Join now

Already a member? Sign in

Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

corner corner corner

Discussions

The Incidence of Smoking-related Bladder Cancer May Be Increasing

Ciboney1
  • By Ciboney1 · Posted 8:10 pm
  • In Taking charge: How to be a proactive patient · 1 reply
  • Article on Smoking and relationship to Bladder Cancer. Smokers may have interest in this article from "Caring for Cancer" Web Site.. http://www.caring4cancer.com/go/cancer/n ews?NewsItemId=44306 Arlene ...

Starting BCG

Burb
  • By Burb · Posted 8:08 pm
  • In Living with non-invasive bladder cancer · 2 replies
  • I'm starting BCG on Monday. In August I had Mitomycin C and I found that pretty "stingy" to put it mildly. Could some folks who have gone through BCG tell me their experiances? How did you feel the day ...

Thanks

Girly1
  • By Girly1 · Posted 9:42 am
  • In Living with non-invasive bladder cancer · 2 replies
  • Thank you to everyone who has replied.As far as the shingles I already thought of that but I am the queen of the shingles I have had them 4 times. Twice in my thirties, and 2 times in my early forties ...

bob went of oncologist today now what!~

joybob
  • By joybob · Posted yesterday at 4:02 pm
  • In Living with invasive bladder cancer · 43 replies
  • Went to MD Anderson Orlando met with oncologist. He told Bob there is a 50% chance the cancer will come back in 18 months. He said the chemo may or may not help by 5-10%. He said if it were his father ...

I guess I will keep looking on the internet until I figure it out myself

Girly1
  • By Girly1 · Posted yesterday at 1:45 pm
  • In Living with invasive bladder cancer · 11 replies
  • Last week I ask if anyone ever had these weird pains. Well Iam still having them and they were so bad when I went to the primary care doctor they wanted to call an ambulance for me. I told the doctor ...

NMP22 & Scope improves detection of recurrence up to 99%

SilverGrizzly
  • By SilverGrizzly · Posted yesterday at 7:34 am
  • In Living with non-invasive bladder cancer · 3 replies
  • A study on using NNP22 as well as cystoscopy to check for recurrence showed that the two together improved detection rates up to 99%. The NMP22 test detected 8 of 9 cancers not found by cystoscopy alone ...

THANKSGIVING ....what it means to you!!!

roadrunner
  • By roadrunner · Posted November 18, 2009
  • In Caregivers corner · 7 replies
  • Is it turkey ? stuffing.....mashed potatoes, cole slaw, cranberries,sweet potatoes, cranberries, pumkin pie? And before the feast, what will you say, what will be your prayer. Its tough in this economy ...

Not even close to on topic , but interesting

JeanneS
  • By JeanneS · Posted November 18, 2009
  • In Living with non-invasive bladder cancer · 10 replies
  • I will be having a verrrrrrrrry busy week, so I thought I would pass on this tidbit I found . I didn't know this How Pumpkin Pies are made ...

FISH & adjunct tests

jj803
  • By jj803 · Posted November 18, 2009
  • In Treatment choices · 11 replies
  • I know that many of the adjunctive tests for following bc come up from time to time (urine cytology, urine FISH, nmp 22, etc). I just looked at a recent paper in urotoday that discussed the sensitivities ...

Acupuncture: reporting in after BCG #5

SilverGrizzly
  • By SilverGrizzly · Posted November 18, 2009
  • In Living with non-invasive bladder cancer · 16 replies
  • So far I have been very pleased with how the acupuncture has helped my BCG side effects, which were considerable from day one of installation one. Each week I get an acupuncture session the day after ...

Gentleman,,have you had this problem?

roadrunner
  • By roadrunner · Posted November 17, 2009
  • In Caregivers corner · 19 replies
  • Well another dilemma, I was wondering if after your r/c you have a problem with your testsicles swelling? My husbnad has one double the size of the other,and........is tender to the touch....I belive ...

Neobladder surgery clip

Annasvenska
  • By Annasvenska · Posted November 17, 2009
  • In Newly diagnosed · 4 replies
  • All you whom are facing radical cystectomy might want to watch this. http://kstc45.com/article/stories/S12570 32.shtml?cat=10905 There is life after neobladder ...

TEST RESULTS- DAVID

WOLFLADY
  • By WOLFLADY · Posted November 17, 2009
  • In Caregivers corner · 13 replies
  • GOOD NEWS ! Looks like we can breathe for awhile everyone has been so kind an interesting on this site. David saw his urologist on Friday, was told "anomalies" on FISH test were of no concern, tho David ...

Urostomy question

edclme0267
  • By edclme0267 · Posted November 16, 2009
  • In Life after radical cystectomy · 1 reply
  • I had my RC and ileal conduit 13 months ago. Sometimes my stoma bleeds when I am changing my pouch. I am accustomed to this. Over the past several months, I have occasionally noticed very small blood ...

clinical trial matching

jj803
  • By jj803 · Posted November 16, 2009
  • In Taking charge: How to be a proactive patient · 4 replies
  • Just found an article on a new service matching patients to clinical trials. Here is the link http://blochcancer.org/2009/11/national- institutes-of-health-make-it-easier-find -a-clinical-trial/. Best ...

Detroit MI Area Survivors: 2010 U of M Support Group Meetings

RickB
  • By RickB · Posted November 16, 2009
  • In Newly diagnosed · 2 replies
  • Dates for 2010 meetings of the University of Michigan Bladder Cancer Support Group are listed below. The sessions are free and no reservation is necessary. Meetings are on Sundays. Jan 17 Mar 14 May 16 ...

Hyperthermia and bladder cancer

joybob
  • By joybob · Posted November 15, 2009
  • In Taking charge: How to be a proactive patient · 6 replies
  • An article by Ralph Moss states heat treatment delivered via the BSD 2000 machine improved patients 5 year survival rate from 67 to 80 per cent. The local tumor control rate went from 63 to 81 per cent ...

Is there any indiana pouch people here?

ontameable

When you were a kid, you remember______________..

roadrunner
  • By roadrunner · Posted November 15, 2009
  • In Caregivers corner · 23 replies
  • Well I for sure never heard of Bladder Cancer, Or any cancer for that matter.... On a lighter note,what do you remember that makes you smile, when you were a kid.. I remember playing outside til dark ...

A Little Fun, not on topic

balihigh
  • By balihigh · Posted November 14, 2009
  • In Help desk · 7 replies
  • At least one line of this story deals with our group! LOL Enjoy-I am leaving in the morning for my check up on Wed. Not taking my computer. Need a vacation from it. Lovers of the English language might ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

Group leaders

You