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Welcome to Inspire!

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Journals

Life goes on.

2LKF
  • By 2LKF · Posted November 17, 2009
  • 14 replies
  • I am finally healed from the surgery for the parastomal hernia. This took over three months to heal, as I busted open a week after my surgery. What a mess this was--- when the staples were removed I had ...

Finally...

loonym
  • By loonym · Posted November 16, 2009
  • 28 replies
  • I actually had a day, the first in around 3 weeks, that the pain was something less than unbearable. The doctor bumped up my kadian again last week. My dose of that is 300mg twice a day now and she told ...

BCG

nsk
  • By nsk · Posted November 16, 2009
  • 23 replies
  • Tomorrow is my third bcg treatment.This will mark my hafway point in mybcg cycle. Ihope this one goes as easy as the first 2 ...

This is my urethral cancer story

ontameable
  • By ontameable · Posted November 15, 2009
  • 5 replies
  • This is my story......... Its started back in about 1997, I got UTI's all the time. It was like i would go to the doctor every 6 weeks and they would tell me i had another infection it was like they would ...

My Mass Removed

carolml
  • By carolml · Posted November 14, 2009
  • 10 replies
  • Thursday was my surgical removal of the mass on my bladder. Remind me when in pain not to ask for more pain medicine... I threw up 2 times at the hospital, 4 times on the way home, and 12 times that night ...

GOOD MORINING EVERYONE....

sonia40
  • By sonia40 · Posted November 14, 2009
  • 10 replies
  • Hello all my wonderful and caring friends...i slept in the lounge last night as i was up practically every half hr to urinate....very painfull burning sensation....i didnt realise how common IC is....and ...

JUST CAME BACK FROM THE HOSPITAL....

sonia40
  • By sonia40 · Posted November 14, 2009
  • 12 replies
  • Hello all well its been a preety rough weekend...went in on friday morning for a laproscopy, hysteroscopy, cystoscopy and a curette....well the doctor came in to see me in recovery and briefly mentioned ...

Biopsy surgery went well

Kyle-MO
  • By Kyle-MO · Posted November 13, 2009
  • 23 replies
  • I had my biopsy surgery Wednesday 11/11/09 It went very well. I had to be at the hospital at 8:00 A.M. Went to the holding area at 10:00 A.M. Out of surgery at 11:00, and out of recovery, and back in ...

Ben's MVAC Cycle 3 coming up!!!!

cat22
  • By cat22 · Posted November 12, 2009
  • 28 replies
  • We went to the Oncologist today. Ben's counts are good - NO DELAYS- next chemo infusion will be on Monday. Oncologist is very pleased with Ben's tolerance to this regimen. Thanks for all of your past ...

Cataract surgery!

Annasvenska
  • By Annasvenska · Posted November 11, 2009
  • 25 replies
  • Today I had the dreaded cataract surgery. It was just something about having surgery in my eye that was very unfomorting to me. I even aksed the opthalmologist to not go into detail when describing the ...

I do not wish to share any personal info.

kanjan
  • By kanjan · Posted November 11, 2009
  • 14 replies
  • I'm not 18. Let's say I'm some where between 18 and death. I am happy to share my experiences as a care-giver. Kanjan ...

Treatments start tomorrow

Stuckdh
  • By Stuckdh · Posted November 11, 2009
  • 22 replies
  • Well tomorrow I start my treatments. I am not sure how I feel overall. There is the feeling of finally moving forward and also that feeling of optimism. I know it will work and be a journey. I also know ...

San Francisco BCAN Conference 11/7/09

carolml
  • By carolml · Posted November 10, 2009
  • 3 replies
  • I wish to personally thank all those who worked so hard to put on this excellent program. I feel blessed to have been able to attend, and have come away from the experience much more knowledgable. The ...

Today Is Very Special For Me

Moonerj
  • By Moonerj · Posted November 10, 2009
  • 49 replies
  • Hi Everyone. Well a few years ago after having a few recurrences, and struggling with BCG treatments, I never dreamed this day would come. I can officially say I am 2 YEARS Cancer free today. Thanks to ...

Treatment day for hubby :)

JeanneS
  • By JeanneS · Posted November 9, 2009
  • 12 replies
  • Hi all. I must admit I was a lot nervous before we left. I became friends with the bathroom. :>o But, I felt better as soon as we got there. The people are really nice, and make you feel at ease. I went ...

San Francisco Patient Forum a Success!

BCAN_Claire
  • By BCAN_Claire · Posted November 8, 2009
  • 24 replies
  • On a beautiful Saturday in San Francisco, 160 people packed into the Mission Bay Conference Center at UCSF to learn more about bladder cancer. The presentations from urologists / urologic oncologists ...

Starting a journey

Stuckdh
  • By Stuckdh · Posted November 8, 2009
  • 22 replies
  • It has been 4 weeks since initially diagnosed with bladder cancer. Thursday the results of the biopsy came back and I have high grade CIS cancer of the bladder. That God for kidney stones since that was ...

questions re: my deleted post

joybob
  • By joybob · Posted November 7, 2009
  • 43 replies
  • beth has advised me that if any of you had any questions re; my delted post please talk to her. I can not possibly answer all mail today. thanks, joycee ...

mucous

jumbleigh
  • By jumbleigh · Posted November 7, 2009
  • 7 replies
  • My husband is having trouble today with mucous. He is blocked. We were not given cath instructions as the doctor only wanted it done by a professional in the beginning. I think we need to go to the hospital ...

Going Home

Trishka
  • By Trishka · Posted November 7, 2009
  • 17 replies
  • Hi everyone, It's our last full day today and I really should be packing. Somehow or other we have alot more 'stuff' than we came with... can't blame it on the shopping expedition to the biggest Mall ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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