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Caregivers corner

Share thoughts, experience and support with others whose loved ones are living with bladder cancer.

Experience during RC/neo surgery - Caregiving

daughter-of-neo
  • By daughter-of-neo · Posted October 2, 2009
  • 0 replies
  • Hi, all - Thought I'd post some thoughts on my experience with caregiving with my family as my dad was diagnosed with BC and had a RC and now has a neobladder. I started writing a short discussion here ...

Has anyone heard from Candon?

cat22
  • By cat22 · New reply October 1, 2009
  • 32 replies
  • Just wondering if anyone has heard from Candon and Ed. I think Ed was starting MVAC on Thursday? Cathy ...

October,,,,,,,surgeries and procedures?

roadrunner
  • By roadrunner · New reply September 28, 2009
  • 25 replies
  • Does this mean Christmas is just around the corner? Anyone having surgery or procedures let me know the date,,I will then put you on the calendar so we can keep track,,,,and send some good charma,,,prayers ...

another leaky bag.............

joybob
  • By joybob · New reply September 28, 2009
  • 28 replies
  • well, I was packing to get ready for our flight tomorrow, and the new bag the nurse put on yesterday started to leak. Poor Bob hasn't had a bag stay on for more then 2 days, now he won't go out to dinner ...

I Need Emotional Help from All of you

soffie
  • By soffie · New reply September 24, 2009
  • 28 replies
  • Hi Everyone, I don't know where to begin on this post, I need help so desperately with my emotional state of mind.First of all let me begin by saying thank you to everyone who responded to my last post ...

NeoBladder issues 10 years post surgery

Bear25
  • By Bear25 · New reply September 24, 2009
  • 12 replies
  • My husband was diagnosed with bladder cancer in the summer of 1999. The Dr. removed his bladder and prostate and created his neobladder from his lower intestine. He had some incontinence for the first ...

September calendar.....take a look~~~

roadrunner
  • By roadrunner · New reply September 23, 2009
  • 47 replies
  • Here it is September,ALREADY....... Heres our schedule of events for those having tests and surgery,,,,Karenanne having an r/c,and joycee husband,,,as well,,,others bcg,cyso's etc...... If I missed you ...

Karenanne,,update

roadrunner
  • By roadrunner · New reply September 22, 2009
  • 3 replies
  • Good news,I heard from Karenanne today,,,,I had messaged her as her r/c was earlier this month,,, She is home,,,,had a little longer stay than usual but doing fine,,, I am sure she will be on soon to ...

New here :) Husband has bladder cancer

amblette
  • By amblette · New reply September 22, 2009
  • 15 replies
  • Hi Everyone! I just happened to run across this website and find this support community. I have already spent an hour looking through the various discussions and am feeling very informed and happy to ...

When things go wrong, picking up the pieces,

roadrunner
  • By roadrunner · New reply September 20, 2009
  • 41 replies
  • Everyone is aware of the last two weeks,, and how sad things have been here on the forum for some of our family. So now,we pick ourselves up and we go on,,,very hard for some, like Michelle and Mary,,,and ...

R/C'S,,Joycees husband Sept.14th,,Karenanne,,Sept 8th..

roadrunner
  • By roadrunner · New reply September 13, 2009
  • 8 replies
  • Hopes that Karenanne is doing well after her r/c, And many prayers to Joycee,she has done her homework and is prepared for hubby's r/c the 14th... Our purpose is to help others find all the knowledge ...

Mary and Dennis....

roadrunner
  • By roadrunner · New reply September 12, 2009
  • 26 replies
  • I received a phone call tonite from Mary: She asked for me to give you this message: Friends, I lost my husband Dennis on Monday,,9:02pm.......he fought hard as a warrior to beat this bladder cancer but ...

Struggling with bladder cancer

soffie
  • By soffie · New reply September 11, 2009
  • 23 replies
  • Thought I would spill out how I really feel tonight and see if I can get some feedback that may help. My husband Greg was supposed to start bcg last Friday but he developed bronchitis and has been so ...

September.....surgeries and tests? give us your info for the calendar..

roadrunner
  • By roadrunner · New reply September 11, 2009
  • 36 replies
  • HARD TO BELIEVE...... ANOTHER MONTH HAS PASSED US BY....... Those of you having tests or surgerys let us know here so I can put you on the calendar,,,, Of course we will surround you with prayer and walk ...

ITS HUMOR TIME AGAIN!!!!

roadrunner
  • By roadrunner · New reply September 11, 2009
  • 31 replies
  • Well its always nice to cheer ourselves up once in awhile!!!! Many have procedures this month so remember them,,,,and maybe our posts here will bring a smile to their face as well......... Here goes ...

Mom home from her R/C

Randy799
  • By Randy799 · New reply September 11, 2009
  • 9 replies
  • Mom got home last night from her R/C. This has been a crazy couple of months from dx on July 9th to getting out of the hospital from her r/c with a new bag on September 9th. I could tell mom was ready ...

New Prayer Request for Lenore & Herb

vtom
  • By vtom · New reply September 10, 2009
  • 9 replies
  • Hey everyone: Back on August 19th our sweet angel Ginger started a prayer chain for Lenore and Herb. Lenore had her RC back in June - and with the exception of 2 weeks has been in ICU with an e coli infection ...

Good website for stroke info????

cat22
  • By cat22 · New reply September 7, 2009
  • 15 replies
  • I am thankful that Ben has been doing pretty good on chemo (trying to reduce him from T4 to anything that will get him the OK to get his bladder out.) I just started to relax just a little bit. Wednesday ...

Superficial non invasive,,,,,how do you deal with bcg etc.?

roadrunner
  • By roadrunner · New reply September 6, 2009
  • 41 replies
  • Since being in this world of bladder cancer,,,I think about those who have the superficial,,,non invasive,,,how do you handle the constant upkeep,,,,? We went right for the surgery,,,but those of you ...

Okay....RANDY IS DOING WELL!!! After his R/C

roadrunner
  • By roadrunner · New reply September 5, 2009
  • 18 replies
  • NEWS FLASH!!!! RANDY HAD HIS SURGERY, and is doing well... Thats such good news,,,we have spoken to him 3 times already,,surgery was friday,,he asked for his laptop on Sunday,,,,,thats always a sure sign ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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