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Living with invasive bladder cancer
Guidance and support for those with muscle-invasive bladder cancer.
Can someone help me
- By joybob · New reply 9:34 am
- 35 replies
- Does anyone out there have or had T2 or3 grade 3 cancer that spread in muscle wall. That is what my husband has, and they want to do chemo and then RC. We think we are goin g to MD Anderson for surgery ...
Does Anyone Have lternative Treatments to BCG???
- By candreatos · New reply October 27, 2009
- 22 replies
- I am a 66 year old male. I have had 2 surgeries for my bladder. I was recommended BCG and I don't want anything to do with it. I am looking for alternative Treatments. an anyone out there help me ...
Quick Ben Update
- By cat22 · New reply October 26, 2009
- 20 replies
- Ben saw the Oncology nurse practitioner today. She was very pleased with how well he is doing after his first MVAC infusion. His blood tests look really good, although she said they will change over the ...
Ben has completed MVAC Cycle 1.
- By cat22 · New reply October 22, 2009
- 26 replies
- Hi Everyone, I just wanted to let you all know that so far, Ben has done very well. He finished his MVAC at 7pm last night, but remained in the hospital overnight, as they pushed fluids into him for 15 ...
path report
- By joybob · New reply October 18, 2009
- 45 replies
- well MD Anderson just called. She said nodes were clear...however because it was a high grade cancer it does come back often and Bob may need more treatment (chemo) I asked her if it came back would the ...
We're done at MD Anderson, headed for Dose Dense MVAC
- By cat22 · New reply October 14, 2009
- 38 replies
- We're still a little bit in shock. We were handed a sentence this morning (like Candon and Ed) that we weren't quite expecting (months?????) I think we have both been in denial - I know I have been. So ...
"What are some of the strangest comments others have made"
- By Ciboney1 · New reply October 13, 2009
- 73 replies
- I know as we all face each day; we get comments that maybe well meaning but don't get taken that way by us on the receiving end of the comment. Myself after having had Cancer twice w/multiple surgeries ...
Neobladder not Emptying
- By birdman · New reply October 12, 2009
- 25 replies
- My Neobladder is not emptying, The Dr said everything looked good with little mucus,cathed me and got 20+ oz and gave me some Flomax and size 20 catheter and sent me on my way, I voided a little early ...
We've got a plan....
- By cat22 · New reply October 7, 2009
- 20 replies
- We saw Ben's Oncologist today. They have gotten the approvals for the new Chemo (Adriamycin and Gemzar) and Emend. We are optomistic, as the Oncologist told us that the MD Anderson specialist has seen ...
Recurrence
- By marthageorge · New reply October 7, 2009
- 11 replies
- Dx with TA stage (high grade) bladder cancer in April, 2009. Went through the following procedures: Cysto's, Turbs, CT Scans, 6 week BCG treatment's, second opinion. Final outcome: the Cysto's were clear ...
We are in limbo....again
- By cat22 · New reply October 5, 2009
- 23 replies
- We have been trying to get into MD Anderson, but have not yet gotten approval. The request for 3rd opinion was denied, we appealed by phone due to the urgency, and the appeal is being handled thru the ...
Recently diagnosed
- By DRB · New reply October 3, 2009
- 32 replies
- I just found about about a month ago that I have invasive bladder cancer. I am at MD Anderson in Houston. The team of doctors wanted me to do MVAC chemo then have the bladder removed. I am a 41 year old ...
trouble with mitomyacin
- By irishgalway · New reply September 29, 2009
- 2 replies
- hello there again, Just back from what was to be my 3rd mitomyacin treatment. They checked the urine sample and said that there was alot of protein-so much so that they could not give me the treatment ...
Uro Today and comments re RC
- By mycat · New reply September 28, 2009
- 1 reply
- I subscribe to www.urotoday.com and receive copies of new papers written by Urologists world wide on Bladder cancer. Only one in about a dozen are of any interest to me but I find them a great source ...
Trying to mentally get ready for what is ahead
- By Sophiedo · New reply September 28, 2009
- 8 replies
- Hi all, Well, I am well into my chemo sessions. The oncolgist had to change my chemo from cisplatin to carboplatin because it was starting to affect my kidneys, I do get gemzar also. Anyway if all goes ...
Ben is ready to get third opinion at MD Anderson
- By cat22 · New reply September 21, 2009
- 27 replies
- YAY... Ben wants to get a third opinion. Can those of you that have been to MD Anderson please send me names of the doctors you had and your experiences at MD Anderson??? Thank You!!!!! (Can you tell ...
Preparing for surgery, WHAT TO PACK!!!!
- By roadrunner · New reply September 21, 2009
- 12 replies
- There are some members getting ready to head in for surgery,,,it brought to mind what I may have taken had I known I needed it....I thought I had everything for my stay with my husband for the 6 days ...
Kind of Off Topic...But I want to say something
- By spartyman71 · New reply September 21, 2009
- 18 replies
- This week has been very hard for many of us. But I am glad that maybe we helped some of our friends in some way know that somebody truly cares. My mom died May 3rd, in my house, in my arms. She was 92 ...
I'm kinda lost.......Ben Update
- By cat22 · New reply September 19, 2009
- 20 replies
- Ben got his CT and MRI results today. VERY little shrinkage of tumor after two cycles of triple cocktail. New spot on Pelvic bone, most likely cancer. New spots on lungs (doesn't LOOK like cancer). I'm ...
Ben's Chemo not working......
- By cat22 · New reply September 16, 2009
- 35 replies
- Hi. We got the results of Ben's MRI after Cycle 2, very little change. WE were crushed. I REALLY thought he would get a good response. Now RC is probably out of the question. We expected far more, considering ...
