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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

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New journals

Stressed!!

lilbit37
  • By lilbit37 · Posted November 21, 2009
  • 13 replies
  • I don't think I fully accepted the face that I'm having surgery on December 17th and 18th. This fact was solidified today with my paper work stating that I would have the stents put in on the 17th and ...

Progress with my dad pt.5

daughter-of-neo
  • By daughter-of-neo · Posted November 21, 2009
  • 2 replies
  • Well, no news is sometimes good news here. My dad's been doing really well. Of the 40lbs he lost post-neo, he's gained 10 of those back and is eating well and often -- whatever it is he likes (as long ...

American Society of Clinical Oncology

15yrsurvivor
  • By 15yrsurvivor · Posted November 20, 2009
  • 6 replies
  • Today, I received my fall newsletter from the Bloch Cancer Hotline, where I am a telephone volunteer. The newsletter introduced me to a website I have never seen, and it is a great source of information ...

Home and Good Report!

balihigh
  • By balihigh · Posted November 20, 2009
  • 27 replies
  • My husband and I arrived home this afternoon after our 6 day trip to NY for my 6 month checkup. All reports are good news! No cancer so I am now 14 months post op and doing fine. However, my thoughts ...

bob and the oncologist

arefarm
  • By arefarm · Posted November 20, 2009
  • 3 replies
  • Sorry, but we don't know, did Bob have surgery for his bladder cancer? We are on our way to Chemo after neo. Would appreciate knowing, as we will be advised soon as to what may be happening. Hope you ...

Last BCG

mycopper
  • By mycopper · Posted November 20, 2009
  • 4 replies
  • Hubby and I both happy end of 6 weeks BCG. Next step Urologist Dec. 23 and I know we are getting an early Chriistmas present. From God And Santa. Candy ...

Onwards and upwards

Trishka
  • By Trishka · Posted November 20, 2009
  • 10 replies
  • Today is Neo's 7th week birthday! We arrived home safely last week - the long journey went well and it was great staying for a day in London with friends to make the whole thing less stressful. We went ...

Back home again!!

jacksmimi
  • By jacksmimi · Posted November 19, 2009
  • 7 replies
  • My surgery went fairly well. They were able to patch the hole in my IP without having to take more bowel. My biggest problem right now is the stents they put in from my kidneys down to the IP. they apparently ...

Keychain

carolml
  • By carolml · Posted November 18, 2009
  • 2 replies
  • I received in the mail today the keychain I purchased at the BCAN conference in San Francisco. It is a comfort to me, and a reminder to be mindful of my bladder cancer and take care of myself. For those ...

Results Received

carolml
  • By carolml · Posted November 18, 2009
  • 4 replies
  • I received a call from my urologist this afternoon stating that my bladder cancer is Ta with no invasion. He said I will not need chemo. I have an appointment in a few weeks to discuss future treatment ...

On a positive note

Stuckdh
  • By Stuckdh · Posted November 18, 2009
  • 14 replies
  • Time for bed. Second BCG treatment tomorrow. I am going to sleep visually imagining my immune system eating the bad cells just like the scubbing bubbles commercial. Positive thoughts attract positive ...

Valstar instilled like BCG

midwestone
  • By midwestone · Posted November 18, 2009
  • 5 replies
  • Some have asked: how is this administered--Valstar is instilled like BCG, 2 hour holding, rotating body to coat all surfaces of bladder. Solution is bright red, somewhat thicker than BCG ...

Ben's MVAC Journey

cat22
  • By cat22 · Posted November 17, 2009
  • 10 replies
  • Hi everyone. I am happy to report that Ben completed MVAC Cycle 3 last night. He just got his Aloxi shot, will be getting Neulasta in the morning, then we head back home...Cycle 4 is scheduled for 30 ...

next step

arefarm
  • By arefarm · Posted November 17, 2009
  • 3 replies
  • Hello, all has continued to go well after the neo surgury last month and today the cath and surapubic were removed. YEAH!! However a question to all of you fellow neo's. Know about the leakage, but how ...

First Valstar (valrubicin) treatment yesterday

midwestone
  • By midwestone · Posted November 17, 2009
  • 5 replies
  • 24 hours since completion of 1st Valstar treatment without significant side effects. One down, 5 to go! Series was delayed a week so drug could be added to formulary of insurance provider ...

Pathology results are in

Kyle-MO
  • By Kyle-MO · Posted November 17, 2009
  • 32 replies
  • Just talked to my Urologist's office this morning about the pathology report from my biopsy surgery last Wednesday November, 11th, and it was good news ! The random biopsies came back negative, as well ...

Life goes on.

2LKF
  • By 2LKF · Posted November 17, 2009
  • 14 replies
  • I am finally healed from the surgery for the parastomal hernia. This took over three months to heal, as I busted open a week after my surgery. What a mess this was--- when the staples were removed I had ...

Finally...

loonym
  • By loonym · Posted November 16, 2009
  • 26 replies
  • I actually had a day, the first in around 3 weeks, that the pain was something less than unbearable. The doctor bumped up my kadian again last week. My dose of that is 300mg twice a day now and she told ...

BCG

nsk
  • By nsk · Posted November 16, 2009
  • 23 replies
  • Tomorrow is my third bcg treatment.This will mark my hafway point in mybcg cycle. Ihope this one goes as easy as the first 2 ...

This is my urethral cancer story

ontameable
  • By ontameable · Posted November 15, 2009
  • 5 replies
  • This is my story......... Its started back in about 1997, I got UTI's all the time. It was like i would go to the doctor every 6 weeks and they would tell me i had another infection it was like they would ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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