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Welcome to Inspire!

What - Inspire is a place where you can connect with people who share your health concerns and find information and advice in groups sponsored by organizations you know and trust.

Why - As a member you can use Inspire to let friends and family know how you're doing, contact others who share your health concerns, receive personalized updates and information about participating in surveys and clinical trials, and more.

How - Joining Inspire is completely free and usually takes less than a minute. Join now!

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Discussions

Self-Cathing with the Neobladder

martyofmass
  • By martyofmass · Posted 6:15 pm
  • In Life after radical cystectomy · 0 replies
  • Hello Friends, On Thursday I had my first follow up CAT scan since my RC on 3/18/09 and no cancer was seen! They saw a spot on my lung and now I'm scheduled for a PET scan. I'm trying not to worry or ...

Port for Chemo

Phoenix-George
  • By Phoenix-George · Posted 3:36 pm
  • In Treatment choices · 4 replies
  • Deb is having problems with the veins in her arms, and it seems that a great deal of damage is being done whenever they're used for Chemo. She's considering a port, and is nervous about yet another procedure ...

New Caregiver - would like advice

Eudys-Annie
  • By Eudys-Annie · Posted 3:08 pm
  • In Caregivers corner · 6 replies
  • My finance and I have already been through a month long ordeal leading up to his diagnosis of bladder cancer. I will never forget the look on the Dr. 's face me as he handed me a picture of Jeff's bladder ...

The Journey so far

Phoenix-George
  • By Phoenix-George · Posted 2:50 pm
  • In Life after radical cystectomy · 1 reply
  • We (My wife, who has the cancer, Son & Daughter[in-law], and myself) attended the San Francisco Patient Forum, and considered it one of the most valuable things that we've done. Thought it might be just ...

Can we have some peace please?!!

Annasvenska
  • By Annasvenska · Posted 1:26 pm
  • In Life after radical cystectomy · 7 replies
  • I haven't been online for three four days and it seems there has been some issues and angry feelings here. When I joined BCAN/team inspire over a year ago I got an incredible amount of support and value ...

heading home

honcho2
  • By honcho2 · Posted 8:36 am
  • In Treatment choices · 14 replies
  • I was relesed yesterday after my RC and heading home today. Hard week but all went well. Visually all looked good ,still waiting for the pathalogy ...

Soan Kettering Evidence Based Database of Herbs and Supplements

SilverGrizzly
  • By SilverGrizzly · Posted 7:43 am
  • In Taking charge: How to be a proactive patient · 2 replies
  • For anyone wanting to check out what scientific research has been done on the efficacy of herbs and supplements, you might be interested in this database from Sloan Kettering: http://www.mskcc.org/mskcc/html/69294.cf ...

Staying out of the fray :)

JeanneS
  • By JeanneS · Posted 2:27 am
  • In Living with non-invasive bladder cancer · 15 replies
  • I have no choice about staying out of the fray. I don't know what the fray is One more day of freedom , then hubby starts his treatments. eeeek! Should go well , long as the weather holds up. We're all ...

Life After Cancer Presentation: Highly Recommended!

SilverGrizzly
  • By SilverGrizzly · Posted yesterday at 11:25 pm
  • In Taking charge: How to be a proactive patient · 3 replies
  • I just learned probably 25 things I can do to help prevent my cancer from coming back, while watching the hour and a half presentation on the M.D. Anderson website by the man who wrote "Life After Cancer ...

Staying healthy with bladder cancer

JQ
  • By JQ · Posted yesterday at 10:45 pm
  • In Living with non-invasive bladder cancer · 9 replies
  • Two weeks after my TURBT and MMC treatment, I have come down with the flu. The doctor is treating it as swine flu. I postponed getting a seasonal flu shot because I wasn't sure how it would affect my ...

Upcoming surgery

lilbit37
  • By lilbit37 · Posted yesterday at 7:44 pm
  • In Taking charge: How to be a proactive patient · 5 replies
  • Hello everyone! I am preparing for my upcoming surgery on December 18th. As many of you know, I am 30 years old and had bladder cancer at age 2. My bladder was removed and my ureters were placed in my ...

treating depression

nsk
  • By nsk · Posted yesterday at 1:13 pm
  • In Newly diagnosed · 10 replies
  • I know there is no magic bullett for treating depression but I would like some feedback ...

Caught Early

vgau
  • By vgau · Posted November 6, 2009
  • In Newly diagnosed · 7 replies
  • I think I am one of the lucky ones because my cancer was caught very early. I have non invasive papillary and will have my first check up in Dec. The doctor cauterized the site while doing the biopsy ...

46 year old male Newly diagnosed

markl1966
  • By markl1966 · Posted November 6, 2009
  • In Newly diagnosed · 18 replies
  • Hi Everyone, I have just been diagnosed with bladder cancer, starting my BCG treatment next week. This looks like a great forum to share. I am very happy I found it. Still in a little shock, trying to ...

Seriously.....how did you accept loosing your bladder?

roadrunner
  • By roadrunner · Posted November 6, 2009
  • In Caregivers corner · 33 replies
  • It was a beautiful sunny day, we were sitting in the backyard, my husband starting crying,and said, "Something is really wrong"....hence his journey started over the next 2 years.... His story one of ...

Six weeks after Turbt

jude0211
  • By jude0211 · Posted November 5, 2009
  • In Help desk · 15 replies
  • Hi All, I havent posted in awhile,, hope everyone who is having tests, procedures done this month get good reports. Quick update,, my husband John had his TURBT on Sept. 25 and was found to be clean of ...

Choosing Insurance

antuck
  • By antuck · Posted November 5, 2009
  • In Living with non-invasive bladder cancer · 3 replies
  • It's that time of year where I have to choose if I want to stay with the University's health plan or go with a regular insurance carrier. There are plus and minuses on both sides. The big reason I am ...

Acupuncture & BCG: reporting in

SilverGrizzly
  • By SilverGrizzly · Posted November 5, 2009
  • In Living with non-invasive bladder cancer · 14 replies
  • I'm giving a tentative report on acupuncture to help with BCG side effects. I wish there were two of me, so one of me could be the experimental body and the other the control, and then I'd know for sure ...

BCG #3 going better! :-)

SilverGrizzly
  • By SilverGrizzly · Posted November 5, 2009
  • In Living with non-invasive bladder cancer · 13 replies
  • I'm happy to report my body is handling the third BCG treatment better than the first two. Thank you all for your words of support and your prayers that things would ease up for me. They worked! :-) Much ...

Fever: Infection or Flu--AN UPDATE

DebbieMP
  • By DebbieMP · Posted November 4, 2009
  • In Life after radical cystectomy · 8 replies
  • Hello All: I posted last week about my husband's fever. He had an RC on 8/7 and went with the neobladder. For almost 3 weeks, he had a fever of unknown origin. Finally after much pursuasion, he contacted ...

Related links from BCAN

Researchers are looking for bladder cancer survivors to complete a telephone survey. Click here for more information.

Newly diagnosed
Information for those newly diagnosed with bladder cancer from BCAN.

Bladder Cancer Basics for the Newly Diagnosed
Download or order a copy of BCAN's patient handbook "Bladder Cancer Basics for the Newly Diagnosed" free of charge.

Clinical trials
Get information about clinical trials and BCAN's Clinical Trials Matching Service which is offered at no charge.

Women and bladder cancer
Information about women and bladder cancer from BCAN.

BCAN's glossary (PDF)

BCAN's November Patient Forum in San Francisco
"Understanding Bladder Cancer: A BCAN Patient Forum"
San Francisco, CA
Saturday, November 7, 2009
9:30 am - 2:30 pm
The forum and lunch are free, but pre-registration is required at www.bcan.org or 888-901-BCAN

Presentations from BCAN's May 2009 Patient Forum
Presentations and slides from BCAN's most recent Patient Forum in Cleveland. Those diagnosed with non-muscle-invasive bladder cancer will be most interested in Dr. Jones' and Dr Pohar's presentations. People diagnosed with muscle-invasive bladder cancer will be most interested in Dr. Gong and Dr. Gilligan's presentations. Dr. Campbell talks about improving outcomes in bladder cancer patients, and Dr. Hansel talks about the importance of pathology in diagnosing, staging, and deciding on treatment for each patient.

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