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Life after radical cystectomy
Adjusting to the "new normal" after bladder removal and reconstruction.
Help with an incontinence product?
- By jatclt · New reply November 5, 2009
- 6 replies
- I wanted to get some information about a product, a condom with a reservoir, at AlphaDry.com. My husband has a neobladder(May 19, 2009). During the day he is continent except if he moves in a certain ...
Fever: Infection or Flu--AN UPDATE
- By DebbieMP · New reply November 5, 2009
- 8 replies
- Hello All: I posted last week about my husband's fever. He had an RC on 8/7 and went with the neobladder. For almost 3 weeks, he had a fever of unknown origin. Finally after much pursuasion, he contacted ...
night time question for bag ladies & gents
- By EG-NJMason · New reply November 3, 2009
- 19 replies
- Here's the setup. I have a urostomy with a bag (on my right side where it belongs). I have a nighttime 2 liter on the floor, and a long tube connecting them I sleep on my back (we'll discuss snoring in ...
NEWS FROM LYKE2TRAVEL
- By Keith1 · New reply November 3, 2009
- 5 replies
- I received a message from Lynda today. She had her RC on Oct 19th. 2 weeks ago. She seems to be doing quite well. Motivating the stairs and adjusting to her new bag. Even out in the yard, blowing the ...
Post RC..... Thigh neuropathy in both legs, and pelvic pain while walking.
- By jc3126 · New reply November 1, 2009
- 9 replies
- Hi all, I have not posted since before my RC on Oct. 12..... I have just been too wiped out. Thanks to all for your support during my RC. I have little to no feeling at the top of the thighs. I understand ...
Injection shot-
- By birdman · New reply November 1, 2009
- 3 replies
- I am curious about others that inject theirselves after RC. What percentage of erection do you have now vs before surgery. I feel like I am at 85% now with the shot vs 100% before surgery.Can I get it ...
So much waiting
- By DebbieMP · New reply October 29, 2009
- 12 replies
- Hello All: I have been weighing in on your experiences and admire the strength but empathize with the pain and worry brought about by this disease. I'm going to vent for a moment and express how frustrating ...
Removal of bladder and prostate
- By Dan-Accra · New reply October 28, 2009
- 21 replies
- On 2 November, 2009 I go into Sibley Hospital for removal of my bladder and prostate. I know it is a major operation and will change my life in a big way but I am not too worried about it, leaving all ...
Indiana Pouch users chime in
- By neoman · New reply October 26, 2009
- 16 replies
- I am in a discussion with my Uro about possible post RC options. I have a neo bladder, but am having some issues and we may do some changes. One option is to modify my neo bladder from voiding out the ...
REALITY CHECK
- By daveyo · New reply October 26, 2009
- 47 replies
- well, as i sit here with my freddy, (my adopted basset hound)....i think about all i read and where i am. i feel ok,,,i have neuropathy in my right leg and in both hands....but i figure, so be it,,,,i ...
Post Neobladder surgery: Infection or the flu
- By DebbieMP · New reply October 26, 2009
- 19 replies
- Hello All: Can't tell you how much information, positive motivation and empathy is shared on this board. Grateful we found you and have posted support a few times but now have a question. My husband had ...
Got home Tuesday
- By jc3126 · New reply October 24, 2009
- 17 replies
- I am home an doing well. Thanks for all of the kind thoughts and prayers. Claudia and other friends took good care of me at the hospital, and continue look after me here. I am doing well, but feel lousy ...
Neobladder, 3 years on...
- By fran1 · New reply October 23, 2009
- 13 replies
- Hi all There has been a lot of discussion about neobladders lately, and I just wanted to let you know how my husband, Richard, is doing. He first had 3 months of chemotherapy, cisplatin and gemcitabine ...
Side affects of RC on bowel
- By Betsygirl · New reply October 22, 2009
- 19 replies
- For those of you who have had an RC and maybe had it done a time ago, are you having any severe bowel distrubances and what have you done about it. I am need of knowing if daily problems is just part ...
Correlations anemia and hypertension
- By Annasvenska · New reply October 21, 2009
- 15 replies
- Hi I have always had a good bloodpressure (except for when delivering babies due to some preeclampsia) but during my hospital stay I was so hypertensive so they put me on Bp meds (toprol) for a while ...
Dreamin'
- By balihigh · New reply October 19, 2009
- 8 replies
- I woke up this morning and realized I had a dream that included me going to the ladies's room and emptying my bag. When I was in high school, my language teacher told us a story about living in France ...
Neobladder Voiding Dysfunction: 11/15 U-Michigan Support Group Meeting
- By RickB · New reply October 19, 2009
- 4 replies
- Voiding dysfunction with a neobladder is the topic at the November 15 meeting of the University of Michigan Bladder Cancer Support Group. The sessions are free and no reservation is necessary. Logistical ...
Stomach Noises=Intestinal blockages
- By birdman · New reply October 17, 2009
- 2 replies
- Just returned from beach fishing trip yesterday and was talking to wife about not having any blockages in three weeks,starting hearing all the noises and told her one was on the way. Laid in bed all night ...
neo-bladder issues
- By martyofmass · New reply October 16, 2009
- 29 replies
- Hello fellow neo's. Had the R/C at age 52 in March 09. The neo leaked post surgery and I got a horrible staph infection. I lost almost 40 lbs. and the neo would only void(a small amount) during a spasm ...
Stoma issue update
- By mendo_man · New reply October 16, 2009
- 12 replies
- Well, l heard from my surgeon. He stated that since the stoma is a piece of the intestine, it does move and he is not worried. He referred to it as Peristalsis, discribed in part as a radially symmetrical ...
