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Caregivers corner

Share thoughts, experience and support with others whose loved ones are living with bladder cancer.

NOVEMEBER CALENDAR......take a look....

roadrunner
  • By roadrunner · New reply 12:55 am
  • 34 replies
  • Thanksgiving is near...we have much to be grateful for....a whole cast of people here on the forum...willing to help each other. On to November......here is the calendar of who is doing what and when...tests ...

looking for support

aecann
  • By aecann · New reply 12:40 am
  • 9 replies
  • I can only describe myself as frustrated. Bill's bladder was removed mid Oct along with prostate, lymph nodes and some amount of muscle. Is any one else who has been given some amount of charge over said ...

diet

aecann
  • By aecann · New reply yesterday at 10:39 pm
  • 2 replies
  • Bill will be 7 weeks post op for r/c and besides getting a handle on the stoma gear it is mostly his gut that is his biggest complaint. The re-section is doing OK no leaking! I am still working so Bill ...

DECEMBER...who's having surgery or tests? last calendar!!!

roadrunner
  • By roadrunner · New reply yesterday at 2:33 pm
  • 22 replies
  • The last Month of the year, December brings the Holidays, and a close to the year, 2010...hopefully will be a good year for all here on inspire.......... If you are having surgery or tests in December ...

November.....who's having tests or surgery?Let us know....

roadrunner
  • By roadrunner · New reply November 20, 2009
  • 33 replies
  • Yikkkeees...its almost NOVEMBER!!!! All of you who are having any type of tests, or surgery, please let me know here,, in a few days, you will see the CALENDAR FOR NOVEMBER.... Along with prayers for ...

Gentleman,,have you had this problem?

roadrunner
  • By roadrunner · New reply November 20, 2009
  • 19 replies
  • Well another dilemma, I was wondering if after your r/c you have a problem with your testsicles swelling? My husbnad has one double the size of the other,and........is tender to the touch....I belive ...

THANKSGIVING ....what it means to you!!!

roadrunner
  • By roadrunner · New reply November 19, 2009
  • 7 replies
  • Is it turkey ? stuffing.....mashed potatoes, cole slaw, cranberries,sweet potatoes, cranberries, pumkin pie? And before the feast, what will you say, what will be your prayer. Its tough in this economy ...

TEST RESULTS- DAVID

WOLFLADY
  • By WOLFLADY · New reply November 18, 2009
  • 13 replies
  • GOOD NEWS ! Looks like we can breathe for awhile everyone has been so kind an interesting on this site. David saw his urologist on Friday, was told "anomalies" on FISH test were of no concern, tho David ...

When you were a kid, you remember______________..

roadrunner
  • By roadrunner · New reply November 16, 2009
  • 23 replies
  • Well I for sure never heard of Bladder Cancer, Or any cancer for that matter.... On a lighter note,what do you remember that makes you smile, when you were a kid.. I remember playing outside til dark ...

New Caregiver - would like advice

Eudys-Annie
  • By Eudys-Annie · New reply November 12, 2009
  • 18 replies
  • My finance and I have already been through a month long ordeal leading up to his diagnosis of bladder cancer. I will never forget the look on the Dr. 's face me as he handed me a picture of Jeff's bladder ...

New caregiver looking for support

TrippinToni
  • By TrippinToni · New reply November 12, 2009
  • 15 replies
  • I am not sure if I am in the right place. My mom has RCC and had a kidney removed with spots found on her liver and lung. She has had three MVAC treatments and I do not see anything saying MVAC is for ...

fish test

WOLFLADY
  • By WOLFLADY · New reply November 10, 2009
  • 7 replies
  • David has been doing well for 1 year after a kidney removal 2 years ago has had a cpuple of "insignifigant tumors" (DR choice of words) had 5 months of chemo, inturrupeted by pneumonia and bcg x 2. for ...

Seriously.....how did you accept loosing your bladder?

roadrunner
  • By roadrunner · New reply November 9, 2009
  • 36 replies
  • It was a beautiful sunny day, we were sitting in the backyard, my husband starting crying,and said, "Something is really wrong"....hence his journey started over the next 2 years.... His story one of ...

Our Caregiver for Lenore....HERB!!!

roadrunner
  • By roadrunner · New reply November 6, 2009
  • 18 replies
  • JUST AN UPDATE, In June, Lenore had a radical cystectomy, having complications she has remained in the hospital over 100 days now. Herb, well, he still has hope, she has had an up and down situation ...

POSITIVE FISH TEST

KIMKAY
  • By KIMKAY · New reply November 1, 2009
  • 14 replies
  • MY HUSBAND HAD HIS CYSTO 2 WEEKS AGO. ALL WAS CLEAR, THEN YESTERDAY HIS DR CALLED AND SAID THE FISH TEST WAS POSITVIE AND WANTS HIM BACK IN THREE MONTHS. THIS IS THE FIRST FISH TEST THAT HE HAS EVER HAD ...

BOO!!!Time for some fun..ITS HALLOWEEN!!!

roadrunner
  • By roadrunner · New reply November 1, 2009
  • 30 replies
  • Its me, Ginger, coming to you from the caregiver corner...Gene is sitting here with me, the news is over so were on to discussing this.... If he and I were kids, and tomorrow we would be going TRICK OR ...

The Face of Bladder Cancer

roadrunner
  • By roadrunner · New reply November 1, 2009
  • 3 replies
  • Some newbies on the site may not how much has happened over the last year with inspire and BCAN...if you look to the right it gives you some of the functions that have taken place..one was the conference ...

Thanks

mycopper
  • By mycopper · New reply October 31, 2009
  • 14 replies
  • Instead of whining like I'm apt to do I would like to thank everyone who takes the time to talk with each other. You all have been and are and will be so helpful. My husband won't get on line and chat ...

Patrick Swayzees wife on Oprah...

roadrunner
  • By roadrunner · New reply October 31, 2009
  • 9 replies
  • Generally I am not a TV in the afternoon person, it was worthwhile today as I caught his wife talking about his fight with cancer.. Of course she had many tears, as she rememebed how they as a couple ...

Calendar for October......take a look

roadrunner
  • By roadrunner · New reply October 29, 2009
  • 59 replies
  • Heres the whose who for October! October 1rst......Sincerely2.chemo,,,, October 3rd.......PattyL.........chemo October 4th.......Nancynurse....cysto October 5th.......RLayne.....check up after r/c October ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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