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Journals

A couple bad days

loonym
  • By loonym · Posted November 4, 2009
  • 22 replies
  • Some of you may know I had a failed RC. I still have my bladder although it's not used by my body. Monday afternoon around 1 PM I started having painful spasms and the overwhelming feeling that I had ...

Christmas for Annebelle

joybob
  • By joybob · Posted November 4, 2009
  • 31 replies
  • Dear bcan members, so many have asked how Jon and Annebelle are doing. They are doing ok. Jon has posted Annebelles picture up occassionally, and she is a doll. So many have asked what they can do for ...

chemo for Bob

joybob
  • By joybob · Posted November 4, 2009
  • 26 replies
  • went to doctor today. He dicussed with Bob doing the chemo because some cells in fatty layer. He explained it was an insurance policy. He said Bob could be in the group that needs nothing and this will ...

Bladder Cancer Treatment Guidelines for Patients

mmc
  • By mmc · Posted November 4, 2009
  • 3 replies
  • I'm a process oriented guy with a history of bladder cancer and I decided to put together a process flow chart of the bladder cancer journey. My hope is that this will be helpful for patients to use with ...

Sharing

Shiz
  • By Shiz · Posted November 4, 2009
  • 23 replies
  • I had a follow up appointment yesterday for my biopsy last month. No sign of cancer, whooo hoooo! BCG resumes December 7. 3 treatments at a lower dose. Another scope /biopsy in 3 months. I asked about ...

Ben has completed Cycle 2 Dose Dense MVAC

cat22
  • By cat22 · Posted November 3, 2009
  • 20 replies
  • I am happy to be posting that Ben has completed Cycle 2 and we left the hospital this afternoon and went out for an early dinner. I am so thankful that he has not had any serious side effects, and I'm ...

contact with Momof five

joybob
  • By joybob · Posted November 3, 2009
  • 32 replies
  • I just wanted everyone to know that I am in contact with Mom of five. She is doing ok. One of her young sons has been sick but coming along. She is managing and has been busy. We will talk by phone later ...

A few set backs after surgery....

DRB
  • By DRB · Posted November 2, 2009
  • 14 replies
  • Just wanted to give a quick update on my husband. He had his RC surgery on Oct. 7th. It's been a little over 3 weeks. Everything was going fine up until last week he started complaining of severe back ...

Canadian BC Support Group Now Available

Moonerj
  • By Moonerj · Posted November 2, 2009
  • 15 replies
  • Hi Everyone Today the Canadian Bladder Cancer Network officially opened. Our group of volunteers will be available to assist newly dx and veterans of this disease. We are a non-profit group dedicated ...

Bladder Cancer

Eudy
  • By Eudy · Posted November 2, 2009
  • 8 replies
  • No sleep so many nights with no sleep ...

home after neo surgery

arefarm
  • By arefarm · Posted November 1, 2009
  • 2 replies
  • HI, all is going well after a few small complications, However has anyone had anyone had any difficulties with the cath wanting to come out? It does not seem to be a major issue at the moment and will ...

Ed had his CAT scan after completion of 2 rounds of dense dose M-VAC

georgiaE
  • By georgiaE · Posted November 1, 2009
  • 35 replies
  • Ed had his cat scan friday after the completion of two rounds of dose dense M-VAC for the mets to his liver. When first discovered, Ed had 5, one cenimeter tumors in his liver and a couple of spots on ...

The beginning of my journey with BC

Kyle-MO
  • By Kyle-MO · Posted October 30, 2009
  • 8 replies
  • This is how my personal journey all began in July, 2007 I had been working on building my garage that Summer, and when I first noticed blood in my urine, I thought I had just overdone it a bit, but within ...

New Granddaughter

fowlair
  • By fowlair · Posted October 30, 2009
  • 11 replies
  • My new granddaughter was born Friday, Oct. 23. I was able to be in the delivery room and see her birth. What a beautiful baby girl! (Do I sound like a grandma?) Makes you think about the cycle of life ...

The people

loonym
  • By loonym · Posted October 29, 2009
  • 15 replies
  • It's really the only reason I've hung around as long as I have. I've met so many wonderful friends here, and continue to do so everyday. I know one very happy little girl, thanks to the thoughtfulness ...

Researchers looking for bladder cancer survivors to complete a survey

BCAN_Claire
  • By BCAN_Claire · Posted October 29, 2009
  • 3 replies
  • Researchers from Texas are recruiting men and women diagnosed with bladder cancer within the last four years to complete a telephone survey. Baylor College of Medicine and the Michael E. DeBakey VA Medical ...

radiation info.

karenanne9
  • By karenanne9 · Posted October 29, 2009
  • 2 replies
  • i had my rc in september, path came back as high recurrent possiblity.yes it was in my lypme nodeds, knew that before surgrey, but not all that were taken out were postive for cancer. i did 6 cycles of ...

opted not to have bladder removed

polopony
  • By polopony · Posted October 29, 2009
  • 11 replies
  • In July, my husband decided not to have cystectomy but to have chemo and radiation for his stage 3 bladder tumor, so the urologist took out the whole tumor and he got the treatments and did ok. Today ...

not posting for awhile

joybob
  • By joybob · Posted October 29, 2009
  • 28 replies
  • I will not be posting for awhile, this has be too overwhelming for me. We are at a crossroad, and my husband needs my undivided attention. My dear friends have my e mail address joybobbev@aol.com. Thak ...

BEATITUDES FOR THE HOME

Mike-PW
  • By Mike-PW · Posted October 29, 2009
  • 3 replies
  • BLESSED are the husband and wife who continue to be affectionate and considerate, loving after the wedding bells have ceased ringing. BLESSED are the husband and wife who are as polite and courteous to ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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