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North Carolina Picnic July 24, 2010

By balihigh · New reply yesterday at 11:54 pm
Discussion in Raising awareness · 15 replies
Last summer JerseyGuy and I organized a picnic at The Swag in Waynesville, NC. The purpose was to meet other bladder cancer warriors and to raise awareness of our cancer. 38 people from 10 states gathered ...

Scared

By trentnkaykaysmom10 · New reply yesterday at 11:48 pm
Journal · 11 replies
Hi my name is Brittany and I am 24 yrs old. I have just been diagnosed with carsinoma of the bladder invasive. I am supposed to have my bladder and other organs around it removed soon but I am very scared ...

wear time of a Urostomy bag

By Norfolkboyuk · New reply yesterday at 11:35 pm
Discussion in Life after radical cystectomy · 7 replies
I had Rc in July 2009 I read a survey in the US that found that the average wear time of a urostomy bag was 5 days.The stoma nurse recomended changing it every day 2 days being a bonus. Now i get 2 days ...

Six months into RC

By ncbake · New reply yesterday at 11:30 pm
Journal · 8 replies
Greetings to all: While I have contributed little to this forum, I have gained a great deal of knowledge of bladder cancer from others who have been kind enough to share their experiences. With this in ...

Alot of Pain

By DebbieMP · New reply yesterday at 11:18 pm
Discussion in Life after radical cystectomy · 8 replies
Hello All: You are such an inspiration and have posted several times about our experience and to hopefully encourage and support others. I am almost at the end of my rope. My husband had his RC and neo ...

Michelle

By antielia · New reply yesterday at 11:16 pm
Discussion in Living with invasive bladder cancer · 18 replies
Today is the 9th of March , here down under in Australia. My candle and lamp are lit for my friend Michelle. I pray that the hands of the good surgeon will be guided from Above. Praying for the best outcome ...

"Please Read & Help Someone"!!!

By Giamarie · New reply yesterday at 10:21 pm
Journal · 22 replies
I havent been on here but 2xs now,Iam getting worse,after the Hiatal Hernia surgery,I thought that would at least help some of my problem,well Iam right back to square 1.. Iam in constant PAIN everyday,bedbound,never ...

Not what I was hoping for.

By LadyJane123 · New reply yesterday at 10:16 pm
Journal · 25 replies
Had my cystoscopy this morning and was really expecting to be tumour free. I had had my first all clear in December so I thought I was on a roll. Not so. We saw 5 new tumours today, small, non-invasive ...

still worried

By wrightpath24 · New reply yesterday at 10:00 pm
Journal · 2 replies
I have been feeling better from the surgery itself, however, I've been sick a lot (throwing up) and I think I have a UTI in my new bladder. (having chronic UTI's when I was a little girl is what caused ...

second entry today

By wrightpath24 · New reply yesterday at 9:54 pm
Journal · 9 replies
I gave my children their kisses goodnight. They are the best thing I've ever done and I'll be happy if that turns out to be the only three things I do. Anyway, I'm still having a lot of trouble dealing ...

5K to Raise Funds for Bladder Cancer-June 6th

By andreaseltzer · New reply yesterday at 9:46 pm
Discussion in Raising awareness · 6 replies
As many of you may know, on Friday, January 15th, we found out that my husband Jamie had been diagnosed with bladder cancer. Thanks to the information and support given to us through the Bladder Cancer ...

Bit of a setback

By IanC · New reply yesterday at 9:34 pm
Journal · 4 replies
I've got a bit of a setback in my attempt to resolve my BCa. As some of you may know, I've been monitoring my BCa using NMP-22 ELISA. This has a cut-off for normal of less than 10 on its reading. Mine ...

Good path report

By ladydoby · New reply yesterday at 9:20 pm
Journal · 3 replies
My report came back as low grade/non-invasive. Very relieved. 60% chance of recurrance so cysto's every 3 months. Thanks you all for all the information and prayers. Gail ...

After the Surgical Pathology Report?

By doleslie · New reply yesterday at 7:48 pm
Journal · 13 replies
It's been about one month since my TURBT. After a blood infection and 2 additional catheters due to urinary blockage, I had the catheter removed yesterday along with a voiding test. The voiding test was ...

Airport/Cruise Ship Security

By Gnomic · New reply yesterday at 6:01 pm
Discussion in Life after radical cystectomy · 2 replies
Just wondering if anyone has had recent experiences with any of the new scanning devices in place at some airports etc. I have an urostomy pouch and that may be a problem when traveling these days. Perhaps ...

Have a Blast in NC!

By balihigh · New reply yesterday at 5:36 pm
Discussion in Raising awareness · 2 replies
I just wrote a follow up to my NC picnic post that tells about planned activities for the July 24th weekend. I included some websites so that you can get a feel for the area. I am going to repeat some ...

Sparing the bladder

By IanC · New reply yesterday at 5:09 pm
Discussion in Treatment choices · 9 replies
Combined Modality Therapy Spares Cystectomy in Majority of Patients with Locally Advanced Bladder Cancer Researchers from the Massachusetts General Hospital have reported that 75% of patients with locally ...

BCAN's latest e-newsletter now available at www.bcan.org

By BCAN_Claire · New reply yesterday at 4:29 pm
Journal · 2 replies
BCAN publishes an e-newsletter 3-4 times a year. It is available here: http://www.bcan.org/stay-informed/newsle tter/ Our latest issue includes a Stanford urologist talking about robotic cystectomy, info ...

Support your group and raise awareness with badges

By Walter · New reply yesterday at 4:04 pm
Journal · 53 replies
Hi everyone. We added a new feature today that you can use to support your groups and the organizations that sponsor them, and get the word out about the causes that are important to you. If you visit ...

questions to ask

By marthageorge · New reply yesterday at 3:55 pm
Discussion in Living with non-invasive bladder cancer · 4 replies
I will be going again tomorrow to see the doctor who I visited last year for a second opinion. My urologist suggested that I revisit her to see if she can shed some light as to why I have failed two rounds ...

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