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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

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Journals

radiation info.

karenanne9
  • By karenanne9 · Posted October 29, 2009
  • 2 replies
  • i had my rc in september, path came back as high recurrent possiblity.yes it was in my lypme nodeds, knew that before surgrey, but not all that were taken out were postive for cancer. i did 6 cycles of ...

opted not to have bladder removed

polopony
  • By polopony · Posted October 29, 2009
  • 11 replies
  • In July, my husband decided not to have cystectomy but to have chemo and radiation for his stage 3 bladder tumor, so the urologist took out the whole tumor and he got the treatments and did ok. Today ...

not posting for awhile

joybob
  • By joybob · Posted October 29, 2009
  • 28 replies
  • I will not be posting for awhile, this has be too overwhelming for me. We are at a crossroad, and my husband needs my undivided attention. My dear friends have my e mail address joybobbev@aol.com. Thak ...

BEATITUDES FOR THE HOME

Mike-PW
  • By Mike-PW · Posted October 29, 2009
  • 3 replies
  • BLESSED are the husband and wife who continue to be affectionate and considerate, loving after the wedding bells have ceased ringing. BLESSED are the husband and wife who are as polite and courteous to ...

Inspire members featured

Brian
  • By Brian · Posted October 28, 2009
  • 29 replies
  • Today Massachusetts General Hospital's Proto Magazine published a wonderful profile of nine Inspire members. Each of these stories underscores what we all know to be true -- that Inspire is a special ...

Trial Run

Trishka
  • By Trishka · Posted October 28, 2009
  • 6 replies
  • It's Wednesday, October 28th - bit of non day weatherwise (dull, grey skies with a bit of a chilly wind) reminds us of home on the Isle of Man. Andrew had quite a good night - he's now waking up every ...

Gratitude

Annasvenska
  • By Annasvenska · Posted October 28, 2009
  • 21 replies
  • One of the things that was the most discouraging during my long hospital stay was that I lost hope a little bit and felt like there was no end to my struggles. One of my nurses recommended that I talk ...

thanks all

arefarm
  • By arefarm · Posted October 26, 2009
  • 8 replies
  • Matt and I were a bit afraid to enter this site, however We've gotten so much support, information and respect its been GREAT!!! I hope everyone has the same situation. We are going home and as I said ...

omg

jmch
  • By jmch · Posted October 26, 2009
  • 12 replies
  • So, as part of his therapy and health program, Craig is making Cheyenne's Texas Chili recipe, without potatoes but with beans. It is hours from done but mmmmmm the smells in this house! I'll report back ...

Bleeding week after turb

summer2018
  • By summer2018 · Posted October 26, 2009
  • 6 replies
  • I have had six turb's. The last one I had was at sloan Oct 16th. On the 25th I start urinating blood and passing blood clots. This last from 9:30pm till morning. This has happen to me on two other turbs ...

Bob needs chemo

joybob
  • By joybob · Posted October 26, 2009
  • 40 replies
  • Well, I have known this since Thursday, Kamat called a week after his assistant. You know the girl that said everything was good, no nodes involved, etc. I was worried, and I was critized for my "sense ...

neobladder surgery

arefarm
  • By arefarm · Posted October 25, 2009
  • 16 replies
  • HI, well its over, the surgery I mean. The doc/surgeon is very optimistic, considering he had rated it at a stage 4 before surgery. Mayo is an awesome place to be. Next hurdle is a round of Chemo. Everything ...

Recovery - Part 2

Trishka
  • By Trishka · Posted October 25, 2009
  • 12 replies
  • Hi everyone, we left hospital on Thursday evening with Andrew still feeling a little wary of getting through the night and being in 1 piece by morning. I understood his concern as he had to be rushed ...

After Surgery

JQ
  • By JQ · Posted October 24, 2009
  • 8 replies
  • My third TURBT seems to have been successful in terms of removing the tumors and instilling the mitomycin. I can't say I've been waiting for the pain to set in, but I knew it was coming. Interesting that ...

When it rains, it pours

cat22
  • By cat22 · Posted October 23, 2009
  • 31 replies
  • Well, thank God Ben is doing well. I just found out my dear Aunt (86) is in the hospital and will be having gall bladder surgery in the morning. To top that off, a few hours earlier, my brother was admitted ...

2nd BCG

mycopper
  • By mycopper · Posted October 23, 2009
  • 5 replies
  • Things went good today with thhe cathe. Same nurse who finally got it in last time got it in before he even realized it. He had less pain and less embarrassment. Yeah ...

Lynda is up and fighting

lyke2travel
  • By lyke2travel · Posted October 23, 2009
  • 14 replies
  • Just wanted to post a quick note to let everyone how she is doing and thank everyone for all their support to her and I. Went down to Boston today and she is looking really good. Was really surprised ...

Lyke2travel doing o.k. so far..

Ciboney1
  • By Ciboney1 · Posted October 23, 2009
  • 1 reply
  • Kelly just emailed me and said Lynda is walking alot and eating some food...Maybe able to come home this weekend.. Good luck to both of them... Arlene ...

Good news today....

DRB
  • By DRB · Posted October 23, 2009
  • 21 replies
  • It's been a little over 2 weeks since my husband (David's) RC surgery. We went today for a check-up and to get his staples removed. The doctor said he looked fabulous especially having just gone through ...

One year "all clear"

Tagmike
  • By Tagmike · Posted October 23, 2009
  • 18 replies
  • A year and a month cancer free, today the all clear again. Coming up I have to see an ENT about my balance problems, A testing for type2 diabetes, and a colonoscopy next month for this unexplained pain ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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