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Ed had his CAT scan after completion of 2 rounds of dense dose M-VAC

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Ed had his cat scan friday after the completion of two rounds of dose dense M-VAC for the mets to his liver. When first discovered, Ed had 5, one cenimeter tumors in his liver and a couple of spots on the outer lining of his stomach and was considered terminal with 4 months to live without treatment and up to 8 months with treatment. His doses had to be taylored for him and what he could tolerate. Three of the four chemo drugs were cut back by 25% because of the effect on his white counts, and his cisplatin was left at full dosage because it is the most effect of the drugs for mets. Dr Assikis was hoping with this cat scan that his cancer would not have progressed any, but stayed the same. It was too early and too little chemo given so far to do much better at this time. He called us this afternoon instead of making us wait until our visit with him on tuesday. He called and said it was not good news, but could be worse. He said the cancer has only grown 10% and it needs to grow from 20% to 50% before it is established that it is not working. He also has 3 new, small ones in his liver, but Dr Assikis said they could have been there but just below the radar 2 months ago. He also said it could be too soon to show results and he would like Ed to do 2 more rounds and have another cat scan before thinking about something else. So we have had another set back but were not expecting anything significant.
Has anyone else had similar results early on . We are still going to fight and hope and pray for as much time as possible. Ed feels great. Candon

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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