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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

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New discussions

3rd BCG treatment blood in urine

markl1966
  • By markl1966 · Posted 3:48 pm
  • In Newly diagnosed · 5 replies
  • Hi all, Just had my srd BCG treatment, urine is a little pink, blood i'm sure. First 2 tretments went off without a hitch. Anybody have blood in urine while going BCG? How long did it last? Called my ...

New Member First Post. Post TURBT Comments

Activeskies
  • By Activeskies · Posted 1:57 pm
  • In Living with non-invasive bladder cancer · 16 replies
  • Good reading here. Not sure how much I should read. Makes me a little nervous. Had my TURBT on Friday the 13th. Pathology today is High Grade (2-3), Non Invasive. Some of that was good news. Everything ...

This is a TEST!!!

roadrunner
  • By roadrunner · Posted 1:42 pm
  • In Caregivers corner · 5 replies
  • Many times I think about the ones here on the forum who do not post or reply. Maybe too shy,can't find the words,,,,, So being I think about you to I wonder, heres an open door for your turn to ask,and ...

Good Things

Burb
  • By Burb · Posted 12:47 pm
  • In Living with non-invasive bladder cancer · 4 replies
  • Had my first BCG yesterday and I felt.....NOTHING. I feel fine today. Nothing like the Mitomycin C. Okay, granted it was my first treatment, but it was a relief to be so symptomless. What good thing do ...

Types of treatments

R2D2
  • By R2D2 · Posted 11:16 am
  • In Treatment choices · 1 reply
  • Over the past 3-4 months there have been two different people on this site who have had 2 different types of treatments for their BC: One was a man going to get treatment involving "Hyperthermia" in Culver ...

Happy Thanksgiving!

luvcntrym
  • By luvcntrym · Posted 7:26 am
  • In Metastatic bladder cancer · 15 replies
  • I would like to wish everyone a Happy Thanksgiving! I would also like to take this moment to remember all that have passed this year because of BC, especially my husband Dennis. Also a special thanks ...

Freaking out here

bobswife
  • By bobswife · Posted 6:44 am
  • In Life after radical cystectomy · 6 replies
  • Hi all My husband had a cystectomy about 2 years agoand now wears a urostomy bag. His Prostrate was removed at the same time and all lymph glands (all were cancer free) All scans have been clean every ...

Air in Urostomy bag normal?

lyke2travel
  • By lyke2travel · Posted yesterday at 2:56 pm
  • In Life after radical cystectomy · 9 replies
  • Hello Folks, Time for me to get back to my real friends! Having issues with the outside bag and "Loo-e"my stoma. Using Convatec Moldable technology and really like it but.... Lately I have had air in ...

Update on Cysto today

Girly1
  • By Girly1 · Posted yesterday at 2:44 pm
  • In Living with non-invasive bladder cancer · 14 replies
  • Well I had my cysto today and it wasn't good.There were 8 new tumors. I am scheduled this Friday to have them removed. The doctor said after the biospsy he will have to detemine what new chemo to do because ...

My Story should give you hope

Resident_of_Paradise
  • By Resident_of_Paradise · Posted yesterday at 1:50 pm
  • In Life after radical cystectomy · 12 replies
  • I originally joined this site in July 2009 when I found out that I would be losing my bladder. I left the board about two weeks prior to my surgery. The reason I left was that most of the posts were very ...

WHY are we here?

roadrunner
  • By roadrunner · Posted yesterday at 12:08 pm
  • In Caregivers corner · 16 replies
  • I know why I am here, to help anyone facing surgery,to remove there bladder, to not be afraid, as if you take the right steps to get to recovery, you can have a good outcome, if you have all the ingredients ...

Holidays....are they stressful for you?

roadrunner
  • By roadrunner · Posted November 22, 2009
  • In Caregivers corner · 13 replies
  • Its the Holidays......bring on the cheer..... It can be wonderful....but stressful......how do you handle the stress of the HOLIDAYS? Are you the GRINCH?......or do you grasp what you can.... How can ...

All Good So Far

mrr3rd
  • By mrr3rd · Posted November 22, 2009
  • In Taking charge: How to be a proactive patient · 9 replies
  • Thank You to everyone for all the thoughts and prayers!! I had my superficial Lymph nodes removed on Nov 19th, the frozen sections came back NEGATIVE!! My awesome Urologist does not expect a positive ...

book

nsk
  • By nsk · Posted November 22, 2009
  • In Living with non-invasive bladder cancer · 7 replies
  • I just finished a wonderful book about a daughter with breat cancer and a father with bladder cancer.It is atrue story and both the daughter and father appeared on tv.The name of the book is The Middle ...

Insurance/hospital bill questions

Annasvenska
  • By Annasvenska · Posted November 22, 2009
  • In Life after radical cystectomy · 14 replies
  • Hi I was at the hospital for four weeks due to bowel obstructiion caused by adhesions from my previous RC. I was at a local hospital for three days and then transported to University of Chicago where ...

BCG Interferon treatments

leefixes
  • By leefixes · Posted November 21, 2009
  • In Help desk · 9 replies
  • I have just had my first treatment and unlike BCG alone, I am feeling terrible. I have a fever, aches, chills and general fatigue. We have a trip to Italy coming up in December, I think I should hold ...

Question about pathology report for JJ803

Girly1
  • By Girly1 · Posted November 21, 2009
  • In Living with non-invasive bladder cancer · 4 replies
  • I sent out a question regarding my path report last week and got a wonderful response from JJ803. I had left something off of my discussion that was also on the report. It also says The tumor shows a ...

At what month did you have your first BCG Maintenance?

SilverGrizzly
  • By SilverGrizzly · Posted November 21, 2009
  • In Living with non-invasive bladder cancer · 3 replies
  • When they say maintenance BCG happens every 3 months the first year, what is that three months from? The beginning of your induction round, or the end of your induction round, or something else? Thanks ...

diet

aecann
  • By aecann · Posted November 21, 2009
  • In Caregivers corner · 4 replies
  • Bill will be 7 weeks post op for r/c and besides getting a handle on the stoma gear it is mostly his gut that is his biggest complaint. The re-section is doing OK no leaking! I am still working so Bill ...

LENORE PEER'S MIRACULOUS RECOVERY

lpeer47
  • By lpeer47 · Posted November 21, 2009
  • In Life after radical cystectomy · 21 replies
  • AFTER 4 MONTHS, LENORE HAS LEFT THE HOSPITAL AND GONE TO DAYTON (OHIO) REHABILITATION INSTITUTE. THIS IS MORE LIKE A HOTEL THAN A HOSPITAL! SHE IS WALKING WITH A WALKER AND A LITTLE HELP FROM THE REHAB ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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