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Welcome to Inspire!

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Active journals

American Society of Clinical Oncology

15yrsurvivor
  • By 15yrsurvivor · New reply 5:59 am
  • 3 replies
  • Today, I received my fall newsletter from the Bloch Cancer Hotline, where I am a telephone volunteer. The newsletter introduced me to a website I have never seen, and it is a great source of information ...

Home and Good Report!

balihigh
  • By balihigh · New reply 2:19 am
  • 9 replies
  • My husband and I arrived home this afternoon after our 6 day trip to NY for my 6 month checkup. All reports are good news! No cancer so I am now 14 months post op and doing fine. However, my thoughts ...

Starting a journey

Stuckdh
  • By Stuckdh · New reply yesterday at 8:13 pm
  • 22 replies
  • It has been 4 weeks since initially diagnosed with bladder cancer. Thursday the results of the biopsy came back and I have high grade CIS cancer of the bladder. That God for kidney stones since that was ...

Last BCG

mycopper
  • By mycopper · New reply yesterday at 8:01 pm
  • 1 reply
  • Hubby and I both happy end of 6 weeks BCG. Next step Urologist Dec. 23 and I know we are getting an early Chriistmas present. From God And Santa. Candy ...

Onwards and upwards

Trishka
  • By Trishka · New reply yesterday at 7:54 pm
  • 8 replies
  • Today is Neo's 7th week birthday! We arrived home safely last week - the long journey went well and it was great staying for a day in London with friends to make the whole thing less stressful. We went ...

bob and the oncologist

arefarm
  • By arefarm · Posted yesterday at 6:48 pm
  • 0 replies
  • Sorry, but we don't know, did Bob have surgery for his bladder cancer? We are on our way to Chemo after neo. Would appreciate knowing, as we will be advised soon as to what may be happening. Hope you ...

BCG

nsk
  • By nsk · New reply yesterday at 2:35 pm
  • 23 replies
  • Tomorrow is my third bcg treatment.This will mark my hafway point in mybcg cycle. Ihope this one goes as easy as the first 2 ...

On a positive note

Stuckdh
  • By Stuckdh · New reply yesterday at 12:52 pm
  • 13 replies
  • Time for bed. Second BCG treatment tomorrow. I am going to sleep visually imagining my immune system eating the bad cells just like the scubbing bubbles commercial. Positive thoughts attract positive ...

Back home again!!

jacksmimi
  • By jacksmimi · New reply yesterday at 9:28 am
  • 6 replies
  • My surgery went fairly well. They were able to patch the hole in my IP without having to take more bowel. My biggest problem right now is the stents they put in from my kidneys down to the IP. they apparently ...

Pathology results are in

Kyle-MO
  • By Kyle-MO · New reply November 19, 2009
  • 32 replies
  • Just talked to my Urologist's office this morning about the pathology report from my biopsy surgery last Wednesday November, 11th, and it was good news ! The random biopsies came back negative, as well ...

Keychain

carolml
  • By carolml · New reply November 19, 2009
  • 2 replies
  • I received in the mail today the keychain I purchased at the BCAN conference in San Francisco. It is a comfort to me, and a reminder to be mindful of my bladder cancer and take care of myself. For those ...

Results Received

carolml
  • By carolml · New reply November 19, 2009
  • 4 replies
  • I received a call from my urologist this afternoon stating that my bladder cancer is Ta with no invasion. He said I will not need chemo. I have an appointment in a few weeks to discuss future treatment ...

Life goes on.

2LKF
  • By 2LKF · New reply November 19, 2009
  • 14 replies
  • I am finally healed from the surgery for the parastomal hernia. This took over three months to heal, as I busted open a week after my surgery. What a mess this was--- when the staples were removed I had ...

Valstar instilled like BCG

midwestone
  • By midwestone · New reply November 19, 2009
  • 5 replies
  • Some have asked: how is this administered--Valstar is instilled like BCG, 2 hour holding, rotating body to coat all surfaces of bladder. Solution is bright red, somewhat thicker than BCG ...

Finally...

loonym
  • By loonym · New reply November 18, 2009
  • 26 replies
  • I actually had a day, the first in around 3 weeks, that the pain was something less than unbearable. The doctor bumped up my kadian again last week. My dose of that is 300mg twice a day now and she told ...

Ben's MVAC Journey

cat22
  • By cat22 · New reply November 18, 2009
  • 10 replies
  • Hi everyone. I am happy to report that Ben completed MVAC Cycle 3 last night. He just got his Aloxi shot, will be getting Neulasta in the morning, then we head back home...Cycle 4 is scheduled for 30 ...

First Valstar (valrubicin) treatment yesterday

midwestone
  • By midwestone · New reply November 18, 2009
  • 5 replies
  • 24 hours since completion of 1st Valstar treatment without significant side effects. One down, 5 to go! Series was delayed a week so drug could be added to formulary of insurance provider ...

next step

arefarm
  • By arefarm · New reply November 17, 2009
  • 3 replies
  • Hello, all has continued to go well after the neo surgury last month and today the cath and surapubic were removed. YEAH!! However a question to all of you fellow neo's. Know about the leakage, but how ...

Treatments start tomorrow

Stuckdh
  • By Stuckdh · New reply November 17, 2009
  • 22 replies
  • Well tomorrow I start my treatments. I am not sure how I feel overall. There is the feeling of finally moving forward and also that feeling of optimism. I know it will work and be a journey. I also know ...

Today Is Very Special For Me

Moonerj
  • By Moonerj · New reply November 16, 2009
  • 49 replies
  • Hi Everyone. Well a few years ago after having a few recurrences, and struggling with BCG treatments, I never dreamed this day would come. I can officially say I am 2 YEARS Cancer free today. Thanks to ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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