Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Recommended

Follow Inspire on Twitter and Facebook!

TeamInspire
  • By TeamInspire · Posted June 10, 2009
  • Journal · 12 recommendations
  • We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...

Where I'm at.

michaeldbentz
  • By michaeldbentz · Posted November 13, 2009
  • Discussion in Life after radical cystectomy · 5 recommendations
  • Hey guys, it's been awhile since I've posted so I thought I would update you: R/C was April 6, neobladder busted when fascia broke on April 22. I am still wearing a Depends for leakage and I'm incontinent ...

American Society of Clinical Oncology

15yrsurvivor
  • By 15yrsurvivor · Posted November 20, 2009
  • Journal · 2 recommendations
  • Today, I received my fall newsletter from the Bloch Cancer Hotline, where I am a telephone volunteer. The newsletter introduced me to a website I have never seen, and it is a great source of information ...

The Incidence of Smoking-related Bladder Cancer May Be Increasing

Ciboney1
  • By Ciboney1 · Posted November 20, 2009
  • Discussion in Taking charge: How to be a proactive patient · 2 recommendations
  • Article on Smoking and relationship to Bladder Cancer. Smokers may have interest in this article from "Caring for Cancer" Web Site.. http://www.caring4cancer.com/go/cancer/n ews?NewsItemId=44306 Arlene ...

Med Supplies~ What are These? Oh, and Real Directions?

BJsHere
  • By BJsHere · Posted March 26, 2009
  • Discussion in Life after radical cystectomy · 2 recommendations
  • I have discovered a new frustration... Trying to figure out what the "goodies" are that the Med Supply Houses send for Samples! Not only that, when I get the actual supplies I need I can't figure some ...

New Member First Post. Post TURBT Comments

Activeskies
  • By Activeskies · Posted November 24, 2009
  • Discussion in Living with non-invasive bladder cancer · 1 recommendation
  • Good reading here. Not sure how much I should read. Makes me a little nervous. Had my TURBT on Friday the 13th. Pathology today is High Grade (2-3), Non Invasive. Some of that was good news. Everything ...

Air in Urostomy bag normal?

lyke2travel
  • By lyke2travel · Posted November 23, 2009
  • Discussion in Life after radical cystectomy · 1 recommendation
  • Hello Folks, Time for me to get back to my real friends! Having issues with the outside bag and "Loo-e"my stoma. Using Convatec Moldable technology and really like it but.... Lately I have had air in ...

My Story should give you hope

Resident_of_Paradise
  • By Resident_of_Paradise · Posted November 23, 2009
  • Discussion in Life after radical cystectomy · 1 recommendation
  • I originally joined this site in July 2009 when I found out that I would be losing my bladder. I left the board about two weeks prior to my surgery. The reason I left was that most of the posts were very ...

book

nsk
  • By nsk · Posted November 22, 2009
  • Discussion in Living with non-invasive bladder cancer · 1 recommendation
  • I just finished a wonderful book about a daughter with breat cancer and a father with bladder cancer.It is atrue story and both the daughter and father appeared on tv.The name of the book is The Middle ...

Is there any indiana pouch people here?

ontameable
  • By ontameable · Posted November 15, 2009
  • Discussion in Life after radical cystectomy · 1 recommendation
  • I am trying to find indiana pouch people Where are you from? I will start... I live in Moline, Il ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

Group leaders

You