My husband, 45 years old, was diagnosed with bladder cancer right before Thanksgiving 2010. He had his first surgery to remove the tumor on December 7, 2010. The pathology report came back showing the tumor was about 4cm and was very aggressive. We were sent to an urologic oncologist in January 2011. Since the pathology report said the tumor didn't invade the bladder wall dr. suggested another resection at three months then treat with BCG rather than bladder removal. On March 4, 2011 we went in for resection. CT scan showed tumor had already returned and one lymph node was swollen. On March 8, 2011 my husband had his bladder and prostate removed and neobladder created. When pathology report came back, the doctor said one lymph node tested positive for cancer and that the original pathology from December was wrong. This was not primary bladder cancer, but rather he has small cell cancer in the bladder. The doctor said he couldn't answer any of our questions because this cancer is so rare and not his specialty. We go back to have a check up on March 31 to make sure everything surgically is fine and remove remaining stints and catheter. Doctor has yet to refer us to an oncologist, give us any kind of alternatives, treatment ideas, survival rates, or any idea of what we may be in for. Information on the internet is just scary. Do any of you have any recommendations on what kind of treatments we should pursue or places we should go? Are there any natural treatments that may also help? Any kind of advice or information (good news or bad news) I can get right now would be appreciated.