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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

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Active discussions

Our new Christmas photo

JeanneS

DECEMBER...who's having surgery or tests? last calendar!!!

roadrunner
  • By roadrunner · New reply 12:39 am
  • In Caregivers corner · 9 replies
  • The last Month of the year, December brings the Holidays, and a close to the year, 2010...hopefully will be a good year for all here on inspire.......... If you are having surgery or tests in December ...

The Incidence of Smoking-related Bladder Cancer May Be Increasing

Ciboney1
  • By Ciboney1 · New reply yesterday at 11:44 pm
  • In Taking charge: How to be a proactive patient · 3 replies
  • Article on Smoking and relationship to Bladder Cancer. Smokers may have interest in this article from "Caring for Cancer" Web Site.. http://www.caring4cancer.com/go/cancer/n ews?NewsItemId=44306 Arlene ...

Starting BCG

Burb
  • By Burb · New reply yesterday at 10:27 pm
  • In Living with non-invasive bladder cancer · 3 replies
  • I'm starting BCG on Monday. In August I had Mitomycin C and I found that pretty "stingy" to put it mildly. Could some folks who have gone through BCG tell me their experiances? How did you feel the day ...

bob went of oncologist today now what!~

joybob
  • By joybob · New reply yesterday at 10:15 pm
  • In Living with invasive bladder cancer · 47 replies
  • Went to MD Anderson Orlando met with oncologist. He told Bob there is a 50% chance the cancer will come back in 18 months. He said the chemo may or may not help by 5-10%. He said if it were his father ...

November.....who's having tests or surgery?Let us know....

roadrunner
  • By roadrunner · New reply yesterday at 10:01 pm
  • In Caregivers corner · 33 replies
  • Yikkkeees...its almost NOVEMBER!!!! All of you who are having any type of tests, or surgery, please let me know here,, in a few days, you will see the CALENDAR FOR NOVEMBER.... Along with prayers for ...

looking for support

aecann
  • By aecann · New reply yesterday at 9:52 pm
  • In Caregivers corner · 3 replies
  • I can only describe myself as frustrated. Bill's bladder was removed mid Oct along with prostate, lymph nodes and some amount of muscle. Is any one else who has been given some amount of charge over said ...

Thanks

Girly1
  • By Girly1 · New reply yesterday at 6:37 pm
  • In Living with non-invasive bladder cancer · 2 replies
  • Thank you to everyone who has replied.As far as the shingles I already thought of that but I am the queen of the shingles I have had them 4 times. Twice in my thirties, and 2 times in my early forties ...

When Doctors call late in the day

Jimbo1968
  • By Jimbo1968 · New reply yesterday at 6:30 pm
  • In Living with non-invasive bladder cancer · 23 replies
  • Well the doctor called late yesterday. He called to to tell me biopsy result came back clear - no cancer!!!!! Thanks to all those that sent positive waves and prayers. No doctor appts for like 5 weeks ...

NOVEMEBER CALENDAR......take a look....

roadrunner
  • By roadrunner · New reply yesterday at 5:21 pm
  • In Caregivers corner · 33 replies
  • Thanksgiving is near...we have much to be grateful for....a whole cast of people here on the forum...willing to help each other. On to November......here is the calendar of who is doing what and when...tests ...

Where I'm at.

michaeldbentz
  • By michaeldbentz · New reply yesterday at 3:13 pm
  • In Life after radical cystectomy · 41 replies
  • Hey guys, it's been awhile since I've posted so I thought I would update you: R/C was April 6, neobladder busted when fascia broke on April 22. I am still wearing a Depends for leakage and I'm incontinent ...

Gentleman,,have you had this problem?

roadrunner
  • By roadrunner · New reply yesterday at 3:02 pm
  • In Caregivers corner · 19 replies
  • Well another dilemma, I was wondering if after your r/c you have a problem with your testsicles swelling? My husbnad has one double the size of the other,and........is tender to the touch....I belive ...

Not even close to on topic , but interesting

JeanneS
  • By JeanneS · New reply yesterday at 9:23 am
  • In Living with non-invasive bladder cancer · 10 replies
  • I will be having a verrrrrrrrry busy week, so I thought I would pass on this tidbit I found . I didn't know this How Pumpkin Pies are made ...

I guess I will keep looking on the internet until I figure it out myself

Girly1
  • By Girly1 · New reply yesterday at 9:22 am
  • In Living with invasive bladder cancer · 11 replies
  • Last week I ask if anyone ever had these weird pains. Well Iam still having them and they were so bad when I went to the primary care doctor they wanted to call an ambulance for me. I told the doctor ...

FISH & adjunct tests

jj803
  • By jj803 · New reply yesterday at 8:33 am
  • In Treatment choices · 11 replies
  • I know that many of the adjunctive tests for following bc come up from time to time (urine cytology, urine FISH, nmp 22, etc). I just looked at a recent paper in urotoday that discussed the sensitivities ...

Acupuncture: reporting in after BCG #5

SilverGrizzly
  • By SilverGrizzly · New reply November 19, 2009
  • In Living with non-invasive bladder cancer · 16 replies
  • So far I have been very pleased with how the acupuncture has helped my BCG side effects, which were considerable from day one of installation one. Each week I get an acupuncture session the day after ...

NMP22 & Scope improves detection of recurrence up to 99%

SilverGrizzly
  • By SilverGrizzly · New reply November 19, 2009
  • In Living with non-invasive bladder cancer · 3 replies
  • A study on using NNP22 as well as cystoscopy to check for recurrence showed that the two together improved detection rates up to 99%. The NMP22 test detected 8 of 9 cancers not found by cystoscopy alone ...

Neobladder surgery clip

Annasvenska
  • By Annasvenska · New reply November 19, 2009
  • In Newly diagnosed · 4 replies
  • All you whom are facing radical cystectomy might want to watch this. http://kstc45.com/article/stories/S12570 32.shtml?cat=10905 There is life after neobladder ...

Bladder Cancer Treatment Guide for Patients

mmc
  • By mmc · New reply November 19, 2009
  • In Newly diagnosed · 17 replies
  • I'm a process oriented guy with a history of bladder cancer and I decided to put together a process flow chart of the bladder cancer journey. My hope is that this will be helpful for patients to use with ...

THANKSGIVING ....what it means to you!!!

roadrunner
  • By roadrunner · New reply November 19, 2009
  • In Caregivers corner · 7 replies
  • Is it turkey ? stuffing.....mashed potatoes, cole slaw, cranberries,sweet potatoes, cranberries, pumkin pie? And before the feast, what will you say, what will be your prayer. Its tough in this economy ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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