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Life after radical cystectomy
Adjusting to the "new normal" after bladder removal and reconstruction.
LENORE PEER'S MIRACULOUS RECOVERY
- By lpeer47 · New reply 7:12 pm
- 15 replies
- AFTER 4 MONTHS, LENORE HAS LEFT THE HOSPITAL AND GONE TO DAYTON (OHIO) REHABILITATION INSTITUTE. THIS IS MORE LIKE A HOTEL THAN A HOSPITAL! SHE IS WALKING WITH A WALKER AND A LITTLE HELP FROM THE REHAB ...
Urostomy question
- By edclme0267 · New reply 6:27 pm
- 3 replies
- I had my RC and ileal conduit 13 months ago. Sometimes my stoma bleeds when I am changing my pouch. I am accustomed to this. Over the past several months, I have occasionally noticed very small blood ...
Where I'm at.
- By michaeldbentz · New reply yesterday at 3:13 pm
- 41 replies
- Hey guys, it's been awhile since I've posted so I thought I would update you: R/C was April 6, neobladder busted when fascia broke on April 22. I am still wearing a Depends for leakage and I'm incontinent ...
USC Norris, One fine hospital
- By jc3126 · New reply November 18, 2009
- 13 replies
- Hi all, I am still recovering little by little, and thought that I should give credit to Dr. Boyd, and the fine folks at USC Norris. I had my RC on Oct. 12, and feel that I received first class treatment ...
Is there any indiana pouch people here?
- By ontameable · New reply November 16, 2009
- 14 replies
- I am trying to find indiana pouch people Where are you from? I will start... I live in Moline, Il ...
3 Month check up
- By daveyo · New reply November 16, 2009
- 34 replies
- "David, I can't see anything in your blood work or CT scan that concerns me, your doing extremely well"...Dr Rosenberg (Harvard Medical/Dana Farber) "Dave, you're looking fantastic, your scans are looking ...
Self-Cathing with the Neobladder
- By martyofmass · New reply November 14, 2009
- 4 replies
- Hello Friends, On Thursday I had my first follow up CAT scan since my RC on 3/18/09 and no cancer was seen! They saw a spot on my lung and now I'm scheduled for a PET scan. I'm trying not to worry or ...
Removal of bladder and prostate
- By Dan-Accra · New reply November 12, 2009
- 29 replies
- On 2 November, 2009 I go into Sibley Hospital for removal of my bladder and prostate. I know it is a major operation and will change my life in a big way but I am not too worried about it, leaving all ...
Status on Ind. Pouch Discussion
- By neoman · New reply November 12, 2009
- 3 replies
- I earlier posted a discussion on Indiana Pouch patients to chime in. I want to give you my status my situation. I had a AMS 800 urinary implant put in around August 2, 2009. It turns out the surgeon nicked ...
Now able to walk again
- By jc3126 · New reply November 12, 2009
- 13 replies
- Just a quick update....... I was having trouble with pelvic pain while trying to walk. This started about 2 weeks after RC. (See clip of original post below). I am happy to report that I am now able to ...
Man to man post deleted?
- By EricAndre · New reply November 11, 2009
- 28 replies
- A nice man ask info about intimacy after RC. I wrote a reply but where is it? I spent an hour on that.... With love EricAndre ...
Indiana Pouch users chime in
- By neoman · New reply November 11, 2009
- 18 replies
- I am in a discussion with my Uro about possible post RC options. I have a neo bladder, but am having some issues and we may do some changes. One option is to modify my neo bladder from voiding out the ...
night time question for bag ladies & gents
- By EG-NJMason · New reply November 11, 2009
- 21 replies
- Here's the setup. I have a urostomy with a bag (on my right side where it belongs). I have a nighttime 2 liter on the floor, and a long tube connecting them I sleep on my back (we'll discuss snoring in ...
Can we have some peace please?!!
- By Annasvenska · New reply November 10, 2009
- 19 replies
- I haven't been online for three four days and it seems there has been some issues and angry feelings here. When I joined BCAN/team inspire over a year ago I got an incredible amount of support and value ...
Hormones After Cancer
- By KellyAnn65 · New reply November 9, 2009
- 3 replies
- I was wanting to know if anyone has taken Hormones after there cancer? My sex drive is totally gone to the point it is hurting my marriage. Thank you for any advice ...
The Journey so far
- By Phoenix-George · New reply November 9, 2009
- 2 replies
- We (My wife, who has the cancer, Son & Daughter[in-law], and myself) attended the San Francisco Patient Forum, and considered it one of the most valuable things that we've done. Thought it might be just ...
Help with an incontinence product?
- By jatclt · New reply November 5, 2009
- 6 replies
- I wanted to get some information about a product, a condom with a reservoir, at AlphaDry.com. My husband has a neobladder(May 19, 2009). During the day he is continent except if he moves in a certain ...
Fever: Infection or Flu--AN UPDATE
- By DebbieMP · New reply November 5, 2009
- 8 replies
- Hello All: I posted last week about my husband's fever. He had an RC on 8/7 and went with the neobladder. For almost 3 weeks, he had a fever of unknown origin. Finally after much pursuasion, he contacted ...
NEWS FROM LYKE2TRAVEL
- By Keith1 · New reply November 3, 2009
- 5 replies
- I received a message from Lynda today. She had her RC on Oct 19th. 2 weeks ago. She seems to be doing quite well. Motivating the stairs and adjusting to her new bag. Even out in the yard, blowing the ...
Post RC..... Thigh neuropathy in both legs, and pelvic pain while walking.
- By jc3126 · New reply November 1, 2009
- 9 replies
- Hi all, I have not posted since before my RC on Oct. 12..... I have just been too wiped out. Thanks to all for your support during my RC. I have little to no feeling at the top of the thighs. I understand ...
