Life after radical cystectomy

Adjusting to the "new normal" after bladder removal and reconstruction.



  • By irishpappy · New reply yesterday at 8:37 pm
  • 11 replies
  • peep's, sorry for the delay in getting back on here last week... the new's is in my peep's..... all 6 month test are done..... Im very, very happy to say... IM CANCER FREE PEOPLE, we've been doing the ...

travelling and in pain

  • By KPDD · New reply yesterday at 6:30 pm
  • 2 replies
  • I had my rc/ic six months ago. I was feeling really good four months after the surgery and had bought tickets to SP tour. I really needed to get out of the house. Week and a half before I left for the ...


  • By Joedan · New reply yesterday at 5:14 pm
  • 6 replies
  • My husband had RC one year ago,followed by chemo regime. He had no symptoms,but was just diagnosed with UTI. Is that common after RC this far out ...

when to move into fiber

  • By ander12 · New reply yesterday at 3:06 pm
  • 5 replies
  • This morning I had an awful bowel movement. Very hard stoole and the. Watery afterwards. I did take 2 stools softners last night as I felt something was not right. Nothing has changed in my low residue ...

penile clamp

  • By Geneura · New reply yesterday at 3:05 pm
  • 7 replies
  • Has anyone tried a penile clamp? My husband is looking into them but are they safe and comfortable ...

artificial sphincter

  • By Geneura · New reply yesterday at 2:58 pm
  • 10 replies
  • Has anyone out there had an artificial sphincter inserted? My husband has had an RC and is suffering from incontinence and this is one of the suggestions but it seems rather invasive ...

night bags

  • By ohhhcrap · New reply yesterday at 9:31 am
  • 8 replies
  • Where can you purchase tubing to extend the night drainage bag. On some of the urostomy sites I've looked the tubing seems very expensive. Just wondering how everyone else extends the night bag tubing ...

A man's point of view on a neo bladder.

  • By Aud53 · New reply yesterday at 9:12 am
  • 11 replies
  • A friend of mine has T3 and will be having surgery next week. The plan is for a neo. He asked me about leaking and I can only tell him from a woman's experience. Easy enough for me to wear a very light ...

Nu-Hope Non-Adhesive bags

  • By wisdomstruggle · New reply April 17, 2014
  • 9 replies
  • It has been one year since my radical cystectomy. I chose to have an ileal conduit and struggled for months with the various adhesive bags. I had constant issues with severely irritated skin. Finally ...


  • By jill1225 · New reply April 17, 2014
  • 4 replies
  • Hi there all. I am not doing many thing have happend in my life but why I am here is I am going to a water park in May this will be my first time back in water like swimming since my surgery ...


  • By irishpappy · New reply April 17, 2014
  • 6 replies
  • hi, was just thinking of all of you on here, ...... word's sometimes just don't flow ...... BLESSED BE EVERYONE'S DAY ...

Weight loss

  • By Baz6123 · New reply April 17, 2014
  • 16 replies
  • Can any one tell me what sort of weight you lose after a radical systo I have been told that you lose quite a bit as you can't eat for a while is this true and how long after the op are you like this ...

bizzy stoma

  • By cajunrage · New reply April 16, 2014
  • 15 replies
  • I have a question for thosewith a ic.i had my rc in feb an i noticed that my stoma moves all the time is this normal ...

Any advice would be helpful

  • By ander12 · New reply April 16, 2014
  • 11 replies
  • I am Currently 2 days shy of 3 weeks post RC/IC. This is what my pouch looks like after only 2 days of wear. We are cutting the opening the size of the stoma and using a hair dryer to dry the skin and ...

Need input

  • By chiprich · New reply April 15, 2014
  • 17 replies
  • I had a RC/Prostate/Lymph node removal on 3/31. 13 hours Robotic. Went home from the hospital on 4/7 I have a Neo-bladder now. Remaining Surgery Pain in minimal The Catheter is uncomfortable and requires ...

Life is Good-Travel in Ireland

  • By bmk798 · New reply April 14, 2014
  • 6 replies
  • Hello Everyone, Haven't been here in a long time! Busy, wonderful life. I have a question and hope anyone can answer it or give me some suggestions. I'm lucky enough to get to travel to Ireland for two ...

Increased acid level

  • By sairam2367 · New reply April 14, 2014
  • 7 replies
  • I am writing this after a while . It's been almost two and a half months and my husband is doing well( almost back to normal life with playing tennis ,appetite back and travel ) Except for last few days ...


  • By Baz6123 · New reply April 14, 2014
  • 7 replies
  • Can any one tell me what are the chances of infection after radical cysto as I am so fed up with the Macmillian people there advert for money is so wrong they tell you that they are there for you and ...

3 Week post surgery leak.

  • By Gotit · New reply April 12, 2014
  • 13 replies
  • 3 weeks post surgery, I was fine without leaks until this past monday and have gone through at least 2 bags per day. The river as I call it is at 4oclock on my belly. I have been using Stomahesive from ...

Flying with an urostomy pouch

  • By SheFishes · New reply April 11, 2014
  • 19 replies
  • I am preparing to fly cross country from CA to DC. I've heard about the card you can get to show security when going through the pat down and security. Thank you ED for such a well written account of ...

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