 50%. Could not tolerate any more. Last treatment was 9 weeks ago and I still was not ...

Whew!

By graycy · New reply May 4, 2013
6 replies
Clean CT scan last week! Whew! I had been having some pretty stiff "flank" pain which still persists. The doc decided to step up the next CT appt just to be sure. Guess It's muscular pain that's nagging ...

Options - What's right for the individual

By controlfreak · New reply April 29, 2013
7 replies
As some of you may remember my husband was given the option of either radical surgery or radiotherapy and chemotherapy. He was quite fearful of what may be in store for him in keeping his bladder considering ...

Travel

By Fxygoler · New reply April 28, 2013
16 replies
It has been an interesting journey but I am now 6 months past bladder removal. Time to travel and I have questions: What was it like with airport security? How long can you be on a tour, away from bathroom ...

Lymph Nodes

By 1exGunny · New reply April 27, 2013
7 replies
Does the removal/testing of Lymph Nodes (50 in my case) after RC/PC impact your immune system? Does the common cold/cough seem worse than it was prior to the cancer? Do the Lymph Nodes grow back or are ...

Why so many different paths?

By thebulls · New reply April 27, 2013
29 replies
My husband was diagnosed on 8/17/12 and had his bladder removed on 9/11/12. BCAN has been such a huge help to us to see others going through the same things we are, but we always have one question. Why ...

Bladder removal

By boots12 · New reply April 26, 2013
5 replies
Oncology team advised me today that my bladder has to go but first I will have 4 cycles of chemo to clean my system. Can someone tell me what a cycle of chemo consists of ...

just back from consult re chemo

By epjb1 · New reply April 24, 2013
13 replies
My 81 year old father got a second opinion and the dr suggested cisplatin/gemacide? mix for chemotherapy before the RC surgery. The oncologist decided to do some bloodwork first and then the results were ...

Here we go again - Alimta, Aranesp, Neulesta

By limoncello · New reply April 19, 2013
7 replies
As you may be aware, Jack's BC metastasized. It's in the soft tissue of the groin area - around artery and nerves and is inoperable and incurable. He's been able to function quite well since his pain ...

All is good 1 year post PC

By Lis68 · New reply April 17, 2013
7 replies
One year ago I had surgery - partial cystecomy - for muscle invasive bladder cancer and wicked complications due to a clipped ureter that lasted 4 months... Well I'm happy to say my bladder remains all ...

1981 - 1984

By justbill (Inactive) · New reply April 14, 2013
16 replies
One of the things that gave me the greatest satisfaction of all was giving blood. I gave every single time I could. The satisfaction of donating knowing that maybe my blood would save a life, kept me ...

PATRON OF CANCER PATIENTS

By jinny · New reply April 9, 2013
9 replies
Saint Michael of the Saints was a Trinitarian Mystic in 1607. He died at 33 years of age and cured Frances Sanz of cancer on the mouth. This was one of many miracles. I pray a Novena to him at the beginning ...

Bladder cancer stage4

By Sammybuns · New reply April 8, 2013
6 replies
He has been living with neo bladder for 4years now stage 4 for 6 month starting to have to catherize himself so he can urinate ...

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