Hello Inspire Members,
My Mom has been fighting cancer since March of 2008. First it was on her kidney so she had her 1 kidney taken out. After 6 months of being cancer free, she had her routine PET scan and it showed that the cancer have now moved to her Bladder. She underwent chemotheraphy which she handled very well and PET scan showed that there are no trace of cancer anymore, but her doctors adviced her that she needs to undergo cystectomy, they said it will give her more chance to really be cancer free. Doctors said that her type of cancer is really aggressive. She does not really want to because just the thought of having a bag for the rest of her life really scares her. But because of my encouragement she went through the surgery last 4th of August. The Sugery went well and she recovered very fast.
Now that she is at home we are having so much trouble with her bag. It always leaks. We have tried so many types of bags and it will still leak. She is so depressed about it and blames me because I'm the one who really encourage her to have the surgery. The WOC nurse told us that it leaks because she has a fold/crease in her tummy because she has a big tummy. We tried putting the adhesive cream and the paste but nothing works. We would change her bag and in just 1hr it will start leaking already. We are also afraid that because we change the bag too often that she'll have very bad skin around her stoma, but if we don't change the bag she'll might have infection on her surgery area where it usually leaks.
We really need help and advice on how to take care of this problem.
Thank you all in advance.