What if BCG does not work, whats next?

Had first round of 6 BCG treatment, and they found red spot on Cysto. Now waiting to have biopsy done. Doctor said that if secound round of BCG does not work will have to do other treatment options. What have people decided to do when second round of BCG has failed or BCG has not worked. Doctor did not discuss options at time of cysto. Also has anybody had any sucess with just nutrition or diet to prevent reoccurence of BC.

Thanks,

Mark

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BBG

Bladder Be Gone.

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You don't need BCG and definitely no BBG... Do what I did and keep it... beatbladdercancer.blogspot.com...

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PS: No biopsy either...

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don't jump ahead/ the red spot can be a healing spot where the biopsy was taken. what does he think the red spot is? one step at a time. If bcg failed first, there are other options. Are you with a bladder cancer specialist, not just a uro and is he/she with a major hospital. if not get a second opinion

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They can always add INF to BCG. I failed the first series of BCG. I have my cysto on Monday.

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Mark, if I recall, you also have dx like me w/ diffuse primary CIS? Since I am gladly on BCG #5 of 6 this week .. (John6-54, that is so great you have been all clear this long largely by your own healthful approach and willpower..and, I am open to all the above..pH balancing, spiritual cleansing, BCG, and if nec. BBG because I appreciate too that "aggressive" High Grade atypical cells have a plurality on negative risk!) .. I understand folks facing the CIS Challenge *may* fail the first round, and have much better luck the second round or after..

StuckD called me this week.. he is 2.5 years all clear! (had identical pre-dx symptoms/experience, negative cytology, and positive diffuse CIS BC dx as did I).. I am newly diagnosed and do not know yet what my results are.. however, have read on BCAN and heard 1st hand that StuckD's 1st round of BCG failed but 2nd round was w/ Interferon. Apparently, he did suffer afterward.. and, yet this week shared he is doing so well today, and cancer free in the present!

Mark, I hope my recount help address your concern(s). You, as I read like jj, served a career path helping others w/ disease diagnosis and assistance w/ care.. only to get your own dx of BC.. it seems to me all this irony has some higher meaning/purpose aiding for others, still (here on BCAN)

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Mchar, my experience appears to have been the same as what you are going through now. My first round of BCG treatments was a "failure" so my doctor added Interferon and that worked! Hopefully if you go that course, you will have a similar outcome.

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My first round of BCG "failed" for CIS. Second round was 1/3 strength BCG plus Intron A (a type of Interferon.) It worked. I am still here three years later.

Go to this file that contains several papers about Dr. O'Donnell's work at the University of Iowa concerning this treatment and the statistics on success for BCG refractory (failed) patients.

http://www.uihealthcare.com/depts/med/urology/research/bladdercancer/bcgint erferonalphastudy.pdf

Good Luck.

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After BCG, which did not work, we tried another chemo, It did not work either the bcd reined my bladder and I had no choice but to remove it.. That was last june 14 and we are used to the new procedure using the pouch system.

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I had no success with BCG alone. Second round with Interferon and then 3 treatment of mitomycin which worked. No reoccurence of my in situ cancer. I additonally go in every 3 month currently for 3 cath instills of mitomycin one per week. All good. Hang in there. Had my first small tumor on lining of bladder in 1996. Removed, nothing for a couple of years then another small tumor. About a year ago shifted to in situ. Still here. Best advice is to avoid goofballs who recommend you forgo scientific medical treatment, and even biopies, for their untested "cures." As another stated, don't get ahead of yourself.

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I can only tell you what I WISH we had done. I wish my husband had never even had the FIRST round of bcg treament after his diagnosis of T1G3. If I had known then what I know now, he would have gone straight to rc. I am of the firm belief that most people with high grade bc will sooner or later need to have their bladder removed. Dealing with a urostomy has been NOTHING compared to dealing with stage IV bc.

Now, this is just MY view, I certainly respect those who choose to do whatever they can to keep their bladder. In the end, it is YOUR decision to make. I wish you the best.

Gayle

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I too wish you the best and the best is to keep what God has given you... All I can tell you is that I am 100% cancer free and not afraid of reoccurrence... I am 100% healthy and I wish that everyone who has cancer follow the Book of Daniels Healing Fast as I did...
I am no doctor, however God did give me the wisdom to cure myself of cancer and the most important part for me was to reduce stress by cleansing my body spiritually (living the Gospel) and physically (eating only vegetables and water)... It's all in my blog and if it is not or unclear, please comment or ask... What I did and how I did it really really works if it is done 100%... I can now eat whatever I want but choose not to too often because of the lousy way it makes me feel (achy, tired, sore, lack of energy)... Whatever your decision, it is yours and yours alone and mine was mine and mine alone...
God Bless All...
John

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John 6, happy for you and your faith. Can you share any papers, research or someone other than yourself that can give anything other than antedotal comment on your baking soda treatment? Would be interested in reading any and all papers or studies you can refer me to, other than your personal blog. Peace be with you.

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Straight inerferon instillations seem to be working for me after BCG was a bum ride. Good luck

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Thanks for all the responses and information. Lots of varied opinons on the subject. I appreciate you sharing with me what you have expierenced.

Thanks,

Mark

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