Adjusting to the "new normal" after bladder removal and reconstruction.
- By roadrunner · New reply yesterday at 6:05 pm
- 4 replies
- Recently I wrote about my husband having groin and pelvic area pain,,well it turns out to be a hernia,, his feeling is that after one year now from his r/c that he has let himself strain to many times ...
- By kidzpastordave · New reply yesterday at 12:42 pm
- 5 replies
- I'm 5 weeks post-op from receiving my neobladder and my Foley Catheter is FINALLY coming out on Friday! I'm both excited and worried about this, and was wondering if those of you who have been thruough ...
- By balihigh · New reply November 16, 2008
- 6 replies
- I have decided it is time to reflect on this journey I have been on with bladder cancer. I first found blood in my urine on Jan. 5, 2008. There was lots of blood and clots too. Somehow I knew immediately ...
- By kidzpastordave · New reply November 15, 2008
- 10 replies
- I'm 4 weeks post-op from an RC and have been given a neo-bladder which seems to be working fine. One complication I had was that my femoral nerves did not seem to appreciate being stretched out for 11 ...
- By michaeldbentz · New reply November 10, 2008
- 20 replies
- My cancer has returned. I have only been diagnosed since last December with 3 recurrences. The doctor says that this is an indicator of invasive disease even though muscle samples have not shown cancer ...
- By Tacoma · New reply November 2, 2008
- 8 replies
- I am a 60 year old female having an r/c on Friday, 10/24. I chose the ileal conduit. I would like to hear from other women who chose this ...
- By Dankar · New reply November 1, 2008
- 22 replies
- I must make the difficult decide between IN pouch or bag in the next few days. The pouch sounds good to me because of not having a bag nor a tube at night. But what is it really like to cath the pouch ...
- By David_100 · New reply October 20, 2008
- 1 reply
- Now I do not have a bladder nor prostate, do I produce sperm? If so, is there a way of 'extracting' it being as I do not now ejaculate ? David ...
- By roadrunner · New reply October 11, 2008
- 12 replies
- I went on and on about how men deal with this issue as it was my husband, not to be forgotten are the women who have an r/c,their life is changed as well,depending on the deversion, all sorts of scenarios ...
- By roadrunner · New reply October 7, 2008
- 7 replies
- Something we didn't think about when approaching my husbands r/c was what our life would be like sexually afterwards. It was not priority ONE, I think I said who cares, he will be alive.....that puts ...
- By balihigh · New reply September 27, 2008
- 53 replies
- I am starting a new thread this morning because I have so much to tell all of you. I will not do it all at one time because as you know, I was just released from the hospital on Friday and am recuping ...
- By grampadonut · New reply September 26, 2008
- 4 replies
- its been 2 mos since operation (i'm a bagger)..had stables remove about 1 mo ago..but now "scar" is really senstive/itchy any ideas thanking everone in advance peter ...
- By roadrunner · New reply September 24, 2008
- 3 replies
- I posted a journal about my husbands ordeal with bladder cancer...I stated the facts, how we found out, and how we proceeded with surgery. And finally that after one year he is still cancer free. One ...
- By spartyman · New reply September 22, 2008
- 32 replies
- I first had bladder CA 15 yrs. ago and had surgery nd then BCG. All was well until Dec. pf 2007 and CA returned . I had to have a radical cystectomy in Jan. of 2007. I am 59. The urologist says that my ...
- By ilovemymom · New reply September 21, 2008
- 4 replies
- Well she finally listened and had had enough when the urologist office called and wanted her to pick up two more antibiotics (would have been prescription #6 and #7 since end of April) She told them no ...
- By balihigh · New reply September 19, 2008
- 9 replies
- Am I getting too wordy in my story? I am worried that I am taking up too much space. Please let me know if my story is of interest to you. love, Nancy ...
- By family1 · New reply September 18, 2008
- 9 replies
- Mom comes home from the hospital tomorrow after having an RC, ileal conduit. She will be staying with us until she is all healed up and ready to be on her own again. I'm guessing about 5 weeks. Any words ...
- By balihigh · New reply September 14, 2008
- 10 replies
- I just got home from the hospital this morning and have so much to report to you. I have missed everyone on this site soooo much. Right now I am basically just going to say that my RC went smoothly, I ...
- By catbug01 · New reply August 22, 2008
- 12 replies
- Hello I had my cysto May 1st and thought that things would be so much better now. but I am finding that I am still having a lot of urinary tract infections. Has anyone else had the same problems? I guess ...
- By letsbeatit · New reply August 19, 2008
- 2 replies
- Has anyone had a RC who has had IBS before? If so, did you have any problems after your RC? Thanks ...
