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Caregivers corner

Share thoughts, experience and support with others whose loved ones are living with bladder cancer.

The Face of Bladder Cancer

roadrunner
  • By roadrunner · New reply November 1, 2009
  • 3 replies
  • Some newbies on the site may not how much has happened over the last year with inspire and BCAN...if you look to the right it gives you some of the functions that have taken place..one was the conference ...

Thanks

mycopper
  • By mycopper · New reply October 31, 2009
  • 14 replies
  • Instead of whining like I'm apt to do I would like to thank everyone who takes the time to talk with each other. You all have been and are and will be so helpful. My husband won't get on line and chat ...

Patrick Swayzees wife on Oprah...

roadrunner
  • By roadrunner · New reply October 31, 2009
  • 9 replies
  • Generally I am not a TV in the afternoon person, it was worthwhile today as I caught his wife talking about his fight with cancer.. Of course she had many tears, as she rememebed how they as a couple ...

Calendar for October......take a look

roadrunner
  • By roadrunner · New reply October 29, 2009
  • 59 replies
  • Heres the whose who for October! October 1rst......Sincerely2.chemo,,,, October 3rd.......PattyL.........chemo October 4th.......Nancynurse....cysto October 5th.......RLayne.....check up after r/c October ...

Quick Question

cat22
  • By cat22 · New reply October 26, 2009
  • 8 replies
  • My friends husband has just been told he has cancer of the liver. I want to save her time, and was wondering if any of you can recommend a good site to start researching liver cancer? I get several responses ...

Discussions

nancynursez637
  • By nancynursez637 · New reply October 26, 2009
  • 11 replies
  • Part of one of my posts got edited in the reposting of support for Katz. Which is fine. But I thought I would repost a couple things that might help us all. Remember when posting, we do not have the benefit ...

Problem after 6th BCG treatment

soffie
  • By soffie · New reply October 25, 2009
  • 12 replies
  • Hi Everyone!!!! I know it has been awhile since I have posted but my life has been crazy since Greg's 5th BCG treatment. At this moment he is in the hospital with an ileus (intestional blockage) and I ...

You have a time-machine, where will it take you?

roadrunner
  • By roadrunner · New reply October 25, 2009
  • 19 replies
  • I asked my husband this question, He said, well I wish we could all go back, be without cancer, but since we can't do that I would go back to the 50'S....HIS SECOND CHOICE.The early 1800"s....THE WILD ...

Its mid-month,,,r/c's honcho2,pepsicolarocks,lyk2travel!!!

roadrunner
  • By roadrunner · New reply October 22, 2009
  • 24 replies
  • Well its mid-October,,,halfway through the calendar,,, Lets remember the ones having tests and surgeries the end of the month coming up,,,, Good luck, lots of charma, and prayers as well,,, For those ...

Good bye

jack6531
  • By jack6531 · New reply October 20, 2009
  • 29 replies
  • Good bye from Jack and his wife. We will face stage 4 BC in a venue which allows all types of opinions to be stated. Jack & Jackie ps I hope this is not removed as were all my other notes. Good luck and ...

No patience (no pun intended.

mycopper
  • By mycopper · New reply October 20, 2009
  • 18 replies
  • I am I the only one that wants to smack the next person who acts like we are stupid about bladder cancer, I'm talking medical staff ...

Prayers for Lenore and Herb....!

roadrunner
  • By roadrunner · New reply October 19, 2009
  • 69 replies
  • One of my caregivers needs our prayers,,,his wife Lenore is still struggling to get well after an ecoli infection and pnuemonia,,post her r/c in June,she is in the hospital for awhile now....... Herb ...

What did you do for your sweetie today?

roadrunner
  • By roadrunner · New reply October 19, 2009
  • 27 replies
  • Surprise,,,, Do you ever just surprise your other with a surprise,,,,? Maybe because you just love them,,, How important is it to address emotional needs, not selfish needs,,,just maybe that little thing ...

Our weekend,,,and now H1N1.........

roadrunner
  • By roadrunner · New reply October 17, 2009
  • 26 replies
  • Somebody asked whose getting the H1N1 flu shot,,, OH,YEAH IT WAS ME!!! Friday was quite a day, Chemo with Gene's brother and his wife,,,,his brother is getting the 5fu,and 2 other components for mets ...

jc3126

Lostgypsy
  • By Lostgypsy · New reply October 14, 2009
  • 15 replies
  • John's surgery went well yesterday. He got his neo bladder . The doctor is very optimistic that the pathology report will be good. We won't know until late tomorrow. John is out of ICU and in a private ...

Thank you Lynda. You're the best!!!!!

cat22
  • By cat22 · New reply October 12, 2009
  • 17 replies
  • Ben and I arrived in Houston last night. Lynda was right there this morning to pick us up at our hotel, and give us the Grand Tour of MDA Mays Clinic. What a huge help this will be for us in the morning ...

John's surgery tomorrow

Lostgypsy
  • By Lostgypsy · New reply October 12, 2009
  • 14 replies
  • Today is a big day. I've taken JC (JC3126) to USC Norris for his pre op stuff. It has been really, really scarey for John to be in this position. He has always been in so much control of everything, so ...

Taking a poll,who's getting the swine flu shot?

roadrunner
  • By roadrunner · New reply October 8, 2009
  • 68 replies
  • Well, NOT ME ,,,,I figure it this way,I have never had a flu shot,haven't had the flu for years,so why now...,Gene is making up his mind but I bet not,,,how do all of you feel about it,,,especially having ...

We're going to MD Anderson!!!!!

cat22
  • By cat22 · New reply October 7, 2009
  • 15 replies
  • We just heard from MDA. Ben will be seeing Dr Siefker on Monday. So... Ben starts new chemo on Friday, we will stay at the hotel near San Francisco airport that night, then fly to Houston on Saturday ...

Getting to MD Anderson

cat22
  • By cat22 · New reply October 7, 2009
  • 10 replies
  • Still hoping to get to MD Anderson soon. Trying to plan flights. Which airport is the most convenient, less hectic, etc: Houston Hobby or Houston International? Thank you!!!!!! Cathy ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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