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A few set backs after surgery....

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Just wanted to give a quick update on my husband. He had his RC surgery on Oct. 7th. It's been a little over 3 weeks. Everything was going fine up until last week he started complaining of severe back pain. He can take a lot of pain so I know it was hurting him pretty bad. It started shortly after they removed the ureter tubes from his kidneys. Well today we went back to get a scan of his kidneys and the good news is it's not a clot or any sort of blockage. One side is flowing a little slower than the other side..Sometimes after this surgery things like this happen..They said to drink plenty of water and hopefully it will clear out on it's on....if not, I guess they will put a stent back in. We hope that will not be the case. The pain was not as bad today as it was over the weekend.

Okay....one more thing......last week we noticed his incision was opening a little (about a week after they took the staples out). OH MY GOSH....the next morning a HUGE area split wide open.....we had to go back to the hospital to see a Wound Care Nurse to show me what to do. She gave me instructions on how to pack the wound and clean it. I said can they just stitch him back up PLEASE....and she said no...the wound has to heal from the inside out.....so needless to say I have to clean this HUGE hole in my husbands abdomen everyday for weeks until it heals. Before his cancer treatments, I could barely go into a hospital without feeling faint....now I feel like I can work in an ER.....his nurses are so proud of me. Nurses are amazing!! He is training his new neobladder and so far no problems with that!!! Hopefully everyday will get a little better. We are very blessed that the surgery was a success and we can deal with a few setbacks. Good luck to everyone who had surgery this month and are in the healing process.

Thanks for listening.

STACEY

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

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Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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