I finally have a copy of the pathology report from my TURBT last month, and I wanted you all to see the final diagnosis word for word.
" 1) URINARY BLADDER CANCER TUMOR, TRANSURETHRAL RESECTION:
NON-INVASIVE PAPILLARY UROTHELIAL CARCINOMA, LOW-GRADE; SCANT MUSCULARIS PROPRIA PRESENT. "
That is a direct quote from a National Cancer Institute pathology lab.
Ron
Just as a side note, at the urging of the anesthesiologist I went in for a sleep study last week and I got those results today also, not only do I have terrible sleep apnea but even with the CPAC machine my blood oxygen levels were dropping to 77% so I have a prescription for a CPAP and an oxygen generator.
They told me I would feel like a new man using this and getting a normal nights sleep.
Ron
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We all agreed that "SCANT" was not medical terminology
- By DrgnTrappr
- Posted November 4, 2009 at 6:17 pm · 12 replies
- In Taking charge: How to be a proactive patient
- Shared with the public
- Edited November 5, 2009 at 7:46 am
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- By jj803
- Posted November 4, 2009 at 6:37 pm
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Hi Ron,
In this context, I think scant is a perfectly acceptable statement. The meaning being conveyed is that not much muscle wall (muscularis propria) is in the biopsy, which is not as important in a non-invasive tumor. I would say that you have gotten excellent news. Low grade non-invasive tumors may be persistent in their propensity to recur, but usually do not progress to higher stage tumors. Most often for the patient this means a fairly frequent follow up schedule for several years, if this is all that is or has been found. So, whereas I found scant invasion not too helpful; in this context scant imparts a lot of information. Best wishes,
JJ
- By DrgnTrappr
- Posted November 4, 2009 at 6:51 pm
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Thanks JJ,
I agree it was good news, considering I had not gotten a second opinion until my Uro referred me to his surgeon for bladder removal. Now he will be treating me here at home under consult with the Dr. at Vanderbilt, BCG's start Friday.
Ron
- By 15yrsurvivor
- Posted November 4, 2009 at 7:33 pm
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Great news, Ron!
My husband also suffers from sleep apnea. For years, we were telling him he had a BIG snoring problem, but he would never do anything about it! Finally, he had to after he was in the hospital for a knee replacement and the nurses told the doctors about it. He did a seven hour sleep study, and he "woke up" more than 300 times.
They docs said it was amazing he was able to function, much less hold a job! The man who set him up with his CPAP machine had never seen anyone with statistics like this in his 16 years with the company.
You should benefit greatly from a better night's sleep.
Good luck!
- By mycopper
- Posted November 4, 2009 at 10:01 pm
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Glad you have good news. I also sleep with a cpap machine and an oxygen generator. I hope you have a better time with it.I was dx about 3 years ago and I'm still fighting with it at times, keep trying. Just make sure you get the right mask for you. There are lots of different masks out there. If you need help just let me know and I will try to help you sort it out.
Candy
- By roadrunner
- Posted November 4, 2009 at 11:37 pm
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Funny you mention this,after reading one of my husbands reports recently I also saw the word Scant,,
omg,,,,its is a term,,,,,ya never know,,
Glad for the news,,,,,
congrats
Ginger
- By mendo_lady
- Posted November 4, 2009 at 11:54 pm
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Great News!
and now maybe some Great Sleep!
- By balihigh
- Posted November 5, 2009 at 7:21 am
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Ron,
That is excellent news!! Are you receiving BCG treatments? I had 3 at Dr. S's office and the staff was most professional. I had my others in Greensboro and liked the nurses much better here at home. Mine were over a year ago and I had a RC in Sept. 2008.
I don't have sleep apnea but before my surgery, I was getting up anywhere from 3(very good night) to 12 times a night. Never got much sleep so I can tell you that once you are able to really sleep, you will feel like a different person.
Hugs,
Nancy
- By Kyle-MO
- Posted November 5, 2009 at 10:14 am
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Ron, That is a good pathology report, and congratulations !
Take care,
Kyle
- By robm
- Posted November 5, 2009 at 10:42 am
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hey ron -
"SCANT" - medical terminology ? - who knew ? thanks for advising us on this - now if i happen to run across this term in any of my medical reports i won't have a ufo (unlimited freak out) -
good luck with the cpat - a good friend was in the same boat as you and it has worked great big time - (have to admit - it is a scary looking device) - his only problem so far has been getting it checked through airport security -
later rob
- By Julie7
- Posted November 5, 2009 at 3:13 pm
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Ron, your report was about as good news as you could get about bladder cancer.
You will find with CPAP and oxygen you will feel a lot better. My husband used a CPAP for 20 years and was delighted when they developed the nasal pillows as they worked much better for him than a mask. My CPAPs and use the nasal pillows also. They come in different sizes. I had friends who had such a narrow bridge on the nose they could never get a mask to fit right.
Julie
- By EG-NJMason
- Posted November 5, 2009 at 3:16 pm
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Congrats on your report !!
But why the discussion of 'scant'. I know when I hear the word, I immediately look for some fair young maiden.. That's pretty positive !
- By jj803
- Posted November 5, 2009 at 7:20 pm
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The "scant" discussion arose out of a previous miscommunication in which Ron was told there was scant invasion. Obviously, not. So the discussion consisted of whether or not scant was a good term to use with regard to invasion.
JJ
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