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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

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BC Causation

IanC
  • By IanC · Posted 7:43 am
  • Discussion in Taking charge: How to be a proactive patient · 0 replies
  • Whilst this is still about causation rather than treatment, I think it points to lifestyle factors that probably influence survival times and hence will be of interest "Cancer death risk is 70% higher ...

A good article- "With cancer, let's face it: words are inadequate"

dleach
  • By dleach · New reply 7:19 am
  • Journal · 23 replies
  • This was a good article-make me think a bit about what is said to patients and families every day. http://well.blogs.nytimes.com/2010/03/15 /with-cancer-lets-face-it-words-are-inad equate/ I'd be interested ...

T1G3 - TURBT and BCG vs. RC

AndyS
  • By AndyS · New reply 7:15 am
  • Discussion in Newly diagnosed · 20 replies
  • Hello friends - In my ongoing quest to be sure to make the right decision concerning treatment of my T1G3 bladder cancer, I emailed Dr. Lamm who was instrumental in developing the current treatments standards ...

scared

sandibfnp1
  • By sandibfnp1 · New reply 2:45 am
  • Discussion in Newly diagnosed · 43 replies
  • Hello I really need to talk. I was just diagnosed with cis. saw a uro at Columbia Presbyterian where I work had cysto and 2 biopsies. Referred to a uro onc in the same hospital. had another cysto and ...

what would cause a thickening of the bladder wall

marthageorge
  • By marthageorge · New reply 2:17 am
  • Discussion in Living with non-invasive bladder cancer · 3 replies
  • Just had a CT Abd/Pelvis w Contrast done. It showed that I had a thickening of the bladder wall near the dome. My urologist wants to do a cysto before she starts the mitomycin. (12 BCG treatments have ...

Florida members, it's time to weigh in

Karego
  • By Karego · New reply 12:29 am
  • Discussion in Raising awareness · 1 reply
  • A National Bladder Cancer Awareness Day can happen in Florida with your participation. Three BCAN/Inspire members in SW Florida met today to brainstorm our options. In order for us to proceed, we need ...

To be angry or just laugh....

cableguy
  • By cableguy · New reply yesterday at 11:37 pm
  • Discussion in Living with invasive bladder cancer · 19 replies
  • I don't post much, but need to share/vent this one. I have decided to accept a position with a new company. The offer is just too good to pass up. Of course, part of the process is a drug screen. I have ...

MODEL53 UPDATE (KEN)

Keith1
  • By Keith1 · New reply yesterday at 10:11 pm
  • Discussion in Life after radical cystectomy · 1 reply
  • I received a message from Ken's wife Leona. What we know so far. Ken has been in surgery for 10 hours, Leona is being updated every 2 hours. Doing well, all margins are clear. Now undergoing reconstruction ...

"OffTopic"

DrgnTrappr
  • By DrgnTrappr · New reply yesterday at 6:59 pm
  • Discussion in Life after radical cystectomy · 2 replies
  • I don't know if it because of everyone is busy or if it is due to Spring finally getting here,but it seems like there is less traffic on the discussion boards the last few days. Whatever the case may ...

Has anyone had this happen?

Girly1
  • By Girly1 · New reply yesterday at 6:42 pm
  • Discussion in Living with non-invasive bladder cancer · 8 replies
  • I went this morning to get my 3rd Mytomycin treatment and the nurse said you can't get it today you have an infection. She said they didn't know what it was. She said it could be a UTI, or bladder infection ...

First Chemo, days 1-4

ladymoonlite
  • By ladymoonlite · New reply yesterday at 3:06 pm
  • Journal · 7 replies
  • Well, days one through three were pretty uneventful. I even drove myself to and from the infusion center a couple of times, which is a good feeling. We had a few questions on the first couple of days ...

Bummer, last day of chemo, can't do

arefarm
  • By arefarm · New reply yesterday at 3:01 pm
  • Journal · 2 replies
  • Last Friday chemo. Matt had bad reaction, been inbed all week. Tried to get him to eat with little success. Found out he had a urinary infection. So today, his blood work showed low potassium, no no chemo ...

BCG for T1?

sueklo
  • By sueklo · New reply yesterday at 12:37 pm
  • Discussion in Treatment choices · 30 replies
  • I was diagnosed with T1 BC in the lamina propria while in US in Jan. Single papillary 2cm tumour. They said I should start BCG in 4 weeks. When I returned to UK I saw top man at Christies. He said: 'We ...

Combined Modality Treatment vs RC for T2-T4 non-metastatic

IanC
  • By IanC · New reply yesterday at 11:31 am
  • Discussion in Treatment choices · 2 replies
  • Combined Modality Therapy Preserves Bladder and Offers Long-term Survival in Invasive Bladder Cancer Combined modality therapy (CMT) preserves the bladder, achieves complete response (CR), and offers ...

Thank you Thank you Thank you Thank you

Annasvenska
  • By Annasvenska · New reply yesterday at 11:24 am
  • Discussion in Life after radical cystectomy · 9 replies
  • I know this is incredible late but as we say in Sweden ..better late than never. I am just incredible thankful to all of you whom donated to BCAN in my name when I was supposed to run Chicago Marathon ...

Role of anti-Her-2 therapy in bladder carcinoma

IanC
  • By IanC · Posted yesterday at 8:55 am
  • Discussion in Treatment choices · 0 replies
  • "Bladder cancer, in its advanced stage, has very few therapeutic strategies with proven efficacy. Platinum-combination chemotherapy can be considered a standard for first-line therapy, but after progression ...

Pain, Pain go away....

S1wdrum
  • By S1wdrum · New reply yesterday at 8:35 am
  • Journal · 6 replies
  • It has been exactly one month since I had my RC and my new Indiana pouch "installed". I'm starting to feel better but things are moving slowly. My appetite is coming back and I am craving protein, so ...

Failed BCG & Not OK for RC

IanC
  • By IanC · New reply yesterday at 4:23 am
  • Discussion in Treatment choices · 4 replies
  • "Failure of BCG in patients with high risk NMIBC unsuitable for radical cystectomy "Although the accepted standard upon failing intravesical bacille Calmette-Guérin (BCG) in patients with high-risk non-muscle-invasive ...

Training new neo-bladder

linksjp
  • By linksjp · New reply March 18, 2010
  • Discussion in Life after radical cystectomy · 16 replies
  • I'm 4 wks post-op RC and just got my foley cath out last friday. I'm just starting to be able to hold my urine till I get to the bathrm. Can anyone give me some sort of timeline and/or tips for training ...

Duke Consult

birdman
  • By birdman · New reply March 18, 2010
  • Discussion in Life after radical cystectomy · 3 replies
  • Got an appt with Duke to see if they can help with my Neo not working and hoping for a procedure that can get it working again without surgery.Will be going in May unless someone cancels and I can get ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

Donate to BCAN
Your generous donations help BCAN increase public awareness about bladder cancer, provide support to patients, and promote an increased allocation of resources to the treatment and cure of this disease.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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