Already a member? Sign in
Welcome to Inspire!
What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.
Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.
How - Joining Inspire is completely free and usually takes less than a minute. Join now!
Journals
David's surgery is over!!!!!
- By DRB · Posted October 8, 2009
- 25 replies
- Finally we are on the other side of this now. His surgery lastest 8 hours and they were able to give him the neobladder (Praise God).....that was great news because his tumor was on the lower part of ...
October 7th - 5 days post op
- By Trishka · Posted October 8, 2009
- 14 replies
- It's a cold crisp day and the sun is shining in a perfectly blue sky. Inside our hospital room, Andrew continues to make progress. Today his bowel 'woke up' which meant he could have his first meal in ...
Awareness and a bit of controversy in the news
- By Bill-Philly · Posted October 7, 2009
- 6 replies
- The big Philly paper printed an Op-Ed article by a breast cancer survivor about her continuing need for emotional support. Acknowledging that she was lucky enough as a 7-year survivor to need only annual ...
The Calendar!!How it can help you.....
- By roadrunner · Posted October 7, 2009
- 9 replies
- Everyone knows I put up a calendar for the month....I hope everyone who sees that others are having the same treatments and surgeries may get them to add someone as a friend,,,someone having bcg,,,heres ...
Progress with my dad pt.3 (good news labs)
- By daughter-of-neo · Posted October 7, 2009
- 8 replies
- Just got a great phone call from my dad. He had a morning appointment with the doctor, and his "test scores" (labs) are great! [Please forgive me if I misprint a word, all these medical terms are new ...
Heterocyclic Amines in Cooked Meats
- By 15yrsurvivor · Posted October 6, 2009
- 0 replies
- This study initially caught my attention because of the word "amines." Aromatic amines, a carcinogen present in many industrial environments, has been linked to bladder cancer in particular. The following ...
"the Bagman"
- By joybob · Posted October 6, 2009
- 44 replies
- Well Bob has had this hollister 2 piece bag on since Thursday....my heart be still. I think this one is going to be "the one". Also, being of Italian heritage I have to clear up something. The bagman ...
4 down 2 to go
- By rockandroll · Posted October 5, 2009
- 14 replies
- I had BCG # 4 today. Only have 2 more to go, and then 6 weeks until my cysto. So far there have been only minor side effects. A little more fatigue than usual. I'm tired most of the time anyway because ...
3 days on
- By Trishka · Posted October 5, 2009
- 19 replies
- Monday, October 5th 2009 It's only been 72 hours since the op and apart from the many tubes/drains coming out of his body you would never know he's had a major operation (and a small one). This morning ...
Post RC - 3 month CT Scan / Doctor Appointment
- By Crossman · Posted October 5, 2009
- 18 replies
- I got a good report from the doctor regarding the CT scan of my new bladder. He has removed all of my restrictions, including lifting and I am back to riding on the ambulance. I am feeling great and would ...
Well the time has finally come....
- By DRB · Posted October 5, 2009
- 34 replies
- My husband David will have his RC surgery this Wednesday at MD Anderson. I hope to have good news to share with everyone. We have learned so much from all the discussions on this website. I am just so ...
Blood in Indiana Pouch - help please
- By Tamlin · Posted October 5, 2009
- 7 replies
- Yesterday morning I got up and caterized my Indiana pouch and irrigated it as usual. The next time I cathed it was draining normally then blood started draining out of the catheter. My RC was May 7, 5 ...
Today I am seeing PINK!!
- By roadrunner · Posted October 4, 2009
- 15 replies
- I wonder how long it will be before I see ORANGE everywhere,,,, Watching the Browns and the Bengals I am seeing pink all over the football field,,,,the players are wearing pink gloves,pink shoes,,pink ...
October 1, 2009
- By suewojo · Posted October 3, 2009
- 11 replies
- Happy Birthday to me! 40, kidney stone free and no bladder cancer. Life is good ...
September 30, 2009
- By suewojo · Posted October 3, 2009
- 0 replies
- Achy and full of pain. I got permission to increase pain meds by one tablet. Sleepy time ...
September 29, 2009
- By suewojo · Posted October 3, 2009
- 0 replies
- Stone free!!! Hurting something feirce but that is why pain medication was discovered. Stents will be left in for two weeks not two days. Don't care I'm stone free. Oh yeah, bladder was crystal clear....no ...
What a difference a day makes....
- By Trishka · Posted October 3, 2009
- 15 replies
- Saturday, October 3rd 2009 Andrew had a fairly good night. He was in and out of pain and in and out of sleep. He wakes up mainly to push that pain button. 7:45am Dr Karnes arrives and shakes Andrew's ...
just an update
- By jmch · Posted October 3, 2009
- 10 replies
- craig (cr_scuba) was supposed to get his first BCG on 9/23. sigh, had an infection and delayed. still there last week, delayed again. hopefully whatever they've given him will clear it up. he gets tested ...
The Big Op - October 2nd 2009
- By Trishka · Posted October 3, 2009
- 22 replies
- We were told to arrive at St Mary's Hospital, Mayo Clinic, at 5:45am. We arrive at 5:30am. It's still dark outside and slightly drizzly. By 6:10am we are in a side room and Andrew is being prepared for ...
hi everyone
- By mred009 · Posted October 3, 2009
- 14 replies
- hope everyone is doing well and keeping up the good fight.I am still kicking and screaming and making my doctors pull their hair out , as some of you know i have the issue in my knees that is being worked ...
