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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

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Journals

San Francisco Patient Forum a Success!

BCAN_Claire
  • By BCAN_Claire · Posted 11:07 am
  • 7 replies
  • On a beautiful Saturday in San Francisco, 160 people packed into the Mission Bay Conference Center at UCSF to learn more about bladder cancer. The presentations from urologists / urologic oncologists ...

Starting a journey

Stuckdh
  • By Stuckdh · Posted 9:46 am
  • 5 replies
  • It has been 4 weeks since initially diagnosed with bladder cancer. Thursday the results of the biopsy came back and I have high grade CIS cancer of the bladder. That God for kidney stones since that was ...

questions re: my deleted post

joybob
  • By joybob · Posted yesterday at 7:52 pm
  • 17 replies
  • beth has advised me that if any of you had any questions re; my delted post please talk to her. I can not possibly answer all mail today. thanks, joycee ...

mucous

jumbleigh
  • By jumbleigh · Posted yesterday at 8:59 am
  • 6 replies
  • My husband is having trouble today with mucous. He is blocked. We were not given cath instructions as the doctor only wanted it done by a professional in the beginning. I think we need to go to the hospital ...

Going Home

Trishka
  • By Trishka · Posted yesterday at 8:45 am
  • 16 replies
  • Hi everyone, It's our last full day today and I really should be packing. Somehow or other we have alot more 'stuff' than we came with... can't blame it on the shopping expedition to the biggest Mall ...

"Life Changes and We Change To Adjust To It"

Ciboney1
  • By Ciboney1 · Posted yesterday at 12:00 am
  • 30 replies
  • I have been missing from here for a while with not much to say; because of some issues here on the forum and because I have had some news I didn't want to hear ( as I know many of you have had the same ...

chemo before or after cystectomy?

mlm520
  • By mlm520 · Posted November 6, 2009
  • 8 replies
  • I am facing a total cystectomy and my doctors say I should have chemo before surgery. I am stage 2 transitional cell carcinoma. I was wondering what anyone else has done in my same position. I am worried ...

All Clear

Baa
  • By Baa · Posted November 5, 2009
  • 12 replies
  • I just got the path report from my last biopsy on 10/27. All clear! What the Uro saw during the cysto turned out to be inflamations, probably from all the BCG treatments, but no cancer. I will have a ...

A couple bad days

loonym
  • By loonym · Posted November 4, 2009
  • 22 replies
  • Some of you may know I had a failed RC. I still have my bladder although it's not used by my body. Monday afternoon around 1 PM I started having painful spasms and the overwhelming feeling that I had ...

Christmas for Annebelle

joybob
  • By joybob · Posted November 4, 2009
  • 23 replies
  • Dear bcan members, so many have asked how Jon and Annebelle are doing. They are doing ok. Jon has posted Annebelles picture up occassionally, and she is a doll. So many have asked what they can do for ...

chemo for Bob

joybob
  • By joybob · Posted November 4, 2009
  • 26 replies
  • went to doctor today. He dicussed with Bob doing the chemo because some cells in fatty layer. He explained it was an insurance policy. He said Bob could be in the group that needs nothing and this will ...

Bladder Cancer Treatment Guidelines for Patients

mmc
  • By mmc · Posted November 4, 2009
  • 3 replies
  • I'm a process oriented guy with a history of bladder cancer and I decided to put together a process flow chart of the bladder cancer journey. My hope is that this will be helpful for patients to use with ...

Sharing

Shiz
  • By Shiz · Posted November 4, 2009
  • 23 replies
  • I had a follow up appointment yesterday for my biopsy last month. No sign of cancer, whooo hoooo! BCG resumes December 7. 3 treatments at a lower dose. Another scope /biopsy in 3 months. I asked about ...

Ben has completed Cycle 2 Dose Dense MVAC

cat22
  • By cat22 · Posted November 3, 2009
  • 20 replies
  • I am happy to be posting that Ben has completed Cycle 2 and we left the hospital this afternoon and went out for an early dinner. I am so thankful that he has not had any serious side effects, and I'm ...

contact with Momof five

joybob
  • By joybob · Posted November 3, 2009
  • 32 replies
  • I just wanted everyone to know that I am in contact with Mom of five. She is doing ok. One of her young sons has been sick but coming along. She is managing and has been busy. We will talk by phone later ...

A few set backs after surgery....

DRB
  • By DRB · Posted November 2, 2009
  • 14 replies
  • Just wanted to give a quick update on my husband. He had his RC surgery on Oct. 7th. It's been a little over 3 weeks. Everything was going fine up until last week he started complaining of severe back ...

Canadian BC Support Group Now Available

Moonerj
  • By Moonerj · Posted November 2, 2009
  • 15 replies
  • Hi Everyone Today the Canadian Bladder Cancer Network officially opened. Our group of volunteers will be available to assist newly dx and veterans of this disease. We are a non-profit group dedicated ...

Bladder Cancer

Eudy
  • By Eudy · Posted November 2, 2009
  • 8 replies
  • No sleep so many nights with no sleep ...

home after neo surgery

arefarm
  • By arefarm · Posted November 1, 2009
  • 2 replies
  • HI, all is going well after a few small complications, However has anyone had anyone had any difficulties with the cath wanting to come out? It does not seem to be a major issue at the moment and will ...

Ed had his CAT scan after completion of 2 rounds of dense dose M-VAC

georgiaE
  • By georgiaE · Posted November 1, 2009
  • 35 replies
  • Ed had his cat scan friday after the completion of two rounds of dose dense M-VAC for the mets to his liver. When first discovered, Ed had 5, one cenimeter tumors in his liver and a couple of spots on ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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