Discussions
blue light cystoscopy
- By joyus · Posted June 13, 2013
- In Taking charge: How to be a proactive patient · 6 replies
- Is this becoming more the norm. I was hoping to have it done but Stanford university hospital chose not to purchase the maching. Dr. Skinner who is head of urology at stanford was the one who brought ...
Neph tube - stent. What's happening?
- By NC_Karen · Posted June 12, 2013
- In Life after radical cystectomy · 10 replies
- After being hospitalized twice for kidney infections my husband is having a neph tube installed (is that even the right word?) on Friday. He had a loopogram that showed they could not reflux any fluid ...
Kidney "stent exchange"
- By 1920 · Posted June 12, 2013
- In Life after radical cystectomy · 9 replies
- Hi all - 5 weeks after my surgery a CT scan, ordered when I was suffering from several days of lower abdominal pain (turned out to be a return of C. diff.), revealed a swollen kidney. I had had no flank ...
Advise for a Hernia?
- By Darbi · Posted June 12, 2013
- In Life after radical cystectomy · 3 replies
- My boyfriend had a RC about 6 weeks ago, and one of the main sources of discomfort for him is a hernia that developed on one side. He is not a current candidate for corrective surgery, as he may need ...
Cathing is getting difficult
- By birdman · Posted June 12, 2013
- In Life after radical cystectomy · 11 replies
- I have been cathing for over 4 yrs now and had to change from straight tip to coude(curved tip ) to get through.It now seems as though i'm pushing against a wall,doesnt go through easy anymore.Is this ...
paying for health care
- By orkoerber · Posted June 12, 2013
- In Metastatic bladder cancer · 5 replies
- My husband is in his second set of chemos for stage IV. We own and operate a dairy farm. Last year we sold many cows in order to lessen the work load. As of June 1st, we have lost our state insurance ...
One week post op
- By JD_the_strat_man · Posted June 12, 2013
- In Taking charge: How to be a proactive patient · 18 replies
- Things are going very well, textbook actually. I'm getting bored and restless. My mind is going 100 miles and hour and my body says stay in low gear, that's very hard for me. I'm not a big TV fan, I am ...
UPDATE was Post Op day 4
- By MelanieCav · Posted June 12, 2013
- In Taking charge: How to be a proactive patient · 9 replies
- Yahoo!!!!! I'm home. Dr was in around 6 this morning said as long as my drain test this a.m. still didnt come back with any urine in it I could go home this evening and someone would be in to take out ...
Supplies/Medicare assignment acceptance
- By julesv · Posted June 11, 2013
- In Life after radical cystectomy · 15 replies
- Husband had ileal conduit since 4/1 -- settled on Convatec supplies -- have been very pleased. He has Medicare. I was surprised that Convatec does not sell their products -- but referred me to suppliers ...
Stoma Protection
- By Jonr · Posted June 11, 2013
- In Life after radical cystectomy · 8 replies
- A couple of weeks ago, someone posted some websites that sold stoma protectors and allowed one to wear a belt with pants, doing away with pesky suspenders. Could that someone repost those sites? Thanks ...
Abnormal Cells showing up...
- By JLM2580 · Posted June 11, 2013
- In Living with non-invasive bladder cancer · 2 replies
- I have had bladder cancer now since 09 when I was diagnosed at age 29. The tumors have come back three different times but for the past 2 years I have been clean. I have been getting cystos every three ...
Mom recently underwent TURBT..Going back tomorrow for results
- By crissy82 · Posted June 11, 2013
- In Caregivers corner · 11 replies
- Hi, My mom had a TURBT done last week. The doctor said he got out all that he could of the tumor. But he doesn't think he was able to get it all. It was a very large tumor. My mom's symptoms have been ...
high-intensity focused ultrasound(HIFU)
- By millyh · Posted June 11, 2013
- In Living with invasive bladder cancer · 5 replies
- Has anyone on this board had or heard of this HIFU. Lot of research out of china- some I can read and understand. Other research articles too advanced for my brain right now. My understanding is that ...
How long it will take him to control pee by himself ?
- By Chanya · Posted June 11, 2013
- In Life after radical cystectomy · 2 replies
- Hello My father have just finished RC and have Neo Bladder now . Nowaday urine flow out by itself he doesn't have any feeling to pee and cannot control urine , and he needs to use pad all the time . We ...
Pain 9 months after TURBT
- By Mike-Vary · Posted June 10, 2013
- In Living with non-invasive bladder cancer · 1 reply
- Hello everyone, My mother had a (Ta, low grade) tumor which was removed on September 2012. TURBT was followed by the mitomycin wash inside her bladder. All the cystoscopy check-ups have been clear so ...
retrograde pyelography vs. CT urography
- By Scbythesea · Posted June 10, 2013
- In Newly diagnosed · 9 replies
- One Dr. suggested the retrograde pyelogram, another the CT urogram for looking at the upper urinary tract after a diagnosis of Ta high grade and Tis in the bladder. I realize the retrograde pyelogram ...
Questions about after bladder removal
Correction!
- By SeptLinda11 · Posted June 10, 2013
- In Treatment choices · 1 reply
- The subject line should read: Dr. saying I don't need treatment between 3-mo appts ...
Severe BCG reaction
- By weaver12 · Posted June 10, 2013
- In Newly diagnosed · 4 replies
- My father severe reaction after his 5th BCG treatment. Fever 103, rash, aches, decreased oxygenation and mentation. He was hospitalized x 24 hours and discharged with no further complications.They have ...
Dr. telling me I don't need treatment between spots.
- By SeptLinda11 · Posted June 10, 2013
- In Treatment choices · 6 replies
- I've had bladder cancer for 18 mos and at my last 3mo checkup, my Dr. said he wasn't going to give me any treatment (I had been on Mitimycin after being on BCG, which I had a very severe reaction to ...
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