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Life after radical cystectomy
Adjusting to the "new normal" after bladder removal and reconstruction.
Indiana Pouch users chime in
- By neoman · New reply November 11, 2009
- 18 replies
- I am in a discussion with my Uro about possible post RC options. I have a neo bladder, but am having some issues and we may do some changes. One option is to modify my neo bladder from voiding out the ...
night time question for bag ladies & gents
- By EG-NJMason · New reply November 11, 2009
- 21 replies
- Here's the setup. I have a urostomy with a bag (on my right side where it belongs). I have a nighttime 2 liter on the floor, and a long tube connecting them I sleep on my back (we'll discuss snoring in ...
Can we have some peace please?!!
- By Annasvenska · New reply November 10, 2009
- 19 replies
- I haven't been online for three four days and it seems there has been some issues and angry feelings here. When I joined BCAN/team inspire over a year ago I got an incredible amount of support and value ...
Hormones After Cancer
- By KellyAnn65 · New reply November 9, 2009
- 3 replies
- I was wanting to know if anyone has taken Hormones after there cancer? My sex drive is totally gone to the point it is hurting my marriage. Thank you for any advice ...
The Journey so far
- By Phoenix-George · New reply November 9, 2009
- 2 replies
- We (My wife, who has the cancer, Son & Daughter[in-law], and myself) attended the San Francisco Patient Forum, and considered it one of the most valuable things that we've done. Thought it might be just ...
Fever: Infection or Flu--AN UPDATE
- By DebbieMP · New reply November 5, 2009
- 8 replies
- Hello All: I posted last week about my husband's fever. He had an RC on 8/7 and went with the neobladder. For almost 3 weeks, he had a fever of unknown origin. Finally after much pursuasion, he contacted ...
NEWS FROM LYKE2TRAVEL
- By Keith1 · New reply November 3, 2009
- 5 replies
- I received a message from Lynda today. She had her RC on Oct 19th. 2 weeks ago. She seems to be doing quite well. Motivating the stairs and adjusting to her new bag. Even out in the yard, blowing the ...
Post RC..... Thigh neuropathy in both legs, and pelvic pain while walking.
- By jc3126 · New reply November 1, 2009
- 9 replies
- Hi all, I have not posted since before my RC on Oct. 12..... I have just been too wiped out. Thanks to all for your support during my RC. I have little to no feeling at the top of the thighs. I understand ...
So much waiting
- By DebbieMP · New reply October 29, 2009
- 12 replies
- Hello All: I have been weighing in on your experiences and admire the strength but empathize with the pain and worry brought about by this disease. I'm going to vent for a moment and express how frustrating ...
REALITY CHECK
- By daveyo · New reply October 26, 2009
- 47 replies
- well, as i sit here with my freddy, (my adopted basset hound)....i think about all i read and where i am. i feel ok,,,i have neuropathy in my right leg and in both hands....but i figure, so be it,,,,i ...
Post Neobladder surgery: Infection or the flu
- By DebbieMP · New reply October 26, 2009
- 19 replies
- Hello All: Can't tell you how much information, positive motivation and empathy is shared on this board. Grateful we found you and have posted support a few times but now have a question. My husband had ...
Got home Tuesday
- By jc3126 · New reply October 24, 2009
- 17 replies
- I am home an doing well. Thanks for all of the kind thoughts and prayers. Claudia and other friends took good care of me at the hospital, and continue look after me here. I am doing well, but feel lousy ...
Neobladder, 3 years on...
- By fran1 · New reply October 23, 2009
- 13 replies
- Hi all There has been a lot of discussion about neobladders lately, and I just wanted to let you know how my husband, Richard, is doing. He first had 3 months of chemotherapy, cisplatin and gemcitabine ...
Side affects of RC on bowel
- By Betsygirl · New reply October 22, 2009
- 19 replies
- For those of you who have had an RC and maybe had it done a time ago, are you having any severe bowel distrubances and what have you done about it. I am need of knowing if daily problems is just part ...
Correlations anemia and hypertension
- By Annasvenska · New reply October 21, 2009
- 15 replies
- Hi I have always had a good bloodpressure (except for when delivering babies due to some preeclampsia) but during my hospital stay I was so hypertensive so they put me on Bp meds (toprol) for a while ...
Dreamin'
- By balihigh · New reply October 19, 2009
- 8 replies
- I woke up this morning and realized I had a dream that included me going to the ladies's room and emptying my bag. When I was in high school, my language teacher told us a story about living in France ...
Neobladder Voiding Dysfunction: 11/15 U-Michigan Support Group Meeting
- By RickB · New reply October 19, 2009
- 4 replies
- Voiding dysfunction with a neobladder is the topic at the November 15 meeting of the University of Michigan Bladder Cancer Support Group. The sessions are free and no reservation is necessary. Logistical ...
neo-bladder issues
- By martyofmass · New reply October 16, 2009
- 29 replies
- Hello fellow neo's. Had the R/C at age 52 in March 09. The neo leaked post surgery and I got a horrible staph infection. I lost almost 40 lbs. and the neo would only void(a small amount) during a spasm ...
Stoma issue update
- By mendo_man · New reply October 16, 2009
- 12 replies
- Well, l heard from my surgeon. He stated that since the stoma is a piece of the intestine, it does move and he is not worried. He referred to it as Peristalsis, discribed in part as a radially symmetrical ...
wafer problem
- By grampadonut · New reply October 16, 2009
- 20 replies
- had to increase size of opening for stoma to 1 3/4"..this increased size of flange..because of my job (limo driver) i sit alot , so wafer is right on top on my "roll" !! top of flange seems to pull away ...
