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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

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Recommended discussions

RECOMMENDED Discussions and Journals...

BJsHere
  • By BJsHere · Posted June 16, 2009
  • In Help desk · 12 recommendations
  • Since I have been on this site the end of December 2009, there has been a wealth of information posted. Sometimes I forget where it was or the title. If you look below the orange columns you will see ...

BLADDER CANCER Should Be the FIGHT . . .

BJsHere
  • By BJsHere · Posted October 27, 2009
  • In Taking charge: How to be a proactive patient · 8 recommendations
  • I have been sitting back, watching and waiting before writing this post. Katz, is my personal friend. This is not about her but you might say "it was the straw that broke the camels back". I ask that ...

REALITY CHECK

daveyo
  • By daveyo · Posted October 20, 2009
  • In Life after radical cystectomy · 7 recommendations
  • well, as i sit here with my freddy, (my adopted basset hound)....i think about all i read and where i am. i feel ok,,,i have neuropathy in my right leg and in both hands....but i figure, so be it,,,,i ...

THE HEALTH SURROGATE - HOW TO TAKE CHARGE OF YOUR LOVED ONE'S CARE

baudine
  • By baudine · Posted July 13, 2009
  • In Caregivers corner · 6 recommendations
  • Many of you may have read this post I did for another member who found herself in the hospital with a spouse who developed infections following his surgery along with other complications. I was asked ...

Where I'm at.

michaeldbentz
  • By michaeldbentz · Posted November 13, 2009
  • In Life after radical cystectomy · 5 recommendations
  • Hey guys, it's been awhile since I've posted so I thought I would update you: R/C was April 6, neobladder busted when fascia broke on April 22. I am still wearing a Depends for leakage and I'm incontinent ...

Neobladder versus Ileal Conduit/Indiana Pouch

RickB
  • By RickB · Posted October 17, 2009
  • In Treatment choices · 5 recommendations
  • I have posted this a couple of times in response to specific questions by members, but someone recommended that I post it on its own. Doing so will hopefully make it easier to find and will also trigger ...

CAUTION with Choice of Doctor, Especially, 2nd Opinion ....

BJsHere
  • By BJsHere · Posted May 22, 2009
  • In Taking charge: How to be a proactive patient · 5 recommendations
  • I choose to share this with you so as to Open Your Mind... Clear your Head when choosing your Doctor. This is longer than I would like but it is important for you to see where it lead me. It is not meant ...

Free Thought / Expression on this Site... Censorship?

BJsHere
  • By BJsHere · Posted May 19, 2009
  • In Help desk · 5 recommendations
  • I saw a Goodbye post from Jeanne. It disturbed me very much. I was compelled to stop the job I am working on to respond. I am writing this deeply moved by something that most of us don't understand. What ...

STOMAS~POUCHES/BAGS and You

BJsHere
  • By BJsHere · Posted April 7, 2009
  • In Taking charge: How to be a proactive patient · 5 recommendations
  • I have important questions that I would like to address regarding the Stoma and Pouches. I am eager for the response. I ask that we don't get too carried away when referencing the Stoma. STOMA~ What is ...

OPTIONS FOR STAGE 1 TUMOR?

PRODUCTSJOHN
  • By PRODUCTSJOHN · Posted October 30, 2008
  • In Treatment choices · 5 recommendations
  • I was wondering if anyone was familiar with other options for stage 1 bladder cancer. At first the Dr. said that the tumor was penetrating the muscle, but after reviewing the pathology report she said ...

Caregivers

spaisley39
  • By spaisley39 · Posted November 1, 2009
  • In Living with non-invasive bladder cancer · 4 recommendations
  • Hello all, I hope you all had a nice Halloween with a lot of adorable trick or treaters! I simply wanted to thank all of the "Caregivers" on this site. You have all given me so much insight as to how ...

What This Site Means To A Newbie

mendo_lady
  • By mendo_lady · Posted August 20, 2009
  • In Caregivers corner · 4 recommendations
  • Hello I have never signed up for anything in my life. I found out in March that my hunny Blaine had invasive bladder cancer. You leave the doctors office and say what - I had never even heard of bc. Questions ...

Raising awareness of bladder cancer on cigarette warning labels (2nd post)

BCAN_Claire
  • By BCAN_Claire · Posted August 12, 2009
  • In Help desk · 4 recommendations
  • Please help BCAN raise awareness for bladder cancer by writing to the FDA and asking them to add "WARNING: Smoking causes bladder cancer" to the warning labels of cigarettes and other tobacco products ...

More Awareness of Bladder Cancer

balihigh
  • By balihigh · Posted August 5, 2009
  • In Life after radical cystectomy · 4 recommendations
  • My homeowner's association(38 familes) prints a small newsletter 3 or 4 times a year. I wrote an article for it and shared it with Claire. She asked that I post it here. Many of you may have places-churches ...

North Carolina Picnic in the News Again

balihigh
  • By balihigh · Posted July 27, 2009
  • In Taking charge: How to be a proactive patient · 4 recommendations
  • Veronica wrote this article for the local paper (The Mountaineer) last Monday. I tried to get it into one of last weeks papers, comes out only on M, Wed, Fri, but they take their time. Finally in today's ...

Calendar for October......take a look

roadrunner
  • By roadrunner · Posted September 28, 2009
  • In Caregivers corner · 3 recommendations
  • Heres the whose who for October! October 1rst......Sincerely2.chemo,,,, October 3rd.......PattyL.........chemo October 4th.......Nancynurse....cysto October 5th.......RLayne.....check up after r/c October ...

good overview of bladder ca-diag,tmt,follow up

jj803
  • By jj803 · Posted September 6, 2009
  • In Taking charge: How to be a proactive patient · 3 recommendations
  • just ran across a good overview of bladder cancer treatment, diagnosis, follow up and prognosis. as we have discovered the follow up protocol for those with cystectomies is much more variable than implied ...

Please Stop

simpleone
  • By simpleone · Posted August 22, 2009
  • In Taking charge: How to be a proactive patient · 3 recommendations
  • My goodness what is everyone doing? Didn’t we all come here because we or someone we love have bladder cancer? This stuff is so petty. I can’t believe we are at the point that from an outsider looking ...

Cancer odors

beckey
  • By beckey · Posted August 22, 2009
  • In Caregivers corner · 3 recommendations
  • I have a patient who is 93 y.o. She was perfectly healthy until 4 months ago when she was diagnosed with bladder cancer. She has a foley catheter (which is changed frequently and irrigated 3 times a day ...

REACH OUT~ Try the PHONE . . .

BJsHere
  • By BJsHere · Posted August 17, 2009
  • In Taking charge: How to be a proactive patient · 3 recommendations
  • I just had the "most lovely" (as the Brits would say) phone call with Miss SuzyWong in the UK. From time to time I check on friends via the phone. I needed to make sure she was alright and let her hear ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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