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Journals

The Waiting Game

Trishka
  • By Trishka · Posted October 16, 2009
  • 23 replies
  • Hi Everyone, it's been a week spent on a roller coaster! I walked into Andrew's hospital room on Tuesday morning and he was hooked up to a stomach pump - I could have cried. He has been complaining of ...

frankincense

joybob
  • By joybob · Posted October 15, 2009
  • 6 replies
  • I found the artiucle from the waiting room at md anderson. the company is Young Living cfo steve bentley. it said when used as a supplement dilute one drop in 4 oz liquid such as soy or rice mikl Product ...

have not heard from doctors

joybob
  • By joybob · Posted October 15, 2009
  • 28 replies
  • well must be Bob is invisible. Called Houston.....Houston I think we have a problem.....no reply. Called local florida doctor....no reply. Tell me why I should not be upset that we don't have path back ...

Surgery booked

carolml
  • By carolml · Posted October 15, 2009
  • 11 replies
  • I called the Dr's office and asked for the earliest surgery appointment. I have an appointment booked for November 12th, and have asked to be put on a waiting list in case there are earlier cancellations ...

well time to get ready for surgery again

mred009
  • By mred009 · Posted October 15, 2009
  • 9 replies
  • hi everyone got my tube in the kidney monday not that bad awake for the whole thing they gave me some really good drugs just a little pressure got the call from my uro yesterday i am shedding cancer cells ...

Drug Improves Survival Rate, Patients With Advanced Bladder Cancer

Moonerj
  • By Moonerj · Posted October 14, 2009
  • 5 replies
  • Early test results look encouraging at Clinical Trial 11 Stage. Tests need a larger group and controlled group for Stage 111 trial. http://www.medicalnewstoday.com/articles /167255.php ...

All clear

Shiz
  • By Shiz · Posted October 14, 2009
  • 11 replies
  • Just got an all clear over the phone. Thank you all for prayers. Only inflammation. Cystitis ...

Anyone here attending the SF Patient Forum?

BCAN_Claire
  • By BCAN_Claire · Posted October 14, 2009
  • 14 replies
  • Our online community doesn't have a large number of members from California, so I was wondering if anyone here was attending. (I also have an ulterior motive, as I was hoping I could get someone to talk ...

oooh, I'm mad - just venting - again

fowlair
  • By fowlair · Posted October 14, 2009
  • 13 replies
  • Just talked to my gyn. Asked why when they did my annual exam in July they didn't see blood in my urine. He said they did see it, but it was microscopic so they didn't think it was important. They don't ...

Rarely discussed: medical marijuana

loonym
  • By loonym · Posted October 14, 2009
  • 31 replies
  • I almost never see marijuana discussed here. I know chemo and radiation are both very common treatments, and it's commonly known that marijuana can help alleviate certain unpleasant side effects from ...

Scan results...... kinda bummed...

PattyL
  • By PattyL · Posted October 14, 2009
  • 11 replies
  • I guess it could be worse..... it can always be worse. I was kinda dreading it. When I was getting them done, the nurse came out and told me they wanted to do another set on my bladder. Ironically the ...

David's coming home....

DRB
  • By DRB · Posted October 13, 2009
  • 17 replies
  • I can't believe it's been 7 days since his surgery. He has done great. He was able to eat today and is getting around much better. He is tired...you can't get much sleep in the hospital....nurses in and ...

Doctor Visit Today

JeanneS
  • By JeanneS · Posted October 13, 2009
  • 23 replies
  • We found out all of hubby's cancer cells didn't stay in his prostate that was removed , so he will need radiation treatment. 8 weeks everyday except weekends. That means a 70 mile round trip every day ...

A pot hole in the road to recovery

Trishka
  • By Trishka · Posted October 12, 2009
  • 17 replies
  • We spent a lovely few hours in our rented home - we even had dinner at the dining table (Andrew only having what is considered to be 'soft' food). We went to bed and before too long Andrew was up and ...

Ribbon Color - Just ranting

fowlair
  • By fowlair · Posted October 12, 2009
  • 21 replies
  • I must say I had to laugh at first when I discovered the color for a bladder cancer ribbon is yellow. Of course, it would be the color of urine! But then I started wondering if it shouldn't have a tinge ...

Chicago Marathon

Annasvenska
  • By Annasvenska · Posted October 12, 2009
  • 18 replies
  • Dear friends I am still at the hospital as my bowels still haven't started to wake up. I am healing and my huge scar seems less daunting now and I am able to cough without feeling like I am going to become ...

Home Sweet Home

Trishka
  • By Trishka · Posted October 11, 2009
  • 9 replies
  • Home for the next 4 weeks is a condo downtown Rochester, Mn. We left St Mary's Hospital after lunch (Andrew ate poached egg and portabello mushroom on toast). It's a cold day (39 degrees at 1pm) but the ...

Nice to know I'm missed

MMB
  • By MMB · Posted October 10, 2009
  • 21 replies
  • Saw a post from Stacy that she hadn't heard from me and wanted to make sure I was okay. Just want to say thank you for your concern, I miss all of you too!!!! I do bounce in and out to try and keep a ...

I feel like popping the champagne cork..

Trishka
  • By Trishka · Posted October 9, 2009
  • 19 replies
  • ... but there's none on the menu here... Friday, October 9th 2009 I can't believe that a whole week has flown by. And, oh what a difference those 7 days make. Andrew began eating again yesterday. He had ...

Progress with my dad pt.4 mini update

daughter-of-neo
  • By daughter-of-neo · Posted October 9, 2009
  • 4 replies
  • Well, you can take the bladder out of the man but not the man out of the backyard! I forwarded my dad all your replies of encouragement and caution, but he was determined, I guess. He just called to tell ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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