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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

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Recommended

Guestbooks - An exciting addition to Inspire

TeamInspire
  • By TeamInspire · Posted May 20, 2009
  • Journal · 23 recommendations
  • Hello everyone, We're writing to let you know about a great new feature we'll be adding to Inspire in the very near future: guestbooks. This is a feature that many of you have requested, and we're very ...

RECOMMENDED Discussions and Journals...

BJsHere
  • By BJsHere · Posted June 16, 2009
  • Discussion in Help desk · 12 recommendations
  • Since I have been on this site the end of December 2009, there has been a wealth of information posted. Sometimes I forget where it was or the title. If you look below the orange columns you will see ...

Follow Inspire on Twitter and Facebook!

TeamInspire
  • By TeamInspire · Posted June 10, 2009
  • Journal · 12 recommendations
  • We're happy to announce that you can now stay in touch with what's happening at Inspire by following us on both Twitter and Facebook. While Inspire communities are still the best places to connect with ...

Inspire members featured

Brian
  • By Brian · Posted October 28, 2009
  • Journal · 10 recommendations
  • Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

BLADDER CANCER Should Be the FIGHT . . .

BJsHere
  • By BJsHere · Posted October 27, 2009
  • Discussion in Taking charge: How to be a proactive patient · 8 recommendations
  • I have been sitting back, watching and waiting before writing this post. Katz, is my personal friend. This is not about her but you might say "it was the straw that broke the camels back". I ask that ...

REALITY CHECK

daveyo
  • By daveyo · Posted October 20, 2009
  • Discussion in Life after radical cystectomy · 7 recommendations
  • well, as i sit here with my freddy, (my adopted basset hound)....i think about all i read and where i am. i feel ok,,,i have neuropathy in my right leg and in both hands....but i figure, so be it,,,,i ...

Where I'm at.

michaeldbentz
  • By michaeldbentz · Posted November 13, 2009
  • Discussion in Life after radical cystectomy · 5 recommendations
  • Hey guys, it's been awhile since I've posted so I thought I would update you: R/C was April 6, neobladder busted when fascia broke on April 22. I am still wearing a Depends for leakage and I'm incontinent ...

Neobladder versus Ileal Conduit/Indiana Pouch

RickB
  • By RickB · Posted October 17, 2009
  • Discussion in Treatment choices · 5 recommendations
  • I have posted this a couple of times in response to specific questions by members, but someone recommended that I post it on its own. Doing so will hopefully make it easier to find and will also trigger ...

Free Thought / Expression on this Site... Censorship?

BJsHere
  • By BJsHere · Posted May 19, 2009
  • Discussion in Help desk · 5 recommendations
  • I saw a Goodbye post from Jeanne. It disturbed me very much. I was compelled to stop the job I am working on to respond. I am writing this deeply moved by something that most of us don't understand. What ...

Caregivers

spaisley39
  • By spaisley39 · Posted November 1, 2009
  • Discussion in Living with non-invasive bladder cancer · 4 recommendations
  • Hello all, I hope you all had a nice Halloween with a lot of adorable trick or treaters! I simply wanted to thank all of the "Caregivers" on this site. You have all given me so much insight as to how ...

Please Stop

simpleone
  • By simpleone · Posted August 22, 2009
  • Discussion in Taking charge: How to be a proactive patient · 3 recommendations
  • My goodness what is everyone doing? Didn’t we all come here because we or someone we love have bladder cancer? This stuff is so petty. I can’t believe we are at the point that from an outsider looking ...

What is (WAS) your facility for your cancer treatment? How was it?

roadrunner
  • By roadrunner · Posted July 13, 2009
  • Journal · 3 recommendations
  • I thought it may be informational for others to know what your experience was and what you liked or disliked about it...at your facility for b/c. My husband r/c Sept. 14th,2007 Ours was at the Cleveland ...

American Society of Clinical Oncology

15yrsurvivor
  • By 15yrsurvivor · Posted November 20, 2009
  • Journal · 2 recommendations
  • Today, I received my fall newsletter from the Bloch Cancer Hotline, where I am a telephone volunteer. The newsletter introduced me to a website I have never seen, and it is a great source of information ...

The Incidence of Smoking-related Bladder Cancer May Be Increasing

Ciboney1
  • By Ciboney1 · Posted November 20, 2009
  • Discussion in Taking charge: How to be a proactive patient · 2 recommendations
  • Article on Smoking and relationship to Bladder Cancer. Smokers may have interest in this article from "Caring for Cancer" Web Site.. http://www.caring4cancer.com/go/cancer/n ews?NewsItemId=44306 Arlene ...

"Life Changes and We Change To Adjust To It"

Ciboney1
  • By Ciboney1 · Posted November 7, 2009
  • Journal · 2 recommendations
  • I have been missing from here for a while with not much to say; because of some issues here on the forum and because I have had some news I didn't want to hear ( as I know many of you have had the same ...

Researchers looking for bladder cancer survivors to complete a survey

BCAN_Claire
  • By BCAN_Claire · Posted October 29, 2009
  • Journal · 2 recommendations
  • Researchers from Texas are recruiting men and women diagnosed with bladder cancer within the last four years to complete a telephone survey. Baylor College of Medicine and the Michael E. DeBakey VA Medical ...

BCG/INTERFERON

Kyle-MO
  • By Kyle-MO · Posted October 23, 2009
  • Journal · 2 recommendations
  • I had my 6th, and last bcg/interferon treatment yesterday. The instillation went well, and was over in just a few minutes. I talked with my Urologist for just a bit after the treatment about the up coming ...

Med Supplies~ What are These? Oh, and Real Directions?

BJsHere
  • By BJsHere · Posted March 26, 2009
  • Discussion in Life after radical cystectomy · 2 recommendations
  • I have discovered a new frustration... Trying to figure out what the "goodies" are that the Med Supply Houses send for Samples! Not only that, when I get the actual supplies I need I can't figure some ...

book

nsk
  • By nsk · Posted November 22, 2009
  • Discussion in Living with non-invasive bladder cancer · 1 recommendation
  • I just finished a wonderful book about a daughter with breat cancer and a father with bladder cancer.It is atrue story and both the daughter and father appeared on tv.The name of the book is The Middle ...

clinical trial matching

jj803
  • By jj803 · Posted November 16, 2009
  • Discussion in Taking charge: How to be a proactive patient · 1 recommendation
  • Just found an article on a new service matching patients to clinical trials. Here is the link http://blochcancer.org/2009/11/national- institutes-of-health-make-it-easier-find -a-clinical-trial/. Best ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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