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Life after radical cystectomy
Adjusting to the "new normal" after bladder removal and reconstruction.
AMS 800 implant for incontinence
- By neoman · New reply October 14, 2009
- 18 replies
- After my surgery in Feb 2009, I have not been able to control my neo-bladder at all. Six weeks ago we put in a AMS 800 urinary inplant to assist me deal with severe incontinence. Well, a problem occured ...
Indiana Pouch leaking into vaginal flap
- By jacksmimi · New reply October 13, 2009
- 6 replies
- Hello, I had my RC Aug.11th and the surgery went wonderfull. As soon as all the tubes were out (except SP) I began to learn to use the catheter which was going well, until I began to leak from the vaginal ...
DIFFICULT CIRCUMSTANCES
- By lpeer47 · New reply October 12, 2009
- 84 replies
- Lenore, my wife, developed a UTI after her June 10 radical cystectomy. It was ecoli and went to her bloodstream. She has been in the ICU for about 10 days. She has developed acute respiratory distress ...
Stoma issue
- By mendo_man · New reply October 11, 2009
- 30 replies
- l had a stoma issue yesterday and was wondering if anyone out there has had a simular issue. l was sitting at my desk when l noticed that my stoma had raised or swelled up. Just the stoma. Now this has ...
Disability
- By KellyAnn65 · New reply October 10, 2009
- 6 replies
- I had A radical Cystectomy in Aug 2004. Since then I have had Leaking and depression on and off. With the leaking getting worse to the point I do not leave the house without getting A panic attic. Has ...
Seeking male bc survivors
- By stan1000 · New reply October 10, 2009
- 27 replies
- I would like to get some contacts with male survivors . I had my surgery on July 6, had an iliel conduit and am having a few problems in recovery. I also had one of my kidneys removed a year ago ...
Anna... Surgery Over
- By BJsHere · New reply October 8, 2009
- 38 replies
- UPDATE~ Monday 7 pm CST Anna is still in recovery. The surgery became a bit involved. The findings were quite interesting. It clearly explained her 4 bouts with blockage. So as not to be an alarmist ...
Follow up, different on immune suppression
- By Rarity2 · New reply October 3, 2009
- 12 replies
- I read the discussion about follow up frequency from before. I have a transplanted kidney and so I take immune suppression meds. to prevent rejection. First, is anyone else on this group in my situation ...
Urostomy leg bags
- By edclme0267 · New reply October 3, 2009
- 2 replies
- I would like to hear from those with experience using a urostomy leg bag. I use a Hollister 2 piece barrier & pouch. I am trying a Hollister leg bag. Are other manufacturer's leg bags compatible with ...
ANNA Needs SURGERY . . .
- By BJsHere · New reply September 30, 2009
- 52 replies
- I decided to write a new post as the news has changed. The NG tube was removed. They got all they could get from that process. The problem is still there. The Urologist that did her Neobladder has seen ...
Urostomy travel bag
- By sunshine604 · New reply September 30, 2009
- 20 replies
- Hi - I need advice from those who have had an ileal pouch diversion which empties into a urostomy bag. I have a Urocare bottle which I use for overnight and find it works well. However, now that I'm on ...
STAN1000 - you still out there ??
- By EG-NJMason · Posted September 30, 2009
- 0 replies
- Hi Stan.. are you still out there ? Do you still have questions ?? Eric ...
Radical cystectomy - post sugery conditions
- By lpeer47 · New reply September 29, 2009
- 54 replies
- I have had substantial vaginal bleeding and much pain (doc upped meds to two Darvacet, then to exra-strength Vicadin) since surgery on June 10. I am about 3 1/2 weeks out from surgery. I thought I would ...
WHAT SHOULD WE REALLY BE EATING AFTER RC
- By Keith1 · New reply September 29, 2009
- 29 replies
- I have to wonder if anyone, doctors included, know what we should really be eating after a piece of the intestine has been removed. When it is put back together the chance of scar tissue forming or a ...
Excitement At Sloan-Kettering
- By Gnomic · New reply September 26, 2009
- 18 replies
- Went in to Sloan-Kettering for my six-month post surgical CT Scan results yesterday and looks like I'm clear for next 6 months! HALLELUJAH!!! Upon exiting the hospital's bladder/prostate center, a huge ...
ANNA in the HOSPITAL
- By BJsHere · New reply September 26, 2009
- 95 replies
- A few prayers never hurt anyone. Anna is in the hospital again with another bowel obstruction. She is worried about the Marathon and being able to run. At this time we do not know when she is going to ...
bags?
- By sjbour · New reply September 22, 2009
- 10 replies
- When talking the other night, I asked my husband what is he most afraid of after the surgery. He is in chemo now for 2 more months and will have surgery for ileal conduit probably in mid Dec. He is worried ...
My worst fears came true today.....
- By momofive · New reply September 21, 2009
- 52 replies
- Please forgive me as I'm exhausted so I'm going to cheat a bit here. I started a CaringBridge website for Mark a couple of weeks before surgery so that I could keep friends and family from all over updated ...
dinner anyone????
- By daveyo · New reply September 21, 2009
- 29 replies
- just a quick hit....wondering what i should line the fridge with for my post surgery.... i know about the small meals and easy to digest foods. but, they said during my chemo i would lose my appitite ...
Bag Question
- By Randy799 · New reply September 20, 2009
- 21 replies
- Hi all! Asking a few questions for mom, who has the outside bag now. Does anyone with the bag have any tips for showering with it? Mom has been taping off the top and trying to not get it soaking wet ...
