Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Life after radical cystectomy

Adjusting to the "new normal" after bladder removal and reconstruction.

Help with an incontinence product?

jatclt
  • By jatclt · New reply November 5, 2009
  • 6 replies
  • I wanted to get some information about a product, a condom with a reservoir, at AlphaDry.com. My husband has a neobladder(May 19, 2009). During the day he is continent except if he moves in a certain ...

Fever: Infection or Flu--AN UPDATE

DebbieMP
  • By DebbieMP · New reply November 5, 2009
  • 8 replies
  • Hello All: I posted last week about my husband's fever. He had an RC on 8/7 and went with the neobladder. For almost 3 weeks, he had a fever of unknown origin. Finally after much pursuasion, he contacted ...

night time question for bag ladies & gents

EG-NJMason
  • By EG-NJMason · New reply November 3, 2009
  • 19 replies
  • Here's the setup. I have a urostomy with a bag (on my right side where it belongs). I have a nighttime 2 liter on the floor, and a long tube connecting them I sleep on my back (we'll discuss snoring in ...

NEWS FROM LYKE2TRAVEL

Keith1
  • By Keith1 · New reply November 3, 2009
  • 5 replies
  • I received a message from Lynda today. She had her RC on Oct 19th. 2 weeks ago. She seems to be doing quite well. Motivating the stairs and adjusting to her new bag. Even out in the yard, blowing the ...

Post RC..... Thigh neuropathy in both legs, and pelvic pain while walking.

jc3126
  • By jc3126 · New reply November 1, 2009
  • 9 replies
  • Hi all, I have not posted since before my RC on Oct. 12..... I have just been too wiped out. Thanks to all for your support during my RC. I have little to no feeling at the top of the thighs. I understand ...

Injection shot-

birdman
  • By birdman · New reply November 1, 2009
  • 3 replies
  • I am curious about others that inject theirselves after RC. What percentage of erection do you have now vs before surgery. I feel like I am at 85% now with the shot vs 100% before surgery.Can I get it ...

So much waiting

DebbieMP
  • By DebbieMP · New reply October 29, 2009
  • 12 replies
  • Hello All: I have been weighing in on your experiences and admire the strength but empathize with the pain and worry brought about by this disease. I'm going to vent for a moment and express how frustrating ...

Removal of bladder and prostate

Dan-Accra
  • By Dan-Accra · New reply October 28, 2009
  • 21 replies
  • On 2 November, 2009 I go into Sibley Hospital for removal of my bladder and prostate. I know it is a major operation and will change my life in a big way but I am not too worried about it, leaving all ...

Indiana Pouch users chime in

neoman
  • By neoman · New reply October 26, 2009
  • 16 replies
  • I am in a discussion with my Uro about possible post RC options. I have a neo bladder, but am having some issues and we may do some changes. One option is to modify my neo bladder from voiding out the ...

REALITY CHECK

daveyo
  • By daveyo · New reply October 26, 2009
  • 47 replies
  • well, as i sit here with my freddy, (my adopted basset hound)....i think about all i read and where i am. i feel ok,,,i have neuropathy in my right leg and in both hands....but i figure, so be it,,,,i ...

Post Neobladder surgery: Infection or the flu

DebbieMP
  • By DebbieMP · New reply October 26, 2009
  • 19 replies
  • Hello All: Can't tell you how much information, positive motivation and empathy is shared on this board. Grateful we found you and have posted support a few times but now have a question. My husband had ...

Got home Tuesday

jc3126
  • By jc3126 · New reply October 24, 2009
  • 17 replies
  • I am home an doing well. Thanks for all of the kind thoughts and prayers. Claudia and other friends took good care of me at the hospital, and continue look after me here. I am doing well, but feel lousy ...

Neobladder, 3 years on...

fran1
  • By fran1 · New reply October 23, 2009
  • 13 replies
  • Hi all There has been a lot of discussion about neobladders lately, and I just wanted to let you know how my husband, Richard, is doing. He first had 3 months of chemotherapy, cisplatin and gemcitabine ...

Side affects of RC on bowel

Betsygirl
  • By Betsygirl · New reply October 22, 2009
  • 19 replies
  • For those of you who have had an RC and maybe had it done a time ago, are you having any severe bowel distrubances and what have you done about it. I am need of knowing if daily problems is just part ...

Correlations anemia and hypertension

Annasvenska
  • By Annasvenska · New reply October 21, 2009
  • 15 replies
  • Hi I have always had a good bloodpressure (except for when delivering babies due to some preeclampsia) but during my hospital stay I was so hypertensive so they put me on Bp meds (toprol) for a while ...

Dreamin'

balihigh
  • By balihigh · New reply October 19, 2009
  • 8 replies
  • I woke up this morning and realized I had a dream that included me going to the ladies's room and emptying my bag. When I was in high school, my language teacher told us a story about living in France ...

Neobladder Voiding Dysfunction: 11/15 U-Michigan Support Group Meeting

RickB
  • By RickB · New reply October 19, 2009
  • 4 replies
  • Voiding dysfunction with a neobladder is the topic at the November 15 meeting of the University of Michigan Bladder Cancer Support Group. The sessions are free and no reservation is necessary. Logistical ...

Stomach Noises=Intestinal blockages

birdman
  • By birdman · New reply October 17, 2009
  • 2 replies
  • Just returned from beach fishing trip yesterday and was talking to wife about not having any blockages in three weeks,starting hearing all the noises and told her one was on the way. Laid in bed all night ...

neo-bladder issues

martyofmass
  • By martyofmass · New reply October 16, 2009
  • 29 replies
  • Hello fellow neo's. Had the R/C at age 52 in March 09. The neo leaked post surgery and I got a horrible staph infection. I lost almost 40 lbs. and the neo would only void(a small amount) during a spasm ...

Stoma issue update

mendo_man
  • By mendo_man · New reply October 16, 2009
  • 12 replies
  • Well, l heard from my surgeon. He stated that since the stoma is a piece of the intestine, it does move and he is not worried. He referred to it as Peristalsis, discribed in part as a radially symmetrical ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

Group leaders

You