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Journals

well that wait wasn t long

mred009
  • By mred009 · Posted October 22, 2009
  • 16 replies
  • hello everyone surgery set for monday that was a surprise he said this has been 6 months the doctor said it been long enough they gotta get this done now, they also said that the kidney is infected itself ...

Who was the first person you knew who had cancer?Friend?Family Member?

roadrunner
  • By roadrunner · Posted October 21, 2009
  • 45 replies
  • I was 7 or 8 years old, we lived on a corner,9 houses from the catholic school I went to....there were six of us,3 boys,3 girls,,,.kiddy corner was the public school, called Jefferson. I knew a few people ...

Chemo tomorrow trying again

ljin
  • By ljin · Posted October 21, 2009
  • 15 replies
  • My husband was diagnosed in May 09 with invasive bladder cancer and was told his bladder would have to be removed. He had CT scans done and no cancer in bones, chest or liver. Doctor said it would improve ...

well just and sit and wait for my date

mred009
  • By mred009 · Posted October 21, 2009
  • 6 replies
  • hello again everyone things are gettin clearer went for post op pre op visit to my uro finally got the med records that i had released a month and a half ago from my previous uro some details i was not ...

Saw an opthometrist today

Annasvenska
  • By Annasvenska · Posted October 21, 2009
  • 9 replies
  • due to the blurred vision that I had experienced since my last hospitalization. I am a neurotic woman with some medical knowledge and a vivid imagination. I thought that my blurred vision was due to optical ...

I want to shout..

Trishka
  • By Trishka · Posted October 21, 2009
  • 13 replies
  • ... from the rooftops! Last night Andrew tried cream of tomato soup - his tube was clamped and this was a test to see how well he tolerated it. Great success, so this morning the NG tube was removed and ...

Im Doing ok so far!

lyke2travel
  • By lyke2travel · Posted October 21, 2009
  • 14 replies
  • Hi there, Surprised myself on this! I got through surgery with 4 1/2 hours and felt almost good enough to walk the first day. I walked 15 minutes today but did about 21 laps in the corridors yesterday ...

Test Results

Tamlin
  • By Tamlin · Posted October 20, 2009
  • 19 replies
  • My doctor's nurse called and said my CT, chest x-ray and cytlogy were good, PRAISE GOD!!! They will be repeating all of them in 3 months. Tamlin Romans 15:13 May the God of hope fill you with all joy ...

Let's focus on providing support to those facing bladder cancer

BCAN_Claire
  • By BCAN_Claire · Posted October 20, 2009
  • 3 replies
  • The mission of this online community is to provide support to those affected by bladder cancer. Most of the time, this community communicates very well and people feel safe, welcomed, and supported. These ...

Update on Lyke2travel

Ciboney1
  • By Ciboney1 · Posted October 20, 2009
  • 14 replies
  • Hello: I heard from Kelly yesterday about Lynda's surgery and she had surgery for RC and is doing o.k. Lynda even emailed me this morning: She even walked this morning. Prayers to her for a uneventful ...

RC Follow-Up Schedule & Flu Shot Recommendations

vtom
  • By vtom · Posted October 20, 2009
  • 16 replies
  • This Thursday will be my 3-month RC anniversary so I celebrated early by visiting with my wonderful, compassionate oncologist. My RC follow-up will be blood panels and CTs with contrast every three months ...

Found the culprit

Trishka
  • By Trishka · Posted October 20, 2009
  • 10 replies
  • Tuesday, October 20th When Andrew had his CT scan last week they noticed a pool of fluid lying right next to his new bladder - it was a lymphocele. He had 46 lymph nodes removed during his surgery so ...

Headed for another TURB....

Ciboney1
  • By Ciboney1 · Posted October 20, 2009
  • 21 replies
  • After discussions with the Dr.'s, we are proceeding ahead with caution.. I will have another Turb on This Thursday, yes two days from now.. To say I am a little apprehensive of what the results would ...

treating urethial papillary carcinoma, what next?

midwestone
  • By midwestone · Posted October 19, 2009
  • 9 replies
  • Jan. 21, 09: Diagnosis of bladder cancer Jan.22, 09: Cystoscope, Dr. recommended resection Feb. 3, 09: Dr. did partial resection, cauterization, went home with catheter and bag Feb. 6, 09: Dr. reviewed ...

Cysto Results Today

Moonerj
  • By Moonerj · Posted October 19, 2009
  • 22 replies
  • Hi Everyone I received the ALL CLEAR this morning. I would like to thank all of you for your thoughts and prayers. It is much easier facing this disease knowing I have so many with me on this journey ...

A-OK ...SO FAR

artiep1
  • By artiep1 · Posted October 18, 2009
  • 13 replies
  • After a series of TURBS, & BCG/Interferon treatments, the Systo result was NEGATIVE. Wife & I celebrated with Surf & Turf at a Casino in Atlantic City. Next Systo is set for January 2010....will try to ...

Clean at 18

pjfcafe
  • By pjfcafe · Posted October 17, 2009
  • 10 replies
  • From T4aG3 to 18 months cancer free, the miracle workers at Sloan Kettering earned their name and reputation once again. I thought this test would show a problem but I’ll take the clean call. My CTscan ...

Husband had first bcg yesterday

mycopper
  • By mycopper · Posted October 17, 2009
  • 9 replies
  • He seems to feel ok. just 5 more to go ...

Bladder removal or BCG?

drwantabe
  • By drwantabe · Posted October 17, 2009
  • 18 replies
  • Please Help!! I have a friend that has bladder cancer ...back in May surgery was done and all was removed...No other treatment was recommended...Now after 3 mo. later a new cancer has appeared that is ...

The Waiting Game

Trishka
  • By Trishka · Posted October 16, 2009
  • 23 replies
  • Hi Everyone, it's been a week spent on a roller coaster! I walked into Andrew's hospital room on Tuesday morning and he was hooked up to a stomach pump - I could have cried. He has been complaining of ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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